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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Sounds like your are coping appropriately, Jvn7.
  2. trents
    Claire, you may have either celiac disease or NCGS (Non Celiac Gluten Sensitivity). Celiac Disease is not an allergy. It is an autoimmune response to the ingestion of gluten. This autoimmune response causes inflammation and damage to the small bowel lining. You need to request a blood antibody test for celiac disease from your physician: https://celiac.org...
  3. trents
    "I eat out a lot with family because everyone is a foodie in my family but it's so hard to avoid contamination." Sorry, I probably read too much into that. So, you're talking only about out at restaurants rather than eating at family members' homes? Yes, CC (cross contamination) is very difficult to avoid when eating out because you have little control...
  4. trents
    I agree with Scott. The proof is in the pudding. If removing gluten from your life makes you feel better that is what to focus on.
  5. trents
    Vilified or verified?
  6. trents
    Yes, that is usually how it works when you try to go back on gluten for testing after a significant time away from it.
  7. trents
    Scott is right. Your numbers are not high but solidly positive. I was wrong in saying "barely positive" but we not uncommonly get reports on this forum of people with numbers 10-15x normal.
  8. trents
    What about NCGS (Non Celiac Gluten Sesitivity) instead of celiac disease. They have common symptoms and the antidote is the same, total abstinence from gluten. No damage to the villi, though with NCGS like there is for celiac disease and there is no test for it. Celiac disease must first be ruled out. In addition to that, some people who do have celiac disease...
  9. trents
    Yes. There is no other know cause for DH other than celiac disease. But are you sure the skin issues were in fact DH and not some other kind of skin condition? My understanding is DH has a very distinctive appearance with blisters.
  10. trents
    Gliaden X might work for small amounts of gluten consumed such as in accidental cross contamination scenarios but it sounds like that at times the OP knowingly consumes larger amounts.
  11. trents
    Yes, typing on a cell phone makes it difficult to be clear sometimes. Since there is no test for NCGS I would presume the positive stool test means you have celiac disease, despite the negative biopsies. Sometimes we do get reports from posters of that happening. Perhaps the biopsies were taken at an early stage of the disease process before there was...
  12. trents
    Welcome to the forum, Jvn7! In answer to your question, one which has been asked many times on this forum, we know of nothing that really facilitates recovery from an episode of glutening. There is woeful ignorance in the medical community as a whole with regard to celiac disease. It's just not on the radar of most physicians, though there is a...
  13. trents
    It wasn't clear to me if you were saying your were diagnosed with celiac disease from the stool test or NCGS since you used the term "gluten intolerant" which can be used for either. And you also said the nurse practitioner opined that you had celiac disease, even though you had two negative biopsies. And the fact that you feel better after cutting out gluten...
  14. trents
    Had you been eating more gluten I expect your test numbers would have been higher.
  15. trents
    Belinda, your numbers are barely positive but they do suggest celiac disease. By chance, when the blood test was done, had you already started cutting back on gluten? Jill, there are two medical diseases that involve a reaction to gluten. One is known as celiac disease. There are two common tests that are used to diagnose celiac disease. One is a blood...
  16. trents
    The physician prescribed Budesonide for refractory celiac disease? That certainly is an atypical application since it is a cortico-steroid normally prescribed for asthma and COPD. Have you explored the idea with your doc of something common and inexpensive like prednisone? How diligent are you in eliminating gluten from your diet? Studies have shown...
  17. trents
    Yes, you were very careful. But the wording, "If this sounds like your friend," (whom she also identifies as her sister) seems to barely avoid a diagnosis. At least to me. Especially when you went into such detail about narcissistic personality disorder. I felt like I was reading a post from a psychology forum.
  18. trents
    Let's be careful with mental health labels. We don't really know any of these people personally and have only gotten a snapshot of their behavior in a limited context. We all have some narcissism in us.
  19. trents
    Here's another option: https://www.imaware.health/at-home-blood-test/celiac-disease-screening I agree with your assessment that a positive home screening test in hand when going to the doctor for an official lab screen might make him/her more agreeable to ordering the lab work. But is there any reason to suspect the doctor would not be open to it without...
  20. trents
    Welcome to the forum, Belinda! Not all the blood tests are highly sensitive. The most commonly used blood antibody test is the tTG-IGA. It combines good specificity with good sensitivity. Some of the other tests may be more specific for Celiac disease but less sensitive. Here is an overview of antibody tests that can be run for Celiac disease: https...
  21. trents
    In addition to beginning a D3 regimen of at least 5000IU Daily I would recommend a gluten free high potency B-complex daily. Costco's Nature Made is a good choice. Wheatwacked is right about celiac disease typically generation vitamin and mineral deficiencies due to the damage done to the small bowel villi. Vitamin and mineral deficiencies can play havoc...
  22. trents
    Sqiishtophe, welcome to the forum! What is it that you are afraid your family doctor won't believe you about? Having celiac disease? Being sincere about regretting your health negligence? And you may know this, but some mental health issues typically manifest themselves in young adulthood.
  23. trents
    I agree with Wheatwacked in his thought about trying prednisone or something similar to get the immune system under control and potentially break the cycle.
  24. trents
    You are ignoring the likelihood of cross contamination. If those burger patties are cooked on the same grill as pancakes, breaded fish or chicken patties, etc. and handled with the same spatulas and utensils then they will pickup some gluten. It might not be enough to cause you a celiac reaction (a noticeable one, anyway) but for more sensitive celiacs it...
  25. trents
    Yes, celiac disease is an autoimmune disorder. People with celiac disease have a statistically higher incidence of RA and thyroid disease and other autoimmune disorders. Keep in mind that it typically takes many years for people to get diagnosed with celiac disease and many of those were "silent" celiacs for a period of years until the villi damage became...
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