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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Found this: https://pubmed.ncbi.nlm.nih.gov/26830864/ Shows an association between rosacea and celiac disease as well as other autoimmune disorders.
  2. trents
    Welcome to the forum, @Nita hearn! It's interesting that you should ask this question. I just has an appointment with my dermatologist last week because I have developed a red rash on my cheeks and red bumps/pimples in the bridge of my nose. My wife was concerned that I might have developed rosacea, which she developed years ago. She's not a celiac but...
  3. trents
    Some might. Some might not. Why don't you try it? Taste is a very personal and individual thing. I don't know that anyone can speak for you.
  4. trents
    Welcome to the forum, @Thoas! Just curious. Why do you ask? Is there some reason you are hesitant to try it besides taste?
  5. trents
    Malabsorption of vitamins and minerals from celiac disease tends to be global. So, if you are low in one or two things that have been tested, you are likely low in other vitamins and minerals as well. Routinely, we the admins on this forum recommend to those celiacs who were undiagnosed for years to supplement with sublingual B12, a high-potency B-complex...
  6. trents
    Welcome to the forum, @Dorothy O.! May we assume you have now been officially diagnosed with celiac disease? You seem to imply this and if so, when did these blood pressure and cough symptoms start to appear?
  7. trents
    Paulo, Las reglas del foro requieren que todas las publicaciones se realicen en inglés.
  8. trents
    Most doctors don't even order anything besides the tTG-IGA and maybe total IGA when doing blood testing for celiac disease. The EMA is the very first celiac blood antibody test that was developed and has largely been replaced by the tTG-IGA which is less expensive to run in the lab. My understanding is they both pretty much check for the same thing. The IGG...
  9. trents
    @lizzie42, So, I'm confused with what you are uncertain about. Do you really have any doubt that your 5 year-old son has celiac disease? Is it because he isn't exhibiting anemia and the rash as did your daughter? The genes are certainly there and the antibody testing certainly indicates celiac. And given the fact that he was on a reduced gluten diet...
  10. trents
    @lizzie42, Are the results you posted above for your daughter or for your son? If these are for your 5 year-old son, they are strongly positive and definitely suggest celiac disease. The ttg-iga is the centerpiece of celiac disease antibody testing and at 59 it is a strong positive. If you are wondering why some of the other tests are negative, you need...
  11. trents
    If it was me, within 2-3 hours I would be throwing up violently with excruciating abdominal cramps for 2-3 hours. When this phase was done I would go into the diarrhea phase for several hours. But every celiac is different in how they respond to getting "glutened".
  12. trents
    NCGS is 10x more common than celiac disease. This should help you get off to a good start:
  13. trents
    So, if you know from experience that gluten causes you issues because when you eliminate it you definitely feel better, then in light of your negative biopsy results it looks like you have NCGS (Non Celiac Gluten Sensitivity). NCGS still calls for gluten free eating and some experts believe it can transition into celiac disease.
  14. trents
    Welcome to the forum, @Beagirl! What you are feeling is what we have all felt to one degree or another and we typically feel it more intensely when we already have a laundry list of health issues to work around. It's often the result of a sense of loss . . . of having to say goodbye to some good foods that we enjoy that may have been part of a shrinking...
  15. trents
    Hello again, @JessikaSwallow78! I think you already posted in another section of the forum. My goodness! You are dealing with quite a few health challenges! Anemia and vitamin/mineral deficiencies are very common with celiac disease. Celiac disease damages the lining of the small bowel and reduces the ability to absorb vitamins and minerals from...
  16. trents
    Welcome to the forum, @JessikaSwallow78! There have been over 200 symptoms and health problems associated with celiac disease. So, it might be more helpful if you tell us what symptoms you have that make you think you might have celiac disease.
  17. trents
    Mostly because of the inconsistency/irregularity of your symptoms with regard to gluten consumption and other dietary factors. Their doesn't seem to be a real pattern. Histamines are produced by our bodies themselves but they are also found in the foods we eat and the air we breathe (pollen). Certain foods, for example, fermented and aged products, are...
  18. trents
    Celiacs vary enormously in their sensitivity to cross contamination and I assume the same may be true for those with NCGS. I also wonder if other things going on in our body at any given time can influence whether or not we experience symptoms upon exposure to gluten, especially with reference to minor amounts like you get in cross contamination. We are more...
  19. trents
    No. That is, unless the dietician themself has a gluten disorder or is managing a close family member who does and therefore is immersed in it daily so as to be up on the nuances of eating gluten free. Otherwise, they just give you very general information which you can get online.
  20. trents
    Yes, a very cryptic and uninformative lab result report indeed! But it does seem like this is typical for the UK. It's almost like the "professionals" in that healthcare system don't want you to try and figure anything out for yourself.
  21. trents
    Wow! I think the answers to your questions seem obvious to me but I'll oblige you. It's invasive because they are running a scope into an orifice and down through much of your body. Any procedure that invades the body is invasive. It's expensive because you are paying a trained professional (a doctor) to do it, plus nurses and an anesthesiologist...
  22. trents
    The other thing to understand is that if the blood antibody testing is negative, it is most likely that the endoscopy/biopsy will also be negative. The blood tests are checking for antibodies from the damage caused by celiac inflammation. The biopsy is checking optically for the same damage. If there are no antibodies being produced then there is no damage...
  23. trents
    Technically speaking, the blood test is not required before the endoscopy/biopsy but you may have a hard time finding a physician willing to do an endoscopy/biopsy without it having been preceded by positive celiac blood antibody test scores. Positive antibody test scores provide the justification for going forward with an invasive, expensive procedure that...
  24. trents
    @LeeRoy83, what RMJ is referring to is the test for IGA deficiency, often called "total IGA". It is not a celiac diagnostic test per se. However, if this test score is low (i.e., you are IGA deficient), the celiac IGA test scores cannot be trusted as they will be artificially low which may include false negatives. Possibly, RMJ is correct. But I'm looking...
  25. trents
    The reality is, returning to gluten consumption makes some people so ill that they cannot complete the gluten challenge. There is no shame in that. Nonetheless, they must live with the ambiguity of not knowing whether they have celiac disease or NCGS. Another reality is that at the end of the day, both conditions require complete abstinence from gluten and...
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