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trents

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Everything posted by trents

  1. trents
    "As for genetic testing: my understanding is if don't have the gene, then I can't have celiacs? And if I do have the gene there is a chance I could have celiacs?" Correct. But I'm not sure not having the genes rules out NCGS. And research is suggesting there may be more genes involved in celiac disease than were originally identified. I think that whole...
  2. trents
    Could you have NCGS (non celiac gluten sensitivity) instead?
  3. trents
    You are blessed in that your physician was knowledgeable enough and thorough enough to run a full celiac panel rather just the tTG-IGA. Some people have atypical immune system responses to gluten but actually do have celiac disease. Thus, the value of running more tests than just the tTG-IGA. And the genetic and stool testing is certainly appropriate in this...
  4. trents
    I underlined part of your post that is confusing to me. Who are you saying tested this chocolate product for gluten and who considers it to be gluten free? If it's not labeled gluten free then I doubt some company has gone to the expense of testing it. If they had tested it and found it to be gluten free, wouldn't they advertise it as such? Not infrequently...
  5. trents
    I think you meant to say, "As I understand, the don't have gluten ingredients," but you left out "don't". Depending on individual sensitivity, they may or may not be safe. Often those disclaimers are just the company trying to cover their backsides and save the expense of either testing for gluten content or producing the product in question on dedicated...
  6. trents
    The wheat starch has been treated to remove most of the gluten protein component. As long as it meets the FDA standard of <20ppm of gluten it qualifies to be labeled "gluten free". However, some people with celiac disease/gluten intolerance are more sensitive than most and will have a reaction to products that meet the 20ppm standard but still contain...
  7. trents
    I don't think you can draw a conclusion from this one reference to an FDA protocol that Scott puts "full trust in the CDC, FDA, ECT". It is hardly a carte blanche endorsement of a government agency. And he did not reference the CDC at all. And what government agency does ECT stand for? Did you mean to type ETC? And what is it you think Scott was making...
  8. trents
    "The average PRAL value is negative in the celiac group, but positive in the general population. The results showed a significant difference in PRAL scores between celiac patients and the general population. Average NEAP and DAL scores were sharply lower in the celiac group compared with healthy subjects." "There were no meaningful differences in PRAL...
  9. trents
    I think the hydrolysis from the water added to the poacher is critical, not just heat and pressure. Besides, using a pressure cooker just to cook eggs would be a lot of trouble. My poaching method uses the microwave. Very fast and simple.
  10. trents
    Most people who have the genetic potential for celiac disease never develop the active form of it. It also takes a triggering stress event such as a viral infection.
  11. trents
    Were you ever biopsied specifically looking for DH?
  12. trents
    Perhaps you have trouble breaking down lactic acid.
  13. trents
    Book, chapter and verse please. Your quote comes from Hippocrates, The Greek physician who is considered to be the father of medicine.
  14. trents
    More than likely, your doctor ordered the tTG-IGA antibody test if he/she ordered only one. It is considered to be the one test that combines good sensitivity with good specificity. But sometimes it will miss people who actually do have celiac disease so there is value of ordering other tests in that spectrum. From what little information there is to...
  15. trents
    You're certainly welcome! Have a great day.
  16. trents
    We can't help you with that result without more information. Do you have online access to your medical records? We would need to know the name of the specific test as well as the reference range for negative vs. positive used by the lab that did the analysis. And there is more than one blood test that can be run for celiac disease. The most common one is...
  17. trents
    Rast, welcome to the forum! Where do you itch? Is it all over? Do you break out in a blistered rash? Have you been eating gluten free for sometime or are you just now starting to explore gluten-related medical problems? Have you been diagnosed with celiac disease?
  18. trents
    The serological test will not be valid if you have been off gluten for a significant period of time, say for weeks. The article is not contradicting this reality. It is saying that if your serological test was indeed strongly positive there is no need to go through the pain and hassle of going back on gluten just to have a biopsy. Is that clearer? I think...
  19. trents
    Guest GFCookieMonster, See my reply with your quote below.
  20. trents
    It doesn't say that you don't have to have been eating gluten before the serological antibody test. It is saying that after you have the antibody test and your test is decisively positive then there is no need to do a gluten challenge after that in order to prevent a false negative for the biopsy since there is no need now for the biopsy.
  21. trents
    Did you check the ingredient label? They could have changed the formulation. Or, you have become more sensitive as you say, from the illness or just from the course of the disease. It could also be a reaction to some other nongluten ingredient like dairy which you have developed an intolerance to.
  22. trents
    A classic example of the general ignorance in the medical community about celiac disease and testing for it. We here this same story over an over on this forum.
  23. trents
    Sirenna, have you explicitly asked your doctor to run tests for celiac disease? Explain to the doctor that the first antibody blood testing was done while you were eating gluten free and that this may have caused the negative results. I would ask for a repeat after you have been on the equivalent of two slices of wheat bread daily for 6-8 weeks. That is the...
  24. trents
    I would not expect CC would happen with eggs. My poacher is a clam shell device similar to this and microwaveable, similar to this one: https://smile.amazon.com/Nordic-Ware-64702-Microwave-Poacher/dp/B00004W4UR/ref=sr_1_9?crid=1NWYY31PFY37S&keywords=egg+poacher&qid=1649561891&sprefix=egg+poacher%2Caps%2C155&sr=8-9 You poke...
  25. trents
    I tried duck eggs scrambled but they still gave me an unhappy tummy. But both chicken eggs and duck eggs don't bother me when I poach them.
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