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Celiac Disease & Gluten-Free Diet Blogs
I Think I Know Now....
Okay, so I think I now have an understanding of my results.... I am HLA DQ 1,1 (5,6), which means I am a double DQ1 with subtypes 5 & 6. According to Enterolabs (who I did not test through as I got genotype testing done for free here in Canada) I am positive for genes that predispose to gluten sensitivity and having the double copy DQ1 increases the sensitivity. Had I not had the option for genotype testing here, I probably would have gone the Enterolab route...I know that they can do
Awaiting Biopsy Results
So I finally had the biopsy about 2 days ago, so I am now gluten free YA! I am so excited about that, Finally. The biopsy went pretty good, it takes like 5 mins to do, and you go home like an hour later, so that was good. The doctor said it looked "Normal" but that they usually do look normal until a pathologist looks at them under a microscope, but I was free of ulcers anyway. He said the results can take up to 3 weeks, so I won't really know anything until then, but he said start the diet anyw
Answers Lead To More Questions
So now I have more questions (you would think I could just let it go at this point!!). I have been digging around for more info on what DQ5 and DQ6 actually mean. It looks like they are a subtype of DQ1, so am I actually DQ1 (subtype 5,6) which would make me a double DQ1? This is so confusing...if anyone knows the answer please post it here for me and if I find the answer I 'll post it so those looking in the future can maybe stumble across it. Thanks everyone!!!Start Feeling Great, Then I Get Stupid
I had a not so nice little scare tonight. I was really hungry so I grabbed a couple of crackers. WHOA! I started getting a knot in between my nose and throat, my right ear felt like it was going to explode from pressure, I had immediate flood of sinus drainage and rapid heart rate. Most the symptoms are lessening except the drainage and I still have a bit of a knot in between the nose and throat area. Ok, do I really have to go thru this again to realize wheat is as serious as peanuts to my
Answers At Last!
I got a call from the GI the other day indicating that I had not tested positive for either gene that would predispose me to Celiac disease...I requested a copy of the results be mailed to me and I am so glad that I did...and they arrived so quickly. Turns out I don't have the HLA DQB1 08 or 02 which are the 2 main celiac genes. However, what the GI didn't tell me is what I did have which is HLA DQB1 05 and 06, which I have discovered are two of the genes implicated in gluten intolerance...The Fun of Gluten-free Breastfeeding
For nine months I ate high protein, lots of fruit and veggies and saltine crackers. With my beautiful baby girl born and my second, and last, nauseousness filled pregnancy over, I was on cloud nine! My plan was to eat healthy so my baby girl would be as happy and healthy as my son was while I was breastfeeding. After about three weeks we went out for lunch and I ordered I large plate of hummus, grilled veggies, crackers and French bread. The next day my baby girl started throwing up. I cal
A Little History - My Celiac Disease Diagnosis
I've written in journals, on pieces of scratch paper, on torn-out magazine pages while sitting in airports, just about anywhere I can put pen to paper when the moment strikes and inspires me to move the ink across the page...I suppose I have much to say...not that anyone has to listen - writing and expression are like breathing for me - essentials. I was diagnosed with Celiac Disease on April 15, 2000 - the Millennium year proved to be quite significant for my life, minus any YK2 computer crash
Yummy or Yucky Gluten-Free Foods
I am a finicky eater. I admit it. When I was young, I used to say I didn't like a certain type of food because I just didn't like it. When asked if I had ever tasted it before, I would say no, but even so, I still didn't like the food. (Ok, I still occasionally use this excuse, but I am getting better!) Being diagnosed with Celiac made me expand my food repertoire when dining in and out of the house. Still, you have to admit, some of the gluten-free products out on the market are just hideous!Out and About and Gluten-Free in Northern California
If you ever feel obligated to visit northern California, there are two gluten-free establishments that should not be missed. Firstly, the Mariposa Bakehouse and Cafe is a must-see. This quaint little establishment located on the Berkeley/Oakland border is impeccably clean, and better yet, is entirely gluten-free. The food is near-gourmet and is fairly priced. No matter what you order, you will always be more than pleased. The pizza is always fresh, the muffins are near-perfection, and the bagelCooking Terms That Can Help Make Your Cruise Gluten-Free
We are now talking about some of the terms that are used in the kitchen that you might need to know in order to help you decide how your food is prepared. Broiled: The two I am talking about is where the fire is above your food and below your food. Above. Your food sits on a grill that the chef can move up and down to make it closer or father from the fire. Below. The food sits on a grill a lot like your outside grill. With both of these types of cooking cross-contaminatio
Feeling Groovy!
I am through the withdrawal and am feeling great!! I am experimenting with a few different bread mixes out there. The Bob's Red Mill Whole Grain one is very good if you like the taste of rye bread. I also like the Kinnikinik sunflower flax seed bread. That one is not a yeast bread, it is a little heavier and sweeter than most breads, but is very good to make a peanut butter/banana sandwich with. I am also eating tons of salads and fresh fruits, and frittata's are also my new favorite for bGluten Free High Protein
Gluten-free high protein does not have to be an oxymoron any longer. This is good news since celiac and diabetes, both auto-immune disorders, are thought to ride on the same HLA gene. According to recent studies, 40% of diabetics have celiac disease. Conversely it is believed that diabetes is higher in celiacs than in the general population. diabeteshealth.com states that possibly 5-10% of all celiacs have diabetes, though I believe that if insulin resistance and Syndrome X were include
Biopsy Vrs Bloodwork
So I now have one more week before my biopsy, the waiting really sucks, regarless of the results I am going gluten free. I read on here how inconclusive the results can be for the biopsy, and that really blows my mind as the doctors say that the biopsy is the only way to get a 100% true diagnosis. Then what are the results from the blood work worth. I mean if someone has High blood work and the biopsy is negative then what are you supposed to do. This really sucks not knowing, Well I mean I knInto Looking Now For Gluten Free Toiletries And Protein Powder That Is Gluten-free.
