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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- Scott Adams replied to AnnK73's topic in Gluten-Free Foods, Products, Shopping & Medications34Celiac getting dentures
Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed... -
- Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Restaurants1
Dedicated gluten-free Restaurants in East Bay (near San Francisco):
Those are driving distance from me--I will try to check them out, thanks for sharing! -
- Scott Adams replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Fighting for a name
I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially w... -
- NanCel replied to AnnK73's topic in Gluten-Free Foods, Products, Shopping & Medications34Celiac getting dentures
Hello, no I had to have them re done and then used a liner over the top. Many dentists are not aware of the celiac effects. Best of luck. There is other material, yet, very expensive. -
- sleuth replied to fatjacksonthecat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease22Nicotine Gum For Gluten Symptoms.. Am I Crazy?
He is not just a psychiatrist. He is also a neuroscientist. And yes, I have already read those studies. I agree with benfotiamine. This is short term while glutened/inflammation occurs. As I had already mentioned, these symptoms no longer exist when this phase passes. And yes, I know that celiac is a disease of malnutrition. We are working with...- 1
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By Scott Adams · Posted
Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma. -
By Scott Adams · Posted
Those are driving distance from me--I will try to check them out, thanks for sharing! -
By Scott Adams · Posted
I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back. -
Hello, no I had to have them re done and then used a liner over the top. Many dentists are not aware of the celiac effects. Best of luck. There is other material, yet, very expensive.
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He is not just a psychiatrist. He is also a neuroscientist. And yes, I have already read those studies. I agree with benfotiamine. This is short term while glutened/inflammation occurs. As I had already mentioned, these symptoms no longer exist when this phase passes. And yes, I know that celiac is a disease of malnutrition. We are working with a naturopath.
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