Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Can't Believe That Just Happened......

~**caselynn**~

Recommended Posts

~**caselynn**~ Enthusiast
~**caselynn**~
Posted

I've been a Celiac (diagnosed) 2 yrs and haven't ever run into this scenario. A friend wanted to go to lunch, and chose the place with a supposed gluten-free menu that her gluten-free coworker eats at "all the time". The eatery was set up a lot like a subway sandwich shop, was not subway! As we all know, the workers at such places are quite possibly contaminating food left and right without any idea. So when I saw this and told my friend I didn't dare eat there, she was beyond mad and couldn't understand why her coworker eats there and I wouldn't.....she really didn't care to even listen to the reasoning of cross contamination and how some people are less sensitive or braver than others. Never mind the fact that this coworker could just be gluten intolerant and cheat at times?! Seriously??? Flipping seriously?! Ugh, I'm trying to let it go because we've been friends for our whole lives, but where in the H did this irrational thinking person come from?? This is definitely a first for me, So upset :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Sorry....This sucks!

 

 

I suppose I could give you advice and strategies...... but ..... you probably know that stuff and this just sucks... :angry:

GottaSki Mentor
GottaSki
Posted

yep....sucks.

 

sometimes folks need to just be around your for awhile to "get" it -- sometimes not -- but that is their problem, not yours.

 

good on you for staying safe :)

tarnalberry Community Regular
tarnalberry
Posted

I've been a Celiac (diagnosed) 2 yrs and haven't ever run into this scenario. A friend wanted to go to lunch, and chose the place with a supposed gluten-free menu that her gluten-free coworker eats at "all the time". The eatery was set up a lot like a subway sandwich shop, was not subway! As we all know, the workers at such places are quite possibly contaminating food left and right without any idea. So when I saw this and told my friend I didn't dare eat there, she was beyond mad and couldn't understand why her coworker eats there and I wouldn't.....she really didn't care to even listen to the reasoning of cross contamination and how some people are less sensitive or braver than others. Never mind the fact that this coworker could just be gluten intolerant and cheat at times?! Seriously??? Flipping seriously?! Ugh, I'm trying to let it go because we've been friends for our whole lives, but where in the H did this irrational thinking person come from?? This is definitely a first for me, So upset :(

 

I'm so sorry that happened to you.

In those sorts of situations, I try to emphasize that I am "happy" to stay while the other person gets something to eat, because it's my own choice to not eat the food.  Then, hopefully, they realize that it's stupid to get mad at someone making their own choice on what to eat or not to eat.  (It's also why I always carry food with me.)

Juliebove Rising Star
Juliebove
Posted

Yep.  I see this all the time.  I have diabetes.  If I say to someone that I can't eat something because it makes my blood sugar go too high, I often get the retort that their friend or aunt or coworker or whoever eats this thing all the time!  And it could be that those things are fine for those people or they may not be.  There are a lot of clueless people out there.  Diabetics who never or rarely test their blood sugar.  And people with other food issues who never make the connection to the food they've eaten when they get sick.

 

Lots of people don't understand cross contamination either.  They think a little bit won't hurt.  Perhaps because all they are familiar with in terms of diet is a weight loss diet.  They might think...  If I eat that bite of pie, I might not lose weight today.  But there's always tomorrow!  They think this sort of thinking can apply to all diets.  But we here know that it can't.

Brandiwine Contributor
Brandiwine
Posted

So sorry Hun, this always hurts worse when it's a " friend". Maybe when you both have a bit of time to clear your mind from raw emotion you can talk and maybe she will be more willing to listen. Maybe reschedule some where you can eat. She may have been upset because she felt robbed of a personal victory, she could have been excited to be able to take you somewhere new that was safe for you and failed. Feeling a little blindsided she probably didn't express herself well. She obviously doesn't understand very much about your needs, hopefully she will be open to learning more. I know it was terrible but try to see her side and hopefully she will try to see yours. Maybe if you let her know that you see her effort and appreciate it, but you are very sensitive.

