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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- Flash1970 commented on Scott Adams's article in Latest Research1Do Severe Symptoms at Celiac Diagnosis Predict Long-Term Health? (+Video)
I was diagnosed 14 years ago. At the time, information was scarce. Everything said life expectancy was 65. I'm now 72. I follow the diet very strictly. I actually adopted a grain free diet too, because I had so much brain fog and other issues that didn't heal with a gluten free diet. People with persistent issues should really look at eliminating grains...- celiac disease
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- colinukcoeliac posted a topic in Gluten-Free Restaurants0What should I expect from a UK restaurant advertising / offering "Gluten Free" food
Hi. I went to a UK local restaurant that website / ring up said they provided "Gluten Free" food. When placing the order, the waitress & manager then told us they couldn't guarantee contamination occurs and would do their best. It didn't give me confidence and we politely left. I wrote them an email and received a polite reply, again saying they... -
- cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease32Insomnia help
Totally agree, that is an excellent point. I tend to mention these vitamins and also ferritin, because in England (not sure about the rest of the UK) these are the tests generally offered routinely through our public health system. It is unusual to be offered much more than that. I was low normal/deficient in all three, and found that when I supplemented...- 1
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- Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease14Related issues
Did they ever tell you specifically which vitamins would interfere with which tests? Fermented pickles source of thiamine and other B-vitamins, The fermentation process with lactic acid bacteria increases the nutrient value. Colonies of beneficial bacteria can help crowd out the the bad SIBO. Have you had the rash biopsied for Dermatitus Herpetiformus... -
- sc'Que? commented on Celiac.com Sponsor: Review's article in Product Reviews2Bold Taste, No Alcohol & Crafted to Remove Gluten: Daura Non-Alc Beer Takes Alcohol-Free Beer to the Next Level
I'm being SERIOUS here! Absolutely none of the styles of beer I use to drink are ever represented in the gluten-free market.
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By Wheatwacked · Posted
Welcome to the forum @colinukcoeliac. Letting them know that they lost a customer because they could not satisfy cross contamination needs may incline them to fix that problem. It was good of tnem to alert you. The more they know... -
It seems a lot of Kroger products are like this. I always read their labels carefully.
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By colinukcoeliac · Posted
Hi. I went to a UK local restaurant that website / ring up said they provided "Gluten Free" food. When placing the order, the waitress & manager then told us they couldn't guarantee contamination occurs and would do their best. It didn't give me confidence and we politely left. I wrote them an email and received a polite reply, again saying they provide "Gluten Free" food but can't "guarantee contamination occurs". Specifically; their email states "I would like to clarify that while many of our products are indeed gluten-free, the very nature of our open kitchen, storage practices, and the close proximity of fryers alongside the use of gluten-containing products, means we cannot guarantee a completely gluten-free preparation environment." Many queries arise, but my main one is - Should they be displaying on their website "Gluten Free" if they don't have a gluten-free preparation environment ? I will continue to do my own research on the matter, mainly what should my expectations be from a restaurant advertising a "Gluten Free" menu. However, I would benefit a gossip with someone on the topic, or if can you direct me to more information. Thanks, Colin. -
Totally agree, that is an excellent point. I tend to mention these vitamins and also ferritin, because in England (not sure about the rest of the UK) these are the tests generally offered routinely through our public health system. It is unusual to be offered much more than that. I was low normal/deficient in all three, and found that when I supplemented them all I felt better. That said, my private nutritionist put me onto a very expensive broad spectrum supplement pill which no doubt went some way to address other deficiencies, and I took it into my own hands to take a supplement which contained all the B vitamins., too. Interestingly, when I checked the supplements with my own GP a little while later she was very worried about the large doses of one particular vitamin that the broad spectrum supplement contained, so I came off the lot - although my gastroenterologist still has me take vitamin D.
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By Wheatwacked · Posted
Did they ever tell you specifically which vitamins would interfere with which tests? Fermented pickles source