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Scott Adams

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Latest Celiac Disease News & Research:

Everything posted by Scott Adams

  1. Scott Adams
    Unfortunately Google frowns on such concise "articles," and you likely would never have found this info had we done that.
  2. Scott Adams
    This would definitely make it very difficult to determine how and where you might get contamination. If you eat outside your home consider GliadinX AN-PEP enzymes (a sponsor here), as they have been shown in studies to break down small amounts of gluten in the stomach. I've been using them for a couple of years now with positive results.
  3. Scott Adams
    Which reminds me that I'm probably overdue for the same...
  4. Scott Adams
    This varies a lot from person to person as well, but I experienced similar gut feelings when I ate corn, chicken eggs, tomatoes and dairy (casein) before and after my diagnosis. This was likely due to the leaky gut situation caused by my flattened villi, and I also had internal bleeding due to the celiac lesions found during my biopsy. I had to also eliminate...
  5. Scott Adams
    Have a look at this recent study: Note that the rate was higher than 44% among female relatives, so it's actually higher.
  6. Scott Adams
    @raspberryfirecracker welcome to the forum, and thank you for sharing. I'm aware of mast cell activation, and we've covered it in many of our site's articles: https://www.celiac.com/search/?q=mast cell&quick=1&type=cms_records2 and I find your approach of dealing with it using antihistamines and anti-inflammatories interesting, and in our...
  7. Scott Adams
    I want to say "welcome back," but you now hold the world record on this forum for the longest member stuck in the denial phase 🙄. Did you know that because your mother has celiac disease you have a greater than 44% chance of also having it? That is what the latest research shows. Regarding your home test kit, technically speaking you're supposed to...
  8. Scott Adams
    Supplements should help, but of course the main thing is to cut out all gluten, which it sounds like you've done.
  9. Scott Adams
    It's not 100% clear from your first post whether you've been maintaining a gluten-free diet for the 2.5 years, as you mentioned eating a hamburger and fries. Did the hamburger have a gluten-free bun? Did you order it at a restaurant? If you eat out, that is a likely source of contamination. You are on the right track with re-checking your diet to make...
  10. Scott Adams
    This can vary greatly from individual to individual. Super sensitive people claim they get severe symptoms only minutes after ingesting gluten, while other may have no symptoms at all. Some people say it takes 24-48 hours, which can make it very hard to identify the source of contamination. How long and severe the symptoms are can also vary greatly. Generally...
  11. Scott Adams
    Yes, it is a possibility that your celiac disease, similarly to Type I diabetes, kicked in at that time. If you keep eating gluten I suspect your symptoms would continue to get worse and worse, and you may end up with full blown celiac disease with flattened villi and malabsorption of nutrients (trust me that you don't want to go there!).
  12. Scott Adams
    Here are some articles on villi damage from other foods besides gluten. They are quite old, but I will try to find newer ones:
  13. Scott Adams
    Casein intolerance...but you'd have to look at some of the summaries there.
  14. Scott Adams
    Good question. We have some really old summaries here, and I'll bet there is a lot more that have been done on this: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/casein-cows-milk-intolerance-and-celiac-disease/
  15. Scott Adams
    Many people who are gluten sensitive don't have villi damage. It would not hurt to contact the GI and aske them how many samples they took, and if they used the Marsh scale to grade them. At least 4 samples are recommended, and then they should be graded using the the Marsh scale. Given your high DGP results though, some doctors would diagnose you with...
  16. Scott Adams
    Personally I don't think it's a waiter's job to "get suspicious" about orders. The restaurant should either be able to do gluten-free meals or not, and should simply provide a gluten-free order, or not--in which case they should explain exactly why they can't provide the gluten-free order. It should make zero difference if someone orders a gluten-free...
  17. Scott Adams
    This article may be helpful, but be sure not to go gluten-free until you find out whether or not your doctor wants you to do a biopsy to confirm the diagnosis:
  18. Scott Adams
    You DGP results, which are the best tests available, are high positive, so it looks like you likely have celiac disease. Many doctors are diagnosing celiac disease via blood tests alone, however, your doctor may also want you to do a endoscope/biopsy to confirm it. Normally you need to keep eating gluten until that part is finished, so be sure to consult...
  19. Scott Adams
    I think they turn around results quickly, and you should know within a week.
  20. Scott Adams
    There is research which shows that cow's milk (casein) can also cause an increase in the ttg levels to those who are sensitive to it. This happened to the patient in a story we published today: and here is the research on this: https://www.sciencedirect.com/science/article/pii/S2341287918301601
  21. Scott Adams
    It's interesting that medicinal clay is attributed to having anti-inflammatory effects. I wonder it that's true?
  22. Scott Adams
    @knitty kitty this is very interesting, and we'll do a summary of this research: The patient in this new article we published today also experienced high ttg until they also eliminated dairy:
  23. Scott Adams
    It’s strange that your villi recovered but you still have high antibody levels. You didn’t mention your symptoms...are you still having symptoms consistent with gluten exposure? I was thinking that perhaps you could go grain-free for a time, then retest, but this is not easy to do.
  24. Scott Adams
    I am a side sleeper but you can sleep on your sides or back. It has a bamboo frame inside and is slightly flexible. It gets more flexible with age, and can last about 5-10 years. I got mine at a day market in Taiwan where the are referred to as traditional pillows, almost everybody used to use them, but many now use Western pillows.
  25. Scott Adams
    Please share your testing experience with us.
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