Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Do'h I Glutened Myself Thread

Saz

By Saz
in Coping with Celiac Disease

Recommended Posts

Saz Explorer
Saz
Posted

Hey Guys.

I've notcied people starting threads for when they gluten themselves, so I thought why not start one for everyone to post.

I've managed to gluten myself two possibly three times since Friday.

1. I did it delibrately, had a caramel sundae from Maccas, was intending on being extra extra careful for a few days after this.

2. Yesterday I glutened myslef again, it was accidental but still my fault as I didn't read the label. I bought a chocie milk (Woolworths brand) and for some reason half after drinking most of it decided to read the label, turns it has malt in it. I was SO pissed off it was the one thing that I bought that I didn't check the ingredients for.

3. Today I got some hot chips that I think may have had something bad in the flavouring.

I know that these are all my fault, esp the ice cream, but just wanted to vent, I had being doing so well. Oh well tomorrow is a new day I guess.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi Saz--you must be a mind reader :D

I glutened myself yesterday (it hasn't happened in a long time) with some plain roasted almonds. They tasted like there was some spice on them, probably from a previous flavored batch. :angry:

I felt pretty crummy last night--still nauseous this morning. I am interested to see how this plays out, since it's been a while.

Hope you feel better soon :)

almostnrn Explorer
almostnrn
Posted

There must be something in the air lately!! <_< I don't know whats going on with me either...it seems like I get myself over one thing and BLAM I"ve gone and done it again. Quite honestly I don't know what is making my mood worse...the gluten or the frustration. Yesterday I was starving after work (I am home by 2:30). We need to head to the store this week so there aren't a ton of choices going on in the pantry or fridge if you know what I mean. I stared at a can of Progresso soup that I have seen on a gluten-free list for close to an hour....fianlly was too freaked out to try it given my glutening incidents of the last couple of weeks and put it up only to opt for some rice. I was too hungry to wait for the rice cooker to do its thing so I grabbed a bag of Success boil in bag rice. Needless to say it wasn't a success for me. It must be coated or something because it was an immediate and severe reaction that laid me out for the rest of the day. At least I had a big AH HA moment in there. When I first went gluten-free I still was still having these tummy aches..burning, cramping bloating and couldn't figure out why...but it just made me want to curl up in a ball. I invested in a rice cooker around last April and really haven't had any kind of instant rice since then...until yesterday. Unfortunately that doesn't make me feel any better today. Just wondering...does anyone else have that immediate thought when you are eating someting questionable or new that "this tastes too good, must have wheat in it" going on? I hope you are all back to up and running soon (really no pun intenended)!

Saz Explorer
Saz
Posted
  • Author

This is where I am very lucky, I won't get sick from it I would have to drink about 100 litres of the milk. This can sometimes be a bad a thing as this makes it possible for me to get glutened when Im out and have no way of knowing, though I try to stick to stuff that is gluten-free. Up untill 2 months ago I was haiving 2 gluten-free days a week, I could eat a sandwich on the other days as long as I spaced it out right.

Feel better!

Anway Im getting off topic.

Guest melannen
Guest melannen
Posted

Ok I'll add my most recent gluten episodes...

1. About a month ago: I hadn't been very good about eating regularly through the day (I don't really feel hunger and have to remind myself to eat) so when daddy brought home a big order of nachos from a local take away I ate a bunch without thinking....BIG MISTAKE! Ugh, started feeling a bit sick that night and woke up miserable. I am just now feeling back up to speed (thank goodness!)

2. About 2 weeks ago: I was having a friend over to watch movies and had bought an Amy's frozen pizza. When I bought it I thought "Amy's; they make gluten-free stuff" and didn't check the ingredients (stupid stupid stupid!). Lucky for me I was saved when my friend was glancing at the back of the box and noticed 'wheat flour' at the top of the ingredients list :o

arc Newbie
arc
Posted

Freakin' Krackel bars! I thought they were okay, but it turns out that have malt. Of course, it was one of the minis, so they don't have the ingredients listed on the wrapper. I was sick within a couple of hours and it laid me up for part of the weekend. :angry:

elye Community Regular
elye
Posted

Well, tonight should be very interesting gluten-wise, with all our trick-or-treaters bringing home tons of irresistable stuff.... :rolleyes:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


emcmaster Collaborator
emcmaster
Posted

I glutened myself on Sunday. I don't know why I gave in, but I did, and I ate mexican food at my favorite, to-die-for mexican place.

