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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Scott Adams commented on Dr. Ron Hoggan, Ed.D.'s article in Winter 2005 Issue2New Data on Used Oats
This was written in 2005 for our Journal of Gluten Sensitivity, which was then a paper publication (now online here). Ron Hoggan retired many years ago, but his brother died of complications due to celiac disease, which propelled him into studying more about the subject, which led him to become a leading author and lecturer on the topic. He's written many...- celiac disease
- gluten-free
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- trents commented on Dr. Ron Hoggan, Ed.D.'s article in Winter 2005 Issue2New Data on Used Oats
Thoughtful article. For me the most valuable element of this article is the discussion of IELs. We have many posts on celiac.com from people who have all the symptoms of celiac disease but whose biopsies show no other irregularity than IELs. Perhaps we should be taking that more seriously.- 1
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- celiac disease
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- trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms25
Blood results
Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour... -
- Sheila mellors replied to LovintheGFlife's topic in Gluten-Free Foods, Products, Shopping & Medications5Is Toblerone Gluten-Free?
I asked about the new fruit and nut one and the Dietician said yes I could eat it safely. Hooe this helps- 1
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- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms25Blood results
Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose i...
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Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
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By Sheila mellors · Posted
I asked about the new fruit and nut one and the Dietician said yes I could eat it safely. Hooe this helps -
By Heatherisle · Posted
Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight -
Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats.
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By Scott Adams · Posted
I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering.
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