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Scott Adams

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Everything posted by Scott Adams

  1. Scott Adams
    In medical terminology "suggestive of Celiac" means probably celiac disease. Can you share your blood test results? This would give us far more information to try to help you.
  2. Scott Adams
    If you are in England they have stopped doing biopsies to diagnose celiac disease except in certain cases where the blood tests are not definitive: Be sure to talk to your doctor soon about your blood test results, and whether or not you need a biopsy, or need to go gluten-free.
  3. Scott Adams
    We’ve published multiple studies on why biopsies need only be the exception and not the rule when diagnosing celiac disease, and blood testing will become the new gold standard, not biopsy. In Europe they are already switching to no-biopsy diagnoses in children and adolescents, and this change was pre-covid: There is no indication that the UK will e...
  4. Scott Adams
    So keep in mind that if your doctor wants to do any follow up tests you would need to continue eating gluten until they are finished. You mentioned that you are now gluten-free, so you may wish to talk to your doctor before taking that step. Your symptoms do sound consistent with celiac disease, especial given your positive blood tests, but could also...
  5. Scott Adams
    A biopsy would still be needed for 5% of people per the article, and the standard tTG test is 95% accurate in diagnosing celiac disease--thus 95% of people can avoid biopsy. That is a great thing! Who wants to undergo a risky procedure that could give them an infection or subject them to a risk from the anesthesia?
  6. Scott Adams
    Natural Flavoring is gluten-free, but can contain MSG:
  7. Scott Adams
    Many people with celiac disease don't have symptoms, yet if they keep eating gluten have the same risks as those who do have symptoms, so be sure not to let this guide your decisions regarding your test results. You should keep eating gluten and get the biopsy that your doctor recommended. If you do have celiac disease you should go gluten-free after all...
  8. Scott Adams
    Very interesting info @Posterboy. Perhaps the there are other prescription drugs that can trigger GI issues, especially in those with autoimmune diseases.
  9. Scott Adams
    If any of your first degree relatives have celiac disease, you might want to look at this Mayo Clinic study where "The team screened 360 out of a total of 477 first-degree relatives, finding a total of 160 first-degree relatives who were diagnosed with celiac disease, 62% of whom were female. All diagnosed first-degree relatives had positive anti-TTG titers...
  10. Scott Adams
    Sure, but you're still excluding her family history that she already mentioned. Of course she should discuss this with her doctor, including her family history, and the fact that she's now developed symptoms.
  11. Scott Adams
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  12. Scott Adams
    More information about "Is it Common for People with Celiac Disease to Have a Rash?"
    Celiac.com 10/06/2020 - One question we get often is about celiac disease and rashes. Specifically, is it common for people with celiac disease to have a rash? Skin rash alone is not a specific symptom of celiac disease. However...
  13. Scott Adams
    Some doctors would diagnose you with celiac disease based on these results alone, as biopsy confirmation seems to be falling out of favor, especially for children. In the UK, for example, they would diagnose you based on your current results, which are 95% accurate: Keep eating gluten and discuss whether or not you need a biopsy, but given your family...
  14. Scott Adams
    This book review indicates that "16% of those with autoimmune hepatitis are gluten sensitive" You might find these articles of interest:
  15. Scott Adams
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  16. Scott Adams
    More information about "Early High Dose Gluten Introduction Can Help Prevent Celiac Disease"
    Celiac.com 10/05/2020 - There is currently no medical strategy for preventing celiac disease before it starts. Could the amount and time of gluten introduction in infant diets influence celiac disease rates? A new study indicates that...
  17. Scott Adams
    On the contrary, many celiacs spend decades feeling unhealthy even though they are on 100% gluten-free diets, and many are even on grain-free and other very restrictive diets. Some feel like they are going crazy and cannot even venture outside or do any travel without bringing their own food. This "alarming" headline is for those celiacs who are not recovering...
  18. Scott Adams
    It is interesting that you have had severe neck and back issues. One thing that I need to update in my own story is that I had severe neck pain for over 5 years after my diagnosis. I always blamed it on my desk job, and working to much on a computer. Since my work patterns haven't changed much since the time of my diagnosis, but the neck issues finally went...
  19. Scott Adams
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  20. Scott Adams
    More information about "Is McDonald's Frappe Gluten-Free?"
    McDonald's is not known for its gluten-free offerings. If you are are at a McDonald's, the number of safe food offerings are slim. So, what about the coffee drinks, like the McDonald's Frappe? Is the McDonald's Frappe gluten-free and safe...
  21. Scott Adams
    This company has one, but I'm not sure if they ship where you are: https://www.imaware.health/
  22. Scott Adams
    This list is old, but there are some resources listed in Oklahoma. Please contact them and let me know if any are no longer valid: You also might want to contact Celiac.org, as they are a national support group. You could start your own group as well, and you could ask them how to do this.
  23. Scott Adams
    If your doctor won't run the CD tests for you there are inexpensive mail order test kits widely available as well. Certainly your symptoms sound consistent with gluten sensitivity or CD, but to be sure you'd need to be tested.
  24. Scott Adams
    Lisinopril is very widely used as a first step blood pressure control drug. I've not heard of any correlation with it as a cause of celiac disease or gluten sensitivity. Given that so many people use the drug, I would be surprised if there is such a correlation, but it's not impossible.
  25. Scott Adams
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