The funny thing is that I'm not feeling all of my usual symptoms. I have the back pain and severe fatigue, but not the bloating and I've only had tummy pain for about an hour before bed last night. Guess I should be thanking my lucky stars, right?

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

I got glutened the other week as well.

The sad thing is I knew better about the place.

I had a brainfart and decided to go to a buffet with my gluten-free -- she had free buffet passes.

I was careful and I asked 100 questions.

I still got nailed and it stayed with me for 2.5 days.

Like I said, I knew better than to try and eat at a buffet -- I just thought I was "King Gluten Free" and could handle it -- obviously not...

:(

liljules5 Rookie
liljules5
Posted

I ate pei-wei to go tonight. I have always had wonderful success with them being gluten-free and if it isnt fixing the problem before I eat anything...well somehow 2 gluten filled noodles (flat noodles) ended up in my gluten-free sweet and sour chix. I mistakenly ate one thinking it was an onion and then of course freaked out when i realized it wasnt an onion and i found another noodle....needless to say I am feeling pretty crappy already and it is just going to get worse over the night :angry:

penguin Community Regular
penguin
Posted

Today: The chinese place that is accomodating to celiacs put regular fried rice in with my gluten-free meal. I ate probably two bites of the rice, stupid me. I'm itchy and with an upset stomach...blech!

LoriBelle Newbie
LoriBelle
Posted

Hi Everyone!

I'm new here - at least in posting - but I've been lurking and reading for quite a while. I've been gluten-free for a little over three years.

I absolutely love Werther's Caramels and tonight, as I was throwing away the empty bag (hadn't eaten any - just emptied them out into the candy dish on my desk) my eyes happened to catch the word WHEAT on the back!!! ACK!! It says it contains wheat?? OMG! I've been eating at least one almost daily for the past two years. I thought these were gluten free! I had read online in a couple of different places that they were gluten free - and didn't check the ingredients again after the new labeling went into effect.

Anyone else eat Werther's Caramels, thinking they were gluten free? I'm so sad and angry. I'm very careful about avoiding gluten at all costs and now I see I've been poisoning myself all this time!! I still do have tummy problems on a pretty regular basis but not so bad that I was searching out a possible gluten exposure somewhere. argh!!!

almostnrn Explorer
almostnrn
Posted

I hate it when that happens!!!! I hope you are feeling 100% soon!

BostonCeliac Apprentice
BostonCeliac
Posted

Ughh... just got back from lunch out with the office... I think I was definitely glutened by accident...

I thought I would be fine, I had a burger with cheese - NO BUN OF COURSE, and fries (have had the fries at this place many times)... must have been the burger right? The fries may have been fried with other stuff too, but I'm sure it's always that way and it's never bothered me before...

Not happy right now. I don't think I've been glutened accidently in about a month - which is a long time for me only being about 3 mos. gluten-free...

Thanks for letting me vent!!!!!

Tori's Dad Apprentice
Tori's Dad
Posted

almostnrn, The plain white Success boil in bag rice is gluten free...did you eat one of the brown or chicken flavored ones?

almostnrn Explorer
almostnrn
Posted
almostnrn, The plain white Success boil in bag rice is gluten free...did you eat one of the brown or chicken flavored ones?

Nope it was plain white...I wonder if there is something else on the rice that I"m reacting to? I also have to say I can't rule out that the box somehow got contaminated. Whatever it was it happened incredibally fast!

ianm Apprentice
ianm
Posted

I had gone over a year with no gluten either intentional or accidental. I used a new shampoo and didn't read the label. The bottle even had the words HYDROLYZED WHEAT PROTIEN prominently displayed on it too.

SarahTorg Apprentice
SarahTorg
Posted

I have REALLY eaten something bad!

I can not pinpoint what though. I've been eating a lot of plain hershey bars. and I ate an entire bag of hersheys kisses with caramel in them. And I cooked food at my inlaws house in their scratched up teflon pans. That was probably the worse mistake. Oh, and today I ate a nutrageous fun sized candybar. I was not sure if it was gluten free or not. I still ate it. In the last month, I've been eating so much chocolate. I don't think I've EVER in my life consumed so much sweets like I have this month.

