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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, Kristen! When you took the blood test three years ago, were you by chance already trying to eat gluten free? IMO, it would be smart to get another blood test done but you must be eating regular amounts of gluten (equivalent of two slices of wheat bread daily) for 6-8 weeks leading up to the test. Another distinct possibility...
  2. trents
    Adams did not say she ran the company. He said she was the entrepreneur and the owner of it. As with many companies, the one who started it and still owns it, turns the "running" over to others at some point in time.
  3. trents
    What reason did she give you for not taking oral B12? In large enough doses it usually works. There's research on that.
  4. trents
    I don't think that is the mechanism involved in generating celiac disease. It's not the slow transit that is the issue. It is the immune system misinterpreting gluten as an invader. See my previous post above. So, the real problem is that something in the immune system is haywire that causes it to mistakenly identify gluten as harmful. By the way, the...
  5. trents
    Another thing to grasp and bend your head around is that celiac disease is not a food allergy. It is an autoimmune response triggered by a food ingredient (gluten). Autoimmune responses are where the body attacks its own tissues. In this case, when you eat something with gluten (a protein found in wheat, barley and rye), when it leaves the stomach and travels...
  6. trents
    Welcome to the forum, grumbleguts! First, there is a statistical correlation between celiac disease and type 1 diabetes, but not really with type 2. https://celiac.org/about-celiac-disease/related-conditions/diabetes-and-celiac-disease/ Second, celiac disease damages the lining of the small bowel but not the stomach. There are specific blood tests...
  7. trents
    Yes, but in the final analysis the doctor can't force you to get your kid scoped. She's your kid and the doctor works for you. Whether or not your daughter has an official dx has no bearing on whether or not she actually has celiac disease. She either has it or she doesn't. I am a retired hospital chaplain and I know that in the hospital environment...
  8. trents
    StephD, why do you feel such a strong need to get an official diagnosis?
  9. trents
    huffalynn, I know it can be overwhelming when you begin to unpack this gluten free thing and find out there is a lot more to it than you had first expected. It would be so nice if all we had to do was avoid sliced bread and pasta meals. But we soon find out what a challenge it is to truly live a gluten-free lifestyle and have to also be concerned with other...
  10. trents
    That's the problem with eating in restaurants. What you order may indeed be gluten free but they make cook it in the same pot or on the same grill as gluten things or they may slice it or flip it with the same utensils they have been using for gluten things. Some eateries are more aware of cc issues than others. I've found that at Subways if you request a...
  11. trents
    Did the Cheesecake Factory staff cut your gluten-free item with the same knife they were cutting regular cheesecake? CC (cross contamination)? Dairy intolerance? Many celiacs also have dairy intolerance.
  12. trents
    Good to hear, TT0202! Keep us posted about the GI doc appointment.
  13. trents
    Start taking a magnesium supplement and experiment with the dosage until you reach the point where you're having too many BM's and then back off a bit.
  14. trents
    Welcome to the forum, Ucat! Wow! I think you have the record for the longest post on our forum. It's okay, though. Lot's of good information and I'd rather have a lot than not enough when trying to help people. I hope your short 3 week pretest gluten challenge is good enough. Mayo Clinic recommends 6-8 weeks of 2 slices of wheat bread or the equivalent...
  15. trents
    "cc" stands for cross contamination and it can apply to any food product that comes in contact with a gluten containing grain (wheat, barely, rye) in growing, harvesting, storage, production or handling during food preparation.
  16. trents
    Welcome to the forum, Rose2010! Yes, regular amounts of gluten for 6-8 weeks pretest. The term you are looking for early in your post was NCGS (Non Celiac Gluten Sensitivity). 10x more common than celiac disease. They share many of the same symptoms and the antidote is the same. There is no test for NCGS so that dx is arrived at by first ruling...
  17. trents
    Hi, Trisha. Just wanted to make you aware you are responding to a post that was made in 2013. I doubt if the OP is actively following this thread.
  18. trents
    Welcome to the forum, Mira333! I would point out to you that you replied to a post that is almost 2 hears old. So you may not get a response. Unfortunately, it is sometimes the case that gluten-related nerve damage is not completely reversible. But let me ask, are you on vitamin and mineral supplementation? Neurological issues can be tied to vitamin...
  19. trents
    Welcome to the forum, Barbara! Yes, the development of celiac disease does require some kind of triggering stress event or factor. Most commonly, it is a viral infection but other kinds of stress events can be the trigger, even psychological/emotional trauma. So it is possible that your alcohol abuse could have triggered the onset of celiac disease due...
  20. trents
    You could have NCGS (Non Celiac Gluten Sensitivity) which is 10x more common than celiac disease with many of the same symptoms.
  21. trents
    You could have celiac disease or NCGS (Non Celiac Gluten Sensitity), the latter being 10x more common than the former. They share many of the same symptoms and the antidote is the same, life-long abstinence from gluten. There is no test at the present time for NCGS. It is diagnosed by first ruling out celiac disease. There are also home test kits available...
  22. trents
    It often takes around two years for complete healing of the villi after a truly gluten-free lifestyle is achieved. But there is usually substantial improvement in symptoms and in health issues well before then.
  23. trents
    It is not unusual for GI symptoms to be absent in the celiac population. We call them "silent" celiacs. That can eventually change as more damage is done to the small bowel lining. What led to her diagnosis if she seems to be asymptomatic? Was it the orange in her BM's? Has she had a CBC and a CMP to check for things like anemia or elevated liver enzymes...
  24. trents
    Again let me emphasize that you are not obligated to go forward with the biopsy. There is no doubt in my mind that she has celiac disease. On he other hand, it is only a month away and you say she is in no distress. Concerning the "orange oil" in her stool, if blood was coming from her duodenum (the part celiac disease affects) then I wonder if it would...
  25. trents
    StephD, welcome to the forum! Can you post what the reference ranges are for negative, positive, etc? Different labs use different scales so a number like which you gave needs a context. In the UK if the tTG-IGA is 10x the cutoff for negative, most doctors do not require an further testing, such as a biopsy. There is not much question that your...
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