It's hard to believe that one month as gone by now. When I sit back and think of the "emotional attachment" I had to gluten when I first went gluten-free , I do roll my eyes a tad I was so down by it at the time. It was not till I found out that Kinnikinnick products were at my local grocer's and they had Donuts!!! that tasted no different than wheat ones. The days of "suffering" were over. It is a big adjustment going gluten-free , but it's not really that hard. There is such an abundance of
Jr Won't Eat Yellow Cake Again, Haha
This blog was originally dated as March 20th, but I only recently figured out how to "add in blogs" >> blames gluten for lack of knowledge :D Today, I did finally get to the Organic Market and found the product name I was looking for. I wish I did not have my son along with me, (he's just 4) as I could not look around as well I as I wanted too. The store did have quite a number of gluten free items to look at. I got an all purpose celiac flour mix, as well as the tapioca flour, glute2 Weeks Till My Bipsy
So I seen the specialist yesterday and discussed the endoscopy/biopsy and believe it or not I only have to wait another week and a half to have it done and then I can go gluten free. He really told me to try and keep eating gluten so the results will be more accurate. If he had of said anything over a month I probably wouldn't of waited. I mean my blood work results were so high that I probably don't even need to get this done but he said you really sure to be 100% sure considering you will haveGluten-Free Cruise Ship Form Letter to Bring
Here is a from letter I made up so you can take this with you on the cruise.. You will want to fill in the menu before you get there and have blanks for other meals you did not plan. The most important issues is the room number, table number and your time of dinner that you are eating at in the main dinning room...even when you do room service the times are very important so that the cooks or chefs see them. Feel free to change if you wish. ________________________________________________Feelin' Groovy
Haven't much to say these days. I've been feeling exceptionally well, so I must be doing something right. We bought 36 acres and are remodeling the house that is on it. We plan to move out there when the major renovation is done and the barn is built. We've decided on a tractor and will be buying it soon. We're going to try to be self-sufficient. The property has a deep water well that supplies the house and all the property with water. We plan to plant a garden as soon as we get the t
The Waiting Game :(
Two more days till my consultation with the gastronlogist, hopefully after that my appointment for the scope will be relatively short becuase I don't know how much longer I can keep eating gluten, it really feels like its killing me. I also have another appointment with my family doctor to request complete vitamin and mineral blood work test, since she never did it last time I was in. I also go for my lactose intolerant test on Tuesday, but I really don't think there will be a problem there, butSuffering While I Wait.
Well today I thought Might be a good day and so far it has been not too bad, My muscles are aching really bad in my shoulders and neck. My stomach was bothering me earlier so I took some of my Pariet, which usually makes those terrible aches and pains go away. For the muscle aches I usually pop a few IB profen or advil. Wish I still had some of those really strong pain killers those would definatly make the pain go away. Only a few more days till I go see the doctor that will be doing my biopsI Need Some Help And Support
I have been living the gluten free lifestyle for 1 month now and I am finally starting to enjoy the food options. I feel like I am eating alot healthier and my energy is going back up, slowly. I was wondering if anyone else went through more emotional symptoms than gut symptoms? I woke up feeling like the world was a dark place and I was really depressed. I had no energy and had thoughts and emotions that I did not think I could ever have. I felt so off balance I thought I could be going cr
New Celiac Pregnancy Scarey!
Well I am happy in a way that I finally found out what is going on with me, and why I have felt this way for years now. The only crappy thing is that I know have to wait to get the biopsy done before I can start the gluten free diet. I have a consultation with the surgeon on tuesday april 1st, and then who knows when the actual biopsy will be. I actually went shopping yesterday and bought some gluten free food, because I was so sick the past few days, I do feel a bit better but still very tired-
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Blog Comments
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Yes, I have one of the older models and have tested many products with it. For me it seems like a valuable tool and I have used it to test foods that I eat regularly, which are naturally gluten-free, for example salsa, refried beans, etc.
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Has anyone tried the NIMA gluten detector? I'm seriously thinking of investing in one. I haven't eaten out at a restaurant since my late diagnosis 4 years ago (I'm 55 in March) Any information would be greatly appreciated
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Recent Activity
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- trents commented on Scott Adams's article in Winter 2026 Issue14
Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out
This is likely dependent on the sensitivity of the individual celiac.- cross contamination
- dining
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- Peace lily commented on Scott Adams's article in Winter 2026 Issue14
Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out
I don’t know about that it’s your choice. I wouldn’t try it only because I went to a clam boil and got sick then I found out they cooked in beer. peace lily- cross contamination
- dining
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- Lotte18 commented on Scott Adams's article in Diagnosis, Testing & Treatment9
A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)
I feel the same way. Looks like the research is being done in Switzerland. Thank you Scott for keeping us updated on the research!- 1
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- celiac disease
- cell therapy
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Celiac Friendly Sports Camps - Academy Camps - Virtual Open House
Hi everyone, I’m Mike, one of the co-founders of Academy Camps, a sleepaway sports camp for kids ages 10 to 16. I’m posting here because one of our camp families whose daughter has Celiac encouraged me to share our experience wit... -
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Celiac Friendly Sports Camps - Academy Camps - Virtual Open House
Hi everyone, I’m Mike, one of the co-founders of Academy Camps, a sleepaway sports camp for kids ages 10 to 16. I’m posting here because one of our camp families whose daughter has Celiac encouraged me to share our experience wit...
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