You probably know how to better deal with your friend than I do just, trying to give an outsiders prospective.

Good Luck

cap6 Enthusiast
cap6
Posted

That sucks!!!   Those that are gluten intolerant  and cheat can really make it hard on those that are Celiac!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

surprising that she knows you have already been doing this for TWO YEARS - time enough to get used to the idea that you have to be very careful where you eat.  if she was that close of a friend, she has seen your health improve as well, so your 'picky' eating is necessary!  sorry, kiddo, that sucks :( that's why i have, like, one friend lolz she better not screw it up :lol:  

~**caselynn**~ Enthusiast
~**caselynn**~
Posted
  • Author

surprising that she knows you have already been doing this for TWO YEARS - time enough to get used to the idea that you have to be very careful where you eat. if she was that close of a friend, she has seen your health improve as well, so your 'picky' eating is necessary! sorry, kiddo, that sucks :( that's why i have, like, one friend lolz she better not screw it up :lol:

Haha! Yup my friends have dwindled over the years but that's fine with me, this one has never reacted this way. We were able to get passed it and go to a great place later in the week for lobstah, but my oh my that threw me.....

And thank you all for your kind words and suggestions! As you've guessed, I tried all those things, sometimes it's a give and take. I've decided I can chalk it up to lack of knowledge, and a bad day. Next time, I will do my own research as I usually would. :)

karichelle Newbie
karichelle
Posted

That sucks!!!   Those that are gluten intolerant  and cheat can really make it hard on those that are Celiac!!!

 

This also makes it difficult for those who are intolerant or not formally diaganosed and choose to eat as if they were celiac -- no cheating, avoiding CC, etc. It becomes an issue of "Well, so-and-so eats just a little bit on occasion, so surely it'll be okay for your too." I know my body well enough now to know that it is not okay for me.

 

I don't understand why people get so angry or offended over someone else's food choices, be it gluten free, vegan, vegetarian, whatever.

w8in4dave Community Regular
w8in4dave
Posted

I think thats what happened!! I bet your friends co-worker in just intolerant. I am starting to believe I am just intolerant also ... I don't think your friend should of gotten so angry with you about it tho. Glad you were able to patch things up!!   :)

Brandiwine Contributor
Brandiwine
Posted

This also makes it difficult for those who are intolerant or not formally diaganosed and choose to eat as if they were celiac -- no cheating, avoiding CC, etc. It becomes an issue of "Well, so-and-so eats just a little bit on occasion, so surely it'll be okay for your too." I know my body well enough now to know that it is not okay for me.

I don't understand why people get so angry or offended over someone else's food choices, be it gluten free, vegan, vegetarian, whatever.

Thank you!!!! I feel like a broken record with that sentence! It really shouldn't matter to anyone but the person prosuing the diet!!!

Adalaide Mentor
Adalaide
Posted

I think thats what happened!! I bet your friends co-worker in just intolerant. I am starting to believe I am just intolerant also ... I don't think your friend should of gotten so angry with you about it tho. Glad you were able to patch things up!!   :)

 

I actually think the problem with the co-worker is that they are a piss-poor advocate for their own health and the gluten free community as a whole.

 

Distinguishing between people with celiac and NCGS in terms of diet, compliance, and how they eat is not only unproductive but destructive to our community. There are many here who are diagnosed NCGS who were every bit as sick as some of us who are "gold standard" biopsy diagnosed celiacs. Many more simply could not withstand a challenge and got a NCGS diagnosis while they may very well have celiac. Many of these in both categories get every bit as sick as someone with celiac from the most miniscule amount of CC.

 

Let us refrain from dividing the community and recognize this for what it is. An uneducated person, fad dieter, or moron eating where they shouldn't.

pricklypear1971 Community Regular
pricklypear1971
Posted

I actually think the problem with the co-worker is that they are a piss-poor advocate for their own health and the gluten free community as a whole.

