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trents

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Everything posted by trents

  1. trents
    By the way, you need to repost those numbers in your first post and add the reference ranges. Different labs use different reference ranges so the test scores by themselves aren't very helpful, especially when the values may be borderline positive. It would need to be in a new post window as the edit function times out quickly such that you can't go back...
  2. trents
    Welcome to celiac.com, @Cat M! Were you consuming generous amounts of gluten for a significant period of time (weeks/months) before the blood draw and test results you posted? I ask because you say you would like to be retested after consuming gluten for a few weeks. Current guidelines for the gluten challenge call for the daily consumption of at least...
  3. trents
    @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of...
  4. trents
    I see nothing in the ingredient list that concerns me from a gluten intolerant perspective. Historically, how has your 13 yr. old been treated for his acne? When I was a teenager I had acne issues (this was in the 1960s) and was put on a long term regimin of tetracycline. It helped the acne but I am convinced it altered my gut microbiome and contributed...
  5. trents
    Yes, but knowing you have "a gluten problem" does not distinguish between gluten sensitivity and celiac disease, an important distinction when it comes to long range health implications and how strict you need to be in avoiding gluten. And in reality, many people find they cannot stick to the gluten free diet until they have a formal diagnosis. Without that...
  6. trents
    This is truly a breakthrough in the diagnostic realm! Hopefully, this technology will become widely available sooner than later and save a lot of people a lot of misery in the process of trying to get a diagnosis.
  7. trents
    This caught my attention: "More importantly, these changes may not go away completely—even when the patient is following a strict gluten-free diet. Previous research has shown that neurological damage caused by gluten may be long-lasting or even permanent in some cases. This underscores the importance of early diagnosis and strict adherence to a gluten-f...
  8. trents
    Scott Adams makes an excellent point about the possible pending scope with biopsy being the reason you were advised to keep eating gluten, @NCalvo822! You might want to get some clarification about that. What you don't want to happen is to go gluten free and then have to go back on gluten at some point in order to produce valid scoping/biopsy results.
  9. trents
    You might look into wearing an N95 mask when others are creating baked goods with wheat flour in your environment.
  10. trents
    Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and...
  11. trents
    Welcome to the forum, @NCalvo822! Ditto to what Scott said. But let me ask you, what method or methods did your physician use to diagnose you as having celiac disease? Normally, it is a two step process. The first step involves a blood test that looks for certain antibodies produced by celiac disease. The second step involves an upper GI scoping and biopsy...
  12. trents
    @isi keller, seems like you are confusing glycemic index with gluten intolerance. Wheat, barley, rye and some cultivars of oats are the only grains that contain the protein gluten. Other grains have similar proteins more or less similar to gluten that are informally referred to as gluten but technically speaking, they are not.
  13. trents
    I was always under the impression that type 1 Diabetes onset always happened in childhood. Everyone that I know with type 1 has had it all for most of their lives.
  14. trents
    @dmallbee, about 8% of celiacs react to the oat protein avenin like they do to the wheat protein gluten. In addition, there are some cultivars of oats that apparently do actually contain gluten.
  15. trents
    @N00dnutt, I don't think it is correct to place celiac disease and Crohn's in the category of endocrine disorders. They are autoimmune disorders. Endocrine disorders affect organs that are glandular in nature and secrete hormones such as the pancreas and the thyroid. It is certainly true, however, that many endocrine disorders also have an autoimmune base...
  16. trents
    @CeliacPI, I know this does not directly address your question but it is well-known that in the celiac population, intestinal diseases in general are statistically more common than they are in the general population - IBS, colitis, lymphoma, etc.
  17. trents
    @N00dnutt, been there, done that! Cheers!
  18. trents
    @N00dnutt, as OP explained earlier, she had a gastroscopy done earlier while she had been eating plenty of gluten for months. It was negative despite strong positive antibody scores.
  19. trents
    @N00dnutt, can you find that article from the Mayo Clinic? That one would be a handy one to have for education purposes.
  20. trents
    It occurs to me that this might be a good application for gluten test kits, since the test kits seem to require samples in power form and pills can easily be rendered in that form. According to this article, and it seems to be current, there are three choices when it comes to gluten test kits: https://www.verywellhealth.com/gluten-detectors-and-test-kits...
  21. trents
    Marish makes a good point. Even if there is an effective "pill" therapy developed, how expensive will it be and will insurances cover it?
  22. trents
    I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over...
  23. trents
    Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference...
  24. trents
    Welcome to the forum, @Mrs. Cedrone! Among the various causes for canker sores, are "Nutritional problems like too little vitamin B12, zinc, folic acid, or iron" https://www.webmd.com/oral-health/canker-sores Could you be deficient on something?
  25. trents
    @Ronnie d, there is a small percentage of celiacs who have dermatitis herpetiformis but have no small bowel mucosal involvement. Also, we have had some reports on this forum from dermatitis herpetiformis suffers who said Dapsone did not work for them. But for the vast majority it does.
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