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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- plumbago replied to Treen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history
@Joel K If the OP is ever in the hospital, and her celiac disease tests did come back positive and she does have celiac disease, she can just tell the doctors that she needs a gluten-free diet because she has celiac disease. They will listen to her, in all probability. And honestly, celiac disease is not taken very seriously inside hospitals, to say nothing... -
- Joel K replied to Treen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history
It is illogical not to disclose a positive celiac disease finding to your doctor, particularly if you're 60 years old. Human beings generally begin failing in one form or another from 60 onward and you might find yourself as an in-patient in a hospital or at an emergency room. Drugs often have minute amounts of gluten and hospital and nursing home food certainly... -
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- Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease26Struggling to get into a good pattern
Thanks @Beverage for checking in! I haven't changed the dogs' food yet. I'm still working through some of the other issues that I need to remedy (transitioning to an anti-inflammatory diet, being sure to get only gluten-free certified items, and buying some new cookware for my kitchen). Somewhere after that, I have on my list to try out the dogs on a new... -
- Scott Adams commented on Scott Adams's article in Latest Research2
Will Commercially Available Gluten Digestive Enzymes Allow Those with Celiac Disease to Eat Wheat Crust Pizza? (+Video)
GliadinX is a sponsor here that sells AN-PEP based enzymes which you can read more about here: https://www.gliadinx.com/publications- an-pep
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@Joel K If the OP is ever in the hospital, and her celiac disease tests did come back positive and she does have celiac disease, she can just tell the doctors that she needs a gluten-free diet because she has celiac disease. They will listen to her, in all probability. And honestly, celiac disease is not taken very seriously inside hospitals, to say nothing of emergency departments, where in any case, the pt may not be able to verbalize anything, and the staff have to act right then.
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It is illogical not to disclose a positive celiac disease finding to your doctor, particularly if you're 60 years old. Human beings generally begin failing in one form or another from 60 onward and you might find yourself as an in-patient in a hospital or at an emergency room. Drugs often have minute amounts of gluten and hospital and nursing home food certainly contains gluten. Here's another scenario: Your doctor sends you for annual labs and your WBC count and others come back out of range. I frankly think one should leave politics out of the equation when it comes to your health. (Insurance isn't about your health, by the way) Or go ahead and don't let your doctor know. Only one person will have to deal with the results of that decision.
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By Rejoicephd · Posted
Thanks @Beverage for checking in! I haven't changed the dogs' food yet. I'm still working through some of the other issues that I need to remedy (transitioning to an anti-inflammatory diet, being sure to get only gluten-free certified items, and buying some new cookware for my kitchen). Somewhere after that, I have on my list to try out the dogs on a new dog food, but I haven't gotten there yet. In the meantime, though, I can definitely see that some of my worst days seem to follow when there's a possibility of gluten cross-contamination (I'm still working to cut waaay down on these instances) OR when I eat anything with dairy/ milk protein in it. So I think I need to really get a better handle on my day-to-day eating habits to reduce all gluten cross-contamination into my food and also any dairy intake, and then at that point, I think I'll start moving over to the dog food thing. -
By Scott Adams · Posted
Sounds like fun, and I was in Germany a few years ago so you might find these articles helpful: -
By Scott Adams · Posted
I just want to mention that we summarize the latest research on refractory celiac disease here: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/refractory-celiac-disease-collagenous-sprue/
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