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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Known1 replied to Known1's topic in Introduce Yourself / Share Stuff12Diagnosed Marsh stage 3C in January 2026
Thanks, at that price it was a complete no brainer. I also went through the reviews and a number of folks with our ailment gave it 5-stars. It won't be here until the end of the month, which may give me enough time to finish the books I have. Also, in an effort to play it safe and see if I start feeling better again...I tossed out my remaining bananas... -
- knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff12Diagnosed Marsh stage 3C in January 2026
Yes, that's the one I was referring to! Good for you, being proactive!- 1
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- Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms35results from 13 day gluten challenge - does this mean I can't have celiac?
link works but you may have enhanced security blocking it. In Edge you have to click on continue to site when the security warning opens. Other browsers or antivirus may just block it because it is not https. -
- Known1 replied to Known1's topic in Introduce Yourself / Share Stuff12
Diagnosed Marsh stage 3C in January 2026
It looks like she has a couple of books that share "The Paleo Approach" in the title. I ordered this one, as the other is a cookbook. The Paleo Approach: Reverse Autoimmune Disease and Heal Your Body Thanks again for the info.- 1
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- Kimmy88 commented on Scott Adams's article in Product Labeling Regulations3FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease
Thank you so much for sharing!! I did submit a message to the government urging strong stricter labeling!- celiac disease
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Thanks, at that price it was a complete no brainer. I also went through the reviews and a number of folks with our ailment gave it 5-stars. It won't be here until the end of the month, which may give me enough time to finish the books I have. Also, in an effort to play it safe and see if I start feeling better again...I tossed out my remaining bananas and will keep them out of my diet for the next 6-months. 😀 Thank you for sharing your experiences and making recommendations to a noob like me.
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By knitty kitty · Posted
Yes, that's the one I was referring to! Good for you, being proactive! -
By Wheatwacked · Posted
link works but you may have enhanced security blocking it. In Edge you have to click on continue to site when the security warning opens. Other browsers or antivirus may just block it because it is not https. -
It looks like she has a couple of books that share "The Paleo Approach" in the title. I ordered this one, as the other is a cookbook. The Paleo Approach: Reverse Autoimmune Disease and Heal Your Body Thanks again for the info.
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By knitty kitty · Posted
@Known1, I understand you have had your B12, Folate B 9, and Vitamin D level checked. However there are other B vitamins that are not routinely checked because blood tests for other B vitamins are terribly unreliable, expensive, or cumbersome to use frequently. Results can take a long time to get back, delaying proper treatment and risking permanent damage. It's easiest to supplement and look for health improvement. Blood tests can reflect how much of a certain vitamin was consumed in the past twenty-four to forty-eight hours. Vitamins released by digestion is absorbed by villi, anemone like projections that increase the surface area of the small intestine, and then pass into the blood stream for distribution around the body. A Marsh score of 3C indicates severe damage to the villi lining the small intestine. Absorption of nutrients is definitely affected. Blood tests don't reflect the amount of a vitamin that is stored inside cells before being used. You can have "normal" blood levels but have deficiency within cells of organs and tissues. Tissues and organs will relinquish their stored vitamins into the blood stream in order to keep the brain and heart working while tissues and organs are depleted. It's possible to have a localized deficiency of Thiamine B1 in different organs which cause the organ to malfunction. Gastrointestinal Beriberi is caused by Thiamine deficiency in the gastrointestinal tract. Gallbladder dysfunction, thyroid dysfunction, heart attack, and cognitive dysfunction can be caused by Thiamine deficiency. Most of the B vitamins cannot be stored for very long, maybe six weeks. B12 can be stored for as long as a year in the liver. So having "normal" B 12 levels does not mean all your other vitamins are "normal" as well. Thiamine can be stored for eighteen days, however Thiamine can be depleted within three days. We have a greater metabolic demand for Thiamine when we're physically ill, emotionally stressed or are physically active (work out regularly) or work outdoors (or ride bikes). Because most B vitamins can become low within a month or two under the best of circumstances, many newly diagnosed feel great on the gluten free diet at first. After that, they seem to start going downhill. The nutritional deficits start making themselves known. Keep in mind that processed gluten free foods are not enriched nor fortified with vitamins and minerals to replace nutrients lost in processing like their gluten containing counterparts are. You have to replace them yourself by taking supplements at least until the villi regrow and absorption improves. The eight B vitamins are water soluble. They are easily lost if one has diarrhea or constipation or in those with a high Marsh score. Because they are water soluble, the body can easily excrete excess through the kidneys. Recommended Daily Amounts are based on experiments done on humans to find the minimum dose required to prevent disease. Levels for optimal health are much higher. Doctors are trained in medical learning institutions which are funded by pharmaceutical companies. Requirements for nutritional education have been reduced to twenty class hours over the course of the seven years of medical school. Three-day weekend seminars earn ten hours. Vitamins cannot be patented as they are natural substances, so there is more profit for doctors to prescribe pharmaceuticals. They are taught to cover symptoms with pharmaceutical bandaids. They may not look for what caused symptoms to appear in the first place. Doctors are taught nutritional deficiencies don't occur except in impoverished or drought stricken countries. This is not accurate. Nutritional deficiencies can occur if you eat a High Carbohydrate Diet, eat the Standard American Diet, and if you have malabsorption problems as occur with Celiac Disease. You can check out my blog for the challenges I faced due to vitamin deficiencies that went unrecognized by doctors. Talk to your doctor and new dietician about supplementing with vitamins, minerals and essential nutrients while your villi are healing. My favorite Celiac book is The Paleo Approach by Dr. Sarah Ballantyne. She explains the AutoImmune Protocol Diet. It has been shown to reduce inflammation and promote healing in the gastrointestinal tract. Best wishes!
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