Every morning I wake up, and vow to eat all natural, only to buy a hersheybar, or something at the store.

georgie Enthusiast
georgie
Posted

I had a mad moment last week and ate some home cooked lemon pudding. It was a type of souffle and had little flour and I thought a couple of spoons wouldn't hurt - right ? WRONG !!! SIX days later still have incred pain, and even had a migraine 2 days ago. I can't believe it would last this long !! :angry:

Guest marshlakemom
Guest marshlakemom
Posted

Well I did a real stupid thing last night, I went to Pizza Hut with friends, had hot wings.....stupid. Had diarreah as soon as I got home, even though they are listed as being gluten free.

I get so frustrated trying to eat out, as we all want to be able to go out once inawhile, but I'm beginning to realize it just isn't worth it anymore. Spend a fortune on a meal, then come and ****^&* it out. LOL Worse than someone with a eating disorder.

Oh well...onward and bound as I say.

I just find that I try (normally) to keep gluten-free, but I still always feel so darn fatigued and my sleep, well I just don't get much sleep, and my skin is always so dry and itchy. Drives me nuts.

Its hard when you live in a small community, and eating out places are limited.

Just my grumble for the day.

Deb

SchnauzerMom Rookie
SchnauzerMom
Posted

I have been off of gluten for a couple of weeks. Yesterday I ate some leftover Halloween candy that I thought was gluten free. Well, it wasn't and I'm still paying for it. The candy doesn't appeal to me anymore since it makes me sick. I used to think I had to have it. No more. Pain is not something I enjoy. ;)

aikiducky Apprentice
aikiducky
Posted

I hope I haven't glutened/caseined myself... I'm at the stage where I have gas, and my heart flutters, and I'm a bit bloated, and I just don't know whether it's just indigestion or if I'll wake up tomorrow with no energy at all and feeling depressed. I usually don't get major d, it's the messing with my head that I'm worried about. And it's still going to take hours before I know for sure. :(

I haven't eaten anything suspect, but I was at a cafe and had some tea, and some wine I'm not sure about...

Blaah.

Pauliina

  • 4 years later...
pelsteen Newbie
pelsteen
Posted

Lemon or Grater glutened me!

Three and one half months after going gluten free, I was sick for 5 days, cramping all night for 14-16 hours in bed, and unable to figure out what was wrong. I ate only single ingredient foods or combinations of them. I went off all five drugs I would normally take, and was still sick. As I lay in bed awake and cramping, I cried out to God: "I give up; I can't figure out what is making me sick" He replied: "lemon bars:" the carefully made gluten-free lemon bars I had made the first day I was sick! I replied "How could I get glutened by them?" and God answered "the grated lemon peel!" OOOHH! I hadn't washed the lemon before grating it, and I hadn't washed the grater again before using it!

How do you get all of the gluten off a grater?

cap6 Enthusiast
cap6
Posted

I would get a new one.

glutenfreemamax2 Enthusiast
glutenfreemamax2
Posted

I glutened myself bad this past weekend. Glad to know I'm not the only one who has done this to MYSELF..... :)

I went on aday trip with my inlaws. I ate before I went, knowing there was not going to be anything accessable. We went to a resturant, and I asked if they had a gluten-free menu. She said "a what?" I ordered a bowl of lettuce in a CLEAN bowl not touching croutons, ranch dressing, and a pain piece of grilled chicken, cooked please on a clean grill. It was really yummy. Then we went for frozen yogert, and they brought me out all the packages they used to make the yogert. All I saw that was questionable was emulsifiers. I ate it anyway. My stomach instantly hurt.

Today is Wed. It's been 4 days. FOr the past 2 days i have had the worst pain in my stomach. Almost sore. Inflamed. Some blood in my stool. I'm miserable. I vowed to plan ahead better and not eat out anymore!!

I HATE feeling bad.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,258
    • Most Online (within 30 mins)
      7,748
    Tdodge
    Newest Member
    Tdodge
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By knitty kitty · Posted

      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.