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RMJ

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Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    I am so sorry to hear about your wife. I am glad you thought to have your daughter tested. Here is some official European guidance on diagnosing children. http://www.espghan.org/fileadmin/user_upload/guidelines_pdf/Guidelines_2404/European_Society_for_Pediatric_Gastroenterology_.28.pdf Your daughter basically meets the criteria for diagnosis...
  2. RMJ
    Celiac disease, by damaging the intestines, can certainly keep you from absorbing nutrients and calories. It can take time to heal and absorb properly. Did you have a biopsy that showed the amount of intestinal damage, or just a blood test? Aside from gluten, do you have annoying symptoms when eating certain foods? Some people are intolerant...
  3. RMJ
    Why is someone with celiac having breakfast sandwiches at McDonalds (Part II April 1).
  4. RMJ
    After several years gluten and oat free and antibodies in the normal ranges I asked my gastroenterologist if I could eat oats. She had me eat them for 6 months and then retested my antibody levels. No effect! I can eat oats! I use Gluten Free Harvest oats.
  5. RMJ
    Not all people with celiac disease have digestive issues. I don’t, but celiac was confirmed by biopsy. Why was he tested? Why did someone suspect celiac?
  6. RMJ
    Were you eating much gluten prior to the test? If you weren’t that could make the values go down.
  7. RMJ
    I’m not sure why you’re limiting your calories on the meat and fruit? You can increase those. When I need to gain weight, fat is my friend! The page you linked lists olive oil, that can go on vegetables.
  8. RMJ
    I can answer one question. Each manufacturer uses their own units, thus their own ranges. You unfortunately can’t compare results between labs.
  9. RMJ
    This is NOT the case in the US. Some certified gluten free products in the US are made in shared facilities with shared equipment (for example, Nature’s Path cereals). Certified products must use strict cleaning procedures and an outside company evaluates the procedures and does some testing of the products.
  10. RMJ
    Hi Ennis, how are you doing?
  11. RMJ
    I’m so sorry Ennis. Hope surgery and recovery goes smoothly.
  12. RMJ
    I couldn’t get bananas or carrots.
  13. RMJ
    Spicely has certified gluten free spices. https://www.spicely.com/pages/certification
  14. RMJ
    I don’t know about better in all cases, but it will certainly use ketones when glucose isn’t available. This article about ketones and the brain is interesting. https://blogs.scientificamerican.com/mind-guest-blog/the-fat-fueled-brain-unnatural-or-advantageous/
  15. RMJ
    In an emergency I wouldn’t feel bad about getting a lot of calories from sugar for a while. Sugar (specifically glucose, which is half of table sugar) is what the brain needs for fuel.
  16. RMJ
    My husband and I share a sink for washing dishes, although I use my own dish brush and dish towel. No problems here.
  17. RMJ
    I didn’t get the official celiac diagnosis until I had the biopsy. Before that my medical record just said that I had a positive antibody panel for celiac.
  18. RMJ
    There are four main blood tests for Celiac antibodies, TTG IgA, TTG IgG, DGP IgA and DGP IgG. Did you have all of them? Were they all positive?
  19. RMJ
    I was diagnosed almost 8 years ago at age 57 and am doing fine so far!
  20. RMJ
    A lot of doctors, including some of yours, don’t understand celiac disease. It IS an autoimmune disease. Doctor’s lack of knowledge can make the diagnosis process very long and frustrating. I mentioned to one doctor that I had celiac disease (I was asking how a drug he proposed would affect me since it accumulated in the intestines). His response was...
  21. RMJ
    Perhaps all the results aren’t in yet? That is a result for total IgA. It doesn’t say anything about whether or not you have celiac disease. It is used to see if the actual celiac tests are valid.
  22. RMJ
    I think I’d ask for the full panel of tests prior to having a biopsy, and stay on gluten until the tests are done. I’m guessing the nurse saw the slightly high total IgA and got that mixed up with a celiac test. The total IgA test is just a control to be sure that the TTG IgA test is valid.
  23. RMJ
    I think your TTG results are negative? It looks like yours is 1.7, with a normal range 0-10. Your total IgA is just barely high - no big deal. The complete celiac panel was not run, there are also DGP antibody tests available. Some people are positive on those but not TTG.
  24. RMJ
    Here is a link to the original manufacturer, they have contact information at the bottom of the page. However, it also comes in a generic version so it may not be made by this company. Do you know the manufacturer? It is usually on the container, although may be in code. You should be able to find out from the pharmacy where you got it. https://www...
  25. RMJ
    Which blood tests did you have? Not everyone is positive on all of them.
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