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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- Scott Adams replied to Kirita's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Help with genetic testing
The genetic testing results you provided indicate that your child carries two copies of the HLA-DQ2.5 beta chain (DQ Beta 1 *02:01, *02:01), which is a high-risk genetic marker for celiac disease. However, the alpha chain (DQ Alpha 1 *05:01, *05) is only partially present, as HLA-DQ2.5 typically requires the alpha chain *05:01 paired with the beta chain ...- 1
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- Jenny (AZ via TX) replied to Jenny (AZ via TX)'s topic in Gluten-Free Foods, Products, Shopping & Medications4 -
- DebJ14 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications8Finding gluten free ingredients
As my doctor said, you don't have to eat breakfast food for breakfast. I may have a leftover piece of chicken and left over squash or eggs or I am actually more likely to skip breakfast as I do intermittent fasting. In that case I eat lunch around 11:30 and have some guacamole and a salad with chicken or tuna. For dinner I have pork, shrimp, chicken, lamb... -
- lmemsm replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications8Finding gluten free ingredients
With that many foods removed from your diet, what do you eat? I also have histamine issues and migraines so that takes out certain trigger foods and high histamine vegetables. Have allergies to coconut and issues with nuts so those are out. I'm beginning to think I may have to remove dairy and some of the grains beyond wheat to get allergies under control... -
- knitty kitty replied to Zuma888's topic in Related Issues & Disorders11Burning sensation when I wake up
@Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide). They are available over the counter. Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well.- 1
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By Scott Adams · Posted
The genetic testing results you provided indicate that your child carries two copies of the HLA-DQ2.5 beta chain (DQ Beta 1 *02:01, *02:01), which is a high-risk genetic marker for celiac disease. However, the alpha chain (DQ Alpha 1 *05:01, *05) is only partially present, as HLA-DQ2.5 typically requires the alpha chain *05:01 paired with the beta chain 02:01. Since your child has two copies of the beta chain (02:01) but only one full *05:01 alpha allele (the other appears truncated as *05), this suggests they are heterozygous for HLA-DQ2.5 rather than homozygous. The term "permissive for celiac disease" means your child has genetic susceptibility but not necessarily the highest-risk genotype (homozygous DQ2.5). Since celiac disease development also depends on environmental triggers and other factors, further testing (such as antibody screening or biopsy) may be needed to confirm a diagnosis. Consulting a genetic counselor or gastroenterologist can help clarify these results and next steps. -
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As my doctor said, you don't have to eat breakfast food for breakfast. I may have a leftover piece of chicken and left over squash or eggs or I am actually more likely to skip breakfast as I do intermittent fasting. In that case I eat lunch around 11:30 and have some guacamole and a salad with chicken or tuna. For dinner I have pork, shrimp, chicken, lamb, or turkey with half a baked sweet potato and some broccoli, green beans, beets, carrots or cauliflower. I do not eat any grains on the advice of my doctor. I do not eat commercially processed products, even if they say they are gluten-free. I make Warrior Bread every few weeks. It has no yeast and contains almond flour and dried sweet potato. Very tasty too. A good book to help in this regard is No Grain, No Pain by Peter Osborne. Thankfully, I can eat coconut and nuts and use those flours in baking and also use nut milks in cooking. Since I am allergic to chocolate and vanilla, lemon is my go to flavor for something sweet. My migraines totally disappeared once I went gluten and casein free. I can occasionally eat certain high fat cheeses that are low in casein, as well as grass fed butter. I use lots of Organic Olive and Avocado oil. The problems I thought I had with nightshades went away when I went fully organic. And, the rest of my issues went away by avoiding the foods I tested positive to as well as avoiding all grains. I will be the first one to say that it is a very expensive way of eating, but thankfully we can afford to eat that way. The good news is that I take no prescription meds at age 72. At 54 before diagnosis, I was a mess and on a boatload of pharmaceuticals.
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With that many foods removed from your diet, what do you eat? I also have histamine issues and migraines so that takes out certain trigger foods and high histamine vegetables. Have allergies to coconut and issues with nuts so those are out. I'm beginning to think I may have to remove dairy and some of the grains beyond wheat to get allergies under control. Just having so many issues figuring out what to make at meal times. What's a typical breakfast look like for you? Thanks.
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By knitty kitty · Posted
@Healthforme, No prescription needed for thiamine hydrochloride, Benfotiamine, and TTFD (Tetrahydrofurfuryl Disulfide). They are available over the counter. Thiamine Mononitrate is not recommended because the body doesn't absorb or utilize it well.
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