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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Emergency Room
Scott Adams replied to Katerific's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am so sorry you went through such a terrifying and severe reaction; that sounds absolutely awful and it's completely understandable that you ended up in the ER. Unfortunately, pizzerias are indeed one of the highest-risk places for cross-contact, as gluten-containing flour can stay airborne for hours and contaminate surfaces, utensils, and even the gluten... -
You can search this site for prescriptions medications like "hydrochlorothiazide," but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients...
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Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives...
- 11 replies
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- auto-immune
- dismissals
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Eating gluten before blood test
Scott Adams replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
Your experience is incredibly common and frustrating for many in the celiac and gluten-sensitive community, and it's especially challenging with the added layer of healthcare disparities for people of African descent. A negative endoscopy and blood panel, while the gold standard, are not infallible and can miss cases, particularly if you weren't consuming...
- 11 replies
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- auto-immune
- dismissals
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While the initial flu-like symptoms are a known side effect of Imiquimod, it is plausible that triggering your immune system in that way could have caused a long-term shift in your autoimmune response, essentially lowering your threshold for a reaction. Your theory is very valid. Given your history, the most logical first step is to eliminate oats entirely...
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- carnitas
- gluten-free
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Are Potato Chips Gluten Free? (+Video)
Scott Adams posted an article in Gluten-Free Foods & Beverages
- 2 comments
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- celiac disease
- chips
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Welcome @Natalia Revelo, your experience is profoundly difficult and, sadly, not entirely unique within the celiac community. It's the frustrating reality of "silent" or ongoing damage that isn't captured by the MARSH score alone, which only measures active villous atrophy. Your normal biopsy suggests your diet is preventing the classic autoimmune attack...
- 2 replies
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- gut healing
- malabsorbtion
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I'm not sure if you found what other here have posted on oral thrush, but this might be helpful: https://www.celiac.com/search/?q="Oral thrush"&quick=1&updated_after=any&sortby=relevancy
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- celiac disease
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I understand your immense frustration after 17 years of excellent management; it's incredibly disorienting to have your numbers spike without a clear cause or physical symptoms. Given your thorough investigation, the Crunchmaster crackers are a very plausible culprit, despite their certification. Certification ensures gluten is below 20ppm, but if you are...
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Purposefully Glutening Myself?
Scott Adams replied to annamarie6655's topic in Coping with Celiac Disease
Dr. Jean Duane published a book on Celiac.com, and although all chapters are worth reading, there are some that cover this perfectly. Here is the link to the 1st chapter: This chapter and others cover this topic well: -
As I recall Canada created some special rules just for gluten-free oats--not other gluten-free products--right around the time that General Mills launched their gluten-free Cheerios. The move seemed more politically motivated given that other products could be 20 ppm or below, but not oats. Here is an article we wrote at the time:
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Bread choice for a newbie
Scott Adams replied to humerme's topic in Gluten-Free Foods, Products, Shopping & Medications
I second that motion! Franz Gluten Free may not be in all Costco's--perhaps in the Western USA only? It's my go to bread for our family because it is whole grain, tastes great, has reasonable sized slices, and is only ~$5 per loaf (sold in twin packs where each loaf is vacuum packed). Most other breads are a lot more expensive. -
Gluten-Free Nachos with Fresh Pico de Gallo and Avocado Crema
Scott Adams posted an article in Mexican & Spanish
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- dairy-free
- dairy-free recipes
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Definitely consult with your doctor before considering such high doses--5,000 IU is likely fine, but 50,000 IU could cause serious issues over time.
- 33 replies
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- high gluten
- hormone-related
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