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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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Can you tell us if you have been diagnosed with celiac disease, or are you self diagnosed and gluten sensitive? Are you on a gluten-free diet? Here are some topics in our forum that might be helpful: https://www.celiac.com/search/?q=yeast infections&quick=1&type=forums_topic
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Getting tested and healing?
Scott Adams replied to PumpkinChic's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Given that the gluten-free diet is perfectly safe, provided you're getting enough fiber an nutrition, it's your call if you need to go through the gluten challenge and be formally diagnosed. Here are some questions to ask yourself: How important is it to you to have a piece of paper from your doctor telling you that you have this? Would having... -
After My Celiac Disease Diagnosis, I Turned to Reishi Mushrooms for Relief
Scott Adams commented on Kansas Bowling's article in Autumn 2020 Issue
Why do you say that the author wasn't diagnosed with celiac disease? The author does say that they found out that they had celiac disease, then went gluten-free, and the diet didn't make her fully recover. Or that the "mushrooms can also cause harm." They have been used commonly in Asia for centuries, and can be purchased on Amazon or in multiple stores...- 10 comments
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“Non-celiac disease”
Scott Adams replied to Luna21's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The biopsy should never have been done if you were not eating gluten daily for the weeks leading up to it. -
“Non-celiac disease”
Scott Adams replied to Luna21's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
At this point you should just try out the gluten-free diet for a few months to see if it helps. Are you gluten-free now? If your blood tests were this high, many doctors would have diagnosed you with CD based on this alone, no biopsy necessary. Having a negative biopsy is just confusing at this point, but your blood test results are not confusing, and you... -
False Positive Blood Tests
Scott Adams replied to Aitcher's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@cyclinglady, you are leaving out the part about her sister possibly also having undiagnosed CD, which would dramatically increase her risk in this case (if her sister has it the odds increase to ~44%). Let us know how things turn out! -
False Positive Blood Tests
Scott Adams replied to Aitcher's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Unfortunately this happens pretty often, however, in Europe and the UK you would likely have been diagnosed with celiac disease and not even given a biopsy, as their current diagnostic standards don't include a biopsy when the blood tests offer definitive results--the tTG test accurately diagnoses celiac disease 95% of the time. There are some doctors... -
All these mentioned, when not contaminated, are gluten-free. Some, like oats, are often contaminated because they are grown, transported, and processed in the same fields/facilities as wheat, thus it's always a good idea to find brands that say "gluten-free" if possible.
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You could do another blood test, there are mail order ones, for example https://www.imaware.health/ I do wonder what exact criteria were used to create the current cut off lines. Why would one person who scores 1 single point below a cut off not have celiac disease, while another person would? Both people are having an inappropriate response to gluten...
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Top Brands of Gluten-Free Peanut Butter
Scott Adams posted an article in Gluten-Free Foods & Beverages
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One Blood Test Can Now Diagnose Celiac Disease without Biopsy
Scott Adams commented on Scott Adams's article in Diagnosis, Testing & Treatment
Celiac.com is a USA-based site, but the trend to rely on blood tests to diagnose celiac disease is growing in popularity in all countries. Multiple studies done over the last 15 years have shown this to be an accurate way to make a diagnosis in most cases, provided the blood tests are done using the recommended protocol: Only a minority of blood tests...- 35 comments
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Gluten free
Scott Adams replied to Clara Douglas's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Please have a look at our site's Safe & Forbidden lists, which is a good place to start: You may find this helpful as well: -
Early High Dose Gluten Introduction Can Help Prevent Celiac Disease
Scott Adams commented on Scott Adams's article in Kids and Celiac Disease
The study here looked at over 1,000 infants, rather than just one. Science requires much larger samples to find evidence of an effect that can be measured and applied to a larger population.- 5 comments
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Gliadin
Scott Adams replied to Cassandra Harding's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you mean the GliadinX advertised here, who are current sponsors of this site, there are multiple studies that have shown it to be effective at breaking down gluten in the stomach, so it could be helpful for trace amounts of cross-contamination. Of course it's important to avoid all gluten, but if you travel, eat out, or buy certain products that are naturally... -
Thoughts on Symptoms
Scott Adams replied to Evabrooke-26's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If they did run the blood test and it were negative they likely would not be looking for celiac disease with a biopsy, but definitely call and see if they ran the test. It actually would be unusual for them to schedule the biopsy for CD without having first run the blood screening. If they haven't run it yet, I would request it. -
Thoughts on Symptoms
Scott Adams replied to Evabrooke-26's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is the right place, and welcome to the forum! Did you by chance get a celiac disease blood screening done? Normally this would take place before a biopsy. If so feel free to share the results here, as that would give us a good idea whether or not you might have celiac disease. Certainly your symptoms sound consistent with it. It turns out...