Distinguishing between people with celiac and NCGS in terms of diet, compliance, and how they eat is not only unproductive but destructive to our community. There are many here who are diagnosed NCGS who were every bit as sick as some of us who are "gold standard" biopsy diagnosed celiacs. Many more simply could not withstand a challenge and got a NCGS diagnosis while they may very well have celiac. Many of these in both categories get every bit as sick as someone with celiac from the most miniscule amount of CC.

Let us refrain from dividing the community and recognize this for what it is. An uneducated person, fad dieter, or moron eating where they shouldn't.

Or someone that doesn't have obvious reactions and can't tell they've gotten into gluten. In the beginning I couldn't....took a while to figure it out.

But I did know how to recognize a risky situation if I saw it (like Subway). Kitchens where I can't see what's happening require a leap of faith.

eers03 Explorer
eers03
Posted

I'd be upset too.  Your friend is not a gluten expert and risks that might be acceptable to her friend don't have to be acceptable to you.  These moments are frustrating.  

gatita Enthusiast
gatita
Posted

I'd be seriously upset. I'm NCGI, but NO WAY can I eat in a CC place. My good friends know this, and I'd be angry if they didn't listen to me about it.

 

Awhile ago, I downloaded a pamphlet about celiac for family and friends that I gave to my fiance so he'd get it. He does.

 

Maybe that would be a good thing to give to people who won't listen.

Gemini Experienced
Gemini
Posted

Haha! Yup my friends have dwindled over the years but that's fine with me, this one has never reacted this way. We were able to get passed it and go to a great place later in the week for lobstah, but my oh my that threw me.....

And thank you all for your kind words and suggestions! As you've guessed, I tried all those things, sometimes it's a give and take. I've decided I can chalk it up to lack of knowledge, and a bad day. Next time, I will do my own research as I usually would. :)

I'm thinking there is a New Englandah in there because you pronounced it "lobstah"!    ;)

IrishHeart Veteran
IrishHeart
Posted

I'm thinking there is a New Englandah in there because you pronounced it "lobstah"!    ;)

 

we always know anuthah noo Englandah.....and  if I recall, caselynn...is in Maine?? yes??!!! :)

 

and now, suddenly...I want lobstah....

  • 3 weeks later...
~**caselynn**~ Enthusiast
~**caselynn**~
Posted
  • Author

we always know anuthah noo Englandah.....and  if I recall, caselynn...is in Maine?? yes??!!! :)

 

and now, suddenly...I want lobstah....

Haha! A New Englandah I am! In fact, I'm a Mainah! A northern Mainer though lol where we speak more of a French accent, eh? ;) but that accent isn't as fun when you're saying lobstah! ....makes me want lobstah too, mmmmm :)

You all are very right, it would be awesome if as a whole, the gluten-free community could move forward and educate others. As we all know, for every one of us that is spreading the news about gluten-free and cc, there's always going to be one who is non compliant, non symptomatic or just not well versed in their disease. Perhaps we can try and get more info out there, it certainly can't hurt!

PS: if you're a New Englandah and in the Portland area, you MUST go to Bam Bam Bakery!! (I don't work for them just love 'em!) Commercial St downtown P-town, dedicated gluten-free bakery and cater to other allergens as well!! Breakfast, lunch, dessert, catering, wedding cakes, etc. cinnamon roll for breakfast before my 4 hour drive north was just what the doctor ordered.......okay, he didn't order for me but he did tell me to check it out!! Thank you Dr. Stefan!!!!

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

any chance you can put a link to that pamphlet please?

 

 

I'd be seriously upset. I'm NCGI, but NO WAY can I eat in a CC place. My good friends know this, and I'd be angry if they didn't listen to me about it.

 

Awhile ago, I downloaded a pamphlet about celiac for family and friends that I gave to my fiance so he'd get it. He does.

 

Maybe that would be a good thing to give to people who won't listen.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    2. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    3. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    4. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,244
    • Most Online (within 30 mins)
      7,748
    tmperrella
    Newest Member
    tmperrella
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.