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Poll- How Tall Are You?


Cinnamongirl

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Cinnamongirl Rookie

I've read celiac disease may cause people to be shorter than they otherwise would be. I'm 5 feet tall and wonder if I lost some height because of it. Anyone else feel this way and want to post their height?


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  • Replies 57
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Emilushka Contributor

5'6". I was diagnosed at 27 years old.

RideAllWays Enthusiast

I'm 5 feet tall.

Wenmin Enthusiast

5' 2"

Diagnosed in 2008 at age 42

Wenmin

Lisa Mentor

5'8, but beginning the decline. <_<

jerseyangel Proficient

5' 3" :)

celiac-mommy Collaborator

DD's 9 years old. She's about to hit 5 feet any day. She was diagnosed at age 4. Son is over 44" and 5 years old which is about the 75% for his age. He was diagnosed at 2. But I'm 5'11" and hub's 6'5". I'm the shortest 'kid' in my family but I don't have Celiac...


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diane64 Apprentice

I am 5 foot 9. Imagine how tall I'd be without celiac? I wonder!

MelindaLee Contributor

I'm the shortest in my family at 5'2"...my next sister is undergoing testing now, and is the next shortest at 5'3". Interesting question! My DS is 5'10" and celiac, my other DS is 6'4" and not celiac. :blink:

mushroom Proficient

5'7" - shrunk 3/4 of an inch. Self-diagnosed 3 years ago.

eatmeat4good Enthusiast

I'm 5 feet tall.

Been 5'1" all my life until last Dr. visit when they said I am now officially 5 feet o inches.

What????

I guess those 7 years undiagnosed took a toll.

This is interesting.

okieinalaska Apprentice

5' 6 and a 1/2. Just recently diagnosed at age 42.

IrishHeart Veteran

interesting poll!

I am just 5'4"... which is a bummer because I wanted to be a professional dancer, but was too short:<(

My sister, who I think may be celiac, too is 5'3".Brother 5'9" Dad was 5'8" and Mom 5'3". None of us are very tall.

I was just DXed at age 53 after a long illness and a lifetime of issues I can now link to this.

Hubby, however, is 6'3"...he's our family giant :>)

bridgetm Enthusiast

I don't come from a tall family. At 5'6" I'm the tallest in my house by 2+ inches. Would have grown taller if not for steroid asthma meds all through childhood. No obvious gluten-intolerance symptoms until last year.

mcc0523 Newbie

I'm the shortest one in my family, besides my mom. Dad is 6'2", Mom is 5'4", youngest brother is 5'10", oldest brother is 6'5", and my sisters are both 5'11". I was 5'6" at my tallest, but I'm now down to 5'5", and I'm only 25... I have osteoporosis, so the height loss scares me a bit. I hope that I'm able to reverse some of the bone loss just by being able to absorb vitamins and minerals again now that I'm gluten-free.

notme Experienced

5'8" at the last check - anybody's shoe size shrink?? i used to wear a solid 9 sometimes 9 1/2. now i am 8 1/2, sometimes 8?? maybe i should double check my height.....

rosetapper23 Explorer

I'm 5'8-1/2", and I was diagnosed at 47. My son, who was diagnosed at almost 16, was supposed to end up between 6'5" and 6'8", but his celiac was triggered when he was 11. He began to lose ground with his height--he was usually the tallest in his grade, but by the end of 8th grade, he was not even one of the tallest in his class. He ended up at 6'3-1/2". I think celiac definitely affected his adolescent growth.

HS7474 Apprentice

I'm 4'11". My mom is 5'3" and dad is 5'6". Sister is 5'2". All are non-celiac. My brother, who I suspect may have celiac, is 5'10".

lynnelise Apprentice

I'm 4'11. My mom used to be 4'10 but she's got osteoporosis and has shrunk a bit! My dad is only around 5'6. I had stomach problems my whole life but only figured out the gluten connection a year and half ago!

My daughter made it to 5'3 (her dad is 6'3) but at 15 she seems to have stopped growing. I suspect she has celiac but her bloodwork was negative and she refuses to try the diet! (Teenagers! <_< )

K8ling Enthusiast

6'1" and I am the short one in my family. My dad has celiac as well and he is 6'4".

srall Contributor

I'm 5'7" but I think my height is pretty normal considering the rest of my family. I am the shortest one though. Not that 5'7" is short by any means. My 7 year old however is TINY and always has been. (She's been gluten/dairy/corn free since October) Until I realized what was going on I was completely flummoxed because of my height and my husband is 6'2". Now it kind of makes sense and it might just be my imagination, but I feel like she might be starting to catch up a little.

ravenwoodglass Mentor

I'm 5'2" doctors told my mom when I was two that I would be 5'8". Some sort of calculation they do with thigh bones. I have very long legs but a shortened trunk. My son is 5', he became celiac in infancy and has shortened thigh and upper arm bones, my DD is 5'4" she was hit with celiac as an early teen, we were told she would be tall but stopped growing at around 12 or so but has normal proportions. My Mom was 4'11", size 2 shoe as an adult. She, like myself, became celiac in childhood when DH appeared.

I think how much impact celiac has on your height depends on when it was triggered. Those who are triggered later in life have a better chance of fulfilling their growth.

Fire Fairy Enthusiast

5'5. I have an aunt who I strongly suspect has celiac who has lost a lot of height, she can't really stand straight anymore. Sadly she will never change her diet.

ravenwoodglass Mentor

5'8" at the last check - anybody's shoe size shrink?? i used to wear a solid 9 sometimes 9 1/2. now i am 8 1/2, sometimes 8?? maybe i should double check my height.....

I lost a full shoe size also but in my case it was from getting rid of full body edema. I now wear the same shoe and clothing size I did in my teens.

Googles Community Regular

I'm 5'7" and the shortest in my immediate family. :( Wish I was taller.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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