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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- perrykarin commented on Scott Adams's article in Summer 2025 Issue3The Science of the Glutened Brain: What Happens to Your Mood, Memory, and Focus After Accidental Exposure? (+Video)
I was not diagnosed with Celiac until I was 50 (13 years ago). I have often said to my husband that I fear I have Alzheimer’s as my memory and word retrieval are often very compromised. I have also suffered from depression. After reading this article I wonder if I may have some neurological issues from years of eating gluten not knowing I had Celiac. Are y... -
- Pgetha replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications5Gluten free thyroid medications
I have been dealing with this same issue for our son who has Down’s Syndrome and Celiac Disease. Insurance, (Medicaid) outright will not cover the Gluten Free which is a capsule under the brand name Tirosint and another manufactured by Lanette and a third by Yaral. Just yesterday, Medicare (not Medicaid) finally approved it but this was after 6... -
- NoGlutenCooties replied to NoGlutenCooties's topic in Gluten-Free Restaurants2gluten-free in Wilmington, DE
Thanks Scott. That's why I was hoping for a recommendation of a place known to be safe. Jenny -
- jeriM replied to jeriM's topic in Related Issues & Disorders2Can Celiac flares affect my eyes?
Thank you so much. It helps just knowing there is a connection and it's not my imagination. I am seeking help from a nutritionist and will talk to my PC about inflammation marker testing - thank you. During one flare I went to see an ophthalmologist because my symptoms were so severe. He didn't draw any connection but just said that my eyes were extremely... -
- Zuma888 replied to Zuma888's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2How to interpret my genetic test results
Thank you so much for your response! Does this mean that each of my parents on their own may not have HLA-DQ8 but combined together gave me HLA-DQ8?
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Posts
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I have been dealing with this same issue for our son who has Down’s Syndrome and Celiac Disease. Insurance, (Medicaid) outright will not cover the Gluten Free which is a capsule under the brand name Tirosint and another manufactured by Lanette and a third by Yaral. Just yesterday, Medicare (not Medicaid) finally approved it but this was after 6 months of paying out of pocket to the tune of $148.00 a month! It’s been a nightmare. If his dose changes, we have to repeat the process! His dose changed three times in a month! Thyroid management is a moving target as it is with Celiac Disease greatly compounding the issue. Very frustrating.
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By NoGlutenCooties · Posted
Thanks Scott. That's why I was hoping for a recommendation of a place known to be safe. Jenny -
Thank you so much. It helps just knowing there is a connection and it's not my imagination. I am seeking help from a nutritionist and will talk to my PC about inflammation marker testing - thank you. During one flare I went to see an ophthalmologist because my symptoms were so severe. He didn't draw any connection but just said that my eyes were extremely dry and recommended drops, which I use. However, when a flare develops, the drops are only marginally effective. I think I've eliminated one source of contamination. We had 20 chickens until less than a month ago, when we sold that property. Although I scrubbed after feeding and taking care of the chickens, the feed is mostly wheat and I'm sure I had to be inhaling wheat 'dust' every day. I'm feeling like there will be improvement. Thank you so much for your reply, the help and suggestions.
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Thank you so much for your response! Does this mean that each of my parents on their own may not have HLA-DQ8 but combined together gave me HLA-DQ8?
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By Scott Adams · Posted
Any chance you are getting traces of gluten in your diet? This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
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