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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    Our fur families all seem to have one thing in common. they are all so well loved. That Catio sounds wonderful. Thanks for the smiles in the middle of a tough work week everyone.
  2. ravenwoodglass
    I agree it is pretty certain with a number that high that she is celiac. Do keep her on gluten until you see the GI. Depending on her age, and the GI's preferences, the doctor may want to do an endo. It is hard when your child is sick to wait but thankfully next week will be here soon. I hope she heals quickly.
  3. ravenwoodglass
    I think it could especially if you have neurological impact. You might find a physical therapist to be helpful.
  4. ravenwoodglass
    I like Cream of Buckwheat. I use Pocono brand. Has a texture like cream of wheat. They also make one that is in a Kasha form if you like more texture.
  5. ravenwoodglass
    You don't have to have a lot of gluten for the antibodies to stay active. A couple slices of bread, or the equivalent should be enough. Some find it easier on their systems to eat their daily dose before bed so you may want to try that and see if it makes your day easier. If you are being woken up by D at night make sure the doctor knows that is happening...
  6. ravenwoodglass
    "The bun costs an extra $1.15 and comes individually packaged. Customers will have to assemble their own sandwich because Chick-fil-A kitchens are not gluten-free and this is the only way that chain can prevent cross-contamination. " The bold is mine. With this paragraph I don't think I will be trying anything there. Are we supposed to bring our own...
  7. ravenwoodglass
    I think you need another GI. What did he say those positive, STRONG positive results were from if not celiac? If your GP is a good one you could ask if he will give you an official diagnosis if you go gluten free and those numbers go down. Your body is making antibodies in response to gluten. IBS, being overweight or being female doesn't cause those antibodies...
  8. ravenwoodglass
    Try not to be too concerned. I am also in that group as are my adult children. Last nights BBT with Sheldon trying to decide on which game system to buy really hits home in a way that is much more humorous than was felt when dealing with it in reality. It is the differnces in people that make the world more interesting. Embrace yours without apology.
  9. ravenwoodglass
    Barry I am sorry some folks are giving you such a hard time. You are correct that this is not a group for only those who are celiac. It is a board for people to learn the ins and outs of being gluten free with celiac or gluten intolerance and their freinds and family That said I came back to this post because after giving it some thought I remembered I do...
  10. ravenwoodglass
    You may see some improvement in that time but the real test will be adding gluten back in if you do. I hope you do get some relief quickly and that your biopsy shows clear results. Do keep in mind that damage can be patchy and get missed so if the diet helps don't give up on it if the biopsy says no damage.
  11. ravenwoodglass
    OP Please don't let this scare you. If you feel the need do mention his thoughts to your doctor so the doctor can set your mind at ease.
  12. ravenwoodglass
    Your statement about painless D really resounded with me. For many years my D was painless and with no warning which caused a great deal of anxiety. Eventually the D did end up being preceded by cramps that increased in severity and would wake me almost every night. My GI stated that the waking with D in the middle of the night was a hallmark sign of celiac...
  13. ravenwoodglass
    As a celiac my reactions to gluten are pretty consistant. The exception to that is when a gluten ingredient is combined with something else I am intolerant to for example soy. Perhaps you have more than one intolerance?
  14. ravenwoodglass
    Unless you have open sores on your scalp or the shampoo or dye gets in your eyes or nose you wouldn't be glutened by them. Did you ask your stylist if you could read the ingredients of the products she used? They may have been safe anyway. Sorry you are having such a hard time. Your plan to go back to eating just whole foods is a good one. If you eat gluten...
  15. ravenwoodglass
    Great that you found a good doctor at last. Hopefully you will heal quickly and do read the thread that C-lady advised. Ask any questions you needed. The gluten-free lifestyle can take some getting used to but the board is here to help you through the rough patches.
  16. ravenwoodglass
    You also could be having issues with casein which is the protein in dairy. After you have been doing well for a bit you could try adding in just hard cheeses daily for a week. If issues come back then likely casien is the issue as well as. or instead of the milk sugar, lactose. Hope you continue to improve it can be a puzzle at times when we have other...
  17. ravenwoodglass
    With a gliadin result that high yes you are celiac. If your doctor is doing a biopsy keep eating gluten until that is done. If your doctor feels a biopsy isn't needed or you have chosen not to have one you can start the diet. Welcome to the club you never wanted to join and I hope you are feeling much better soon.
  18. ravenwoodglass
    Have they done an MRI on him yet? If so did they find white spots on it? These are suggestive of the lesions with MS but a spinal tap will not have the bands that are found with MS. I wonder if that is what they want to rule out. As far as the genetic testing goes there are research studies that have been done that show DQ 9 to also be a Celiac related gene...
  19. ravenwoodglass
    Wegmans is great at gluten free. They have celiacs in the family and really know their stuff. Karen is correct that just plain meat will not be labeled gluten free. They also check carefully that their store brand items are safe. I once found a small container of nuts that had the gluten-free label but the large one of the same nut didn't. I called and asked...
  20. ravenwoodglass
    With your high blood results and villi blunting that could be seen even before the biopsies have been read you now know you are part of the club that no one wants to join. At least now you can go back to being gluten free and start healing. I hope you heal quickly and it must be a relief to now know what is going on.
  21. ravenwoodglass
    Have you been back to see your doctor since the swelling spread? If not please call the office in the morning. Are you still on gluten waiting for the biopsy? You need to be otherwise the biopsy runs a higher risk of being a false negative. You might want to ask if you can go onto the cancellation list for the endo if you would be able to get there on short...
  22. ravenwoodglass
    If your pharmacist said the Claritin is safe it likely is. He did let you know that the script wasn't safe so it sounds like he is knowledgeable. As far as the nasal mist the company gave you a typical CYA statement. It should be safe from a gluten standpoint. Hope you feel better soon.
  23. ravenwoodglass
    Now you know and can continue on the path to healing. I did acupuncture before I was finally diagnosed. It helped a bit even still eating gluten. I have liverdo reticularis that was very pronounced prediagnosis. I was basically purple. It amazed me that when I would get done with an acupuncture session my skin would be a normal color. Natually when I went...
  24. ravenwoodglass
    I had the same issue with stomach pain after diagnosis and it turned out to be soy protein that was causing it. I never ate much soy before diagnosis and gluten was keeping me constantly ill so I never realized it was an issue till I stopped going with foods with soy on the suggestion of good freind. Not saying that is the problem with you but thought I...
  25. ravenwoodglass
    One thing I forgot to add was to try using a sublingual B12 in addition to any other supplements. Sublingual is important until your healed as your body may not be able to properly utilize a swallowed form. The sublingual will dissolve under your tongue and be rapidly absorbed. Do be sure to tell your doctor about any supplements you are taking since if they...
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