Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

trents

Moderators
 View Profile  See their activity

  • Posts

    8,392

  • Joined

  • Last visited

  • Days Won

    506

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, @Pamp8! As to your first question, it is possible to have only the epidermal form of celiac disease but it is not common. Most people who have dermatitis herpetiformis also have damage being done to the villous lining of the small bowel. As to your second question, most likely you are getting some gluten contamination from...
  2. trents
    When I was 13 or 14 years old, a buddy of mine talked me into smoking a cigarette. I only got part way through it before getting the green pukes. Common to a lot of people I understand who, nonetheless, persist on subjecting their systems to the toxic nicotine until they develop a kind of tolerance for it and don't get nauseous any longer. They may be doing...
  3. trents
    Early guidelines from years ago concerning D3 supplementation was unduly conservative. There was fear of toxicity in over-supplementing because D3 is a fat soluble vitamin and not a water soluble vitamin. More recent studies have shown we can supplement safely at considerably higher levels for extended periods. But yes, 50,000 IU would not be safe over an...
  4. trents
    That is one issue but the bigger issue may be the human tendency to rationalize it all away without an official diagnosis such that you keep falling off the gluten free bandwagon. But there is the option of going for the gluten challenge in a more robust way and getting retested.
  5. trents
    A slice of bread weighing 50g isn't the same as 50g of gluten. Bread dough contains other components besides gluten. At any rate, at the end of the day, the antidote for celiac disease and for NCGS is the same, life-long avoidance of gluten. My hunch is that you do have celiac disease but are in the early stages of it. Some experts in the field believe...
  6. trents
    Tell us about your "longer gluten challenge". Current guidelines for the gluten challenge are the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least 2 weeks leading up to the blood draw day or the scoping/biopsy. "I just received the pathology report with the doctor's comments, and it shows "findings...
  7. trents
    knitty kitty brought up something that also occurred to me. Namely, the reason you don't like bread and pasta may be that your body has been instinctively telling you, "this is harming me" and so you avoid it. Cake, on the other hand, has less gluten and lots of other goodies like sugar and butter and chocolate that mask what gluten there is.
  8. trents
    Also, concerning your apprehension about family pushback, you might relate to this:
  9. trents
    First, I hope you know that celiac disease is not an allergy to gluten. It is an autoimmune disease reaction that is triggered by gluten consumption. Allergies don't trigger immunes responses whereby the body attacks it's own tissues but this is what is actually happening with celiac disease and what distinguishes celiac disease from NCGS (Non Celiac Gluten...
  10. trents
    Lot's of folks would trade places with you with regard to the unintentional weight loss. Seriously, though, I would be concerned about vitamin and mineral depletion due to malabsorption in the small bowel. One thing you can do now to address that which will not jeopardize the accuracy of further testing for celiac disease would be to start taking some...
  11. trents
    A classic case of more than one medical problem going on at a time. We often forget that can happen. Are you concerned about your weight loss? Is your current weight too thin for your height, gender and general build?
  12. trents
    @Shining My Light, I am not a doctor or a trained medical professional of any kind. However, I was a hospital chaplain for many years and sat in on countless numbers of medical team meetings with doctors and nurses discussing the medical issues of their patients as well as tests administered and interventions applied. What I can tell you is that many diseases...
  13. trents
    @Shining My Light, what do you mean when you say "the blood test not being 100%"? Were you expecting all possible celiac blood antibody tests to be positive in the case of someone who actually does have celiac disease? That seldom, if ever, happens. You are gauging too much on how you feel when you consume gluten and not paying enough attention to test...
  14. trents
    Welcome to the forum, @terrymouse! Your GI doc is correct. Going gluten free now will allow healing to occur in the villous lining of the small bowel such that the endoscopy/biopsy may not show the damage to the villous architecture that is characteristic of celiac disease. Since your celiac blood antibody tests results are on the low side and don't...
  15. trents
    That's just it. When they are doing an EGD, even with biopsy, if they aren't thinking about celiac disease they may miss it. They should take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and easily missed if sampling isn't through. And patch damage may explain lack of dramatic symptoms. Let me assure you that we...
  16. trents
    All that is exactly why you should have an endoscopy with a biopsy of the small bowel lining done. It's a very simple procedure and in the US they put you under for it so there is no discomfort. You don't even have to do a cleanout like you do for a colonoscopy. It might also be wise to wait a few months and get the tTG-IGA checked again if nothing...
  17. trents
    There are plenty of people with celiac disease walking around who are largely asymptomatic. I was one of them. We call them "silent celiacs" They don't seem to have GI distress or maybe it's so minor and infrequent it's not really noticeable. They can be in that state for years until the damage to the villi progresses to a critical point or they begin to...
  18. trents
    Welcome to the forum, @Shining My Light! It's good to be able to engage a secret "friend". I know you don't want to hear this, but with a positive tTG-IGA, a positive tTG-IGG and off and on GI distress, your next logical step would be to get an endoscopy done with a biopsy of the small bowel lining (duodenum and duodenum bulb) to check for villous atrophy...
  19. trents
    Multivitamins are generally not potent enough to effective address significant deficiencies.
  20. trents
    Yes, being off gluten for 3 months would likely yield negative results. To get accurate testing redone you would need to restart gluten consumption for several weeks (the "gluten challenge") to the tune of at least 10g of gluten daily (about the amount found in 4-6 slices of wheat bread).
  21. trents
    That is one of the tests covered in the article I linked you above.
  22. trents
    Well, it certainly seems reasonable to get checked for Crohn's since you have a family member with it and SIBO. You might also consider talking to your physician about a trial on an immunosuppressant, like prednisone, to see if numbers go down and symptoms subside. Sometimes, just interrupting the inflammatory cycle can effect a reset and put you on the road...
  23. trents
    Doctors aren't always right. I have been participating on this forum for many years and you wouldn't believe the cockamamie things doctors say about celiac disease to our member base. It's often based on very outdated information and sometimes just plain ignorance. Many doctors neglect to tell their patients not to begin a gltuen free diet before the testing...
  24. trents
    When you say you have been in an "entirely gluten-free household" since January of 2025" does that include making sure you have checked that all medications, supplements and oral hygiene products are gluten free? I can also tell you that for some people, it can take several years for their antibody numbers to normalize.
  25. trents
    I believe you are falsely concluding that elevated tTG-IGA/tTG-IGG levels can only be caused by celiac disease. I will offer a link here to an article outlining the various blood antibody tests that can be used to diagnose celiac disease. Each one them has less than a 100% specificity for celiac disease:
×
×
  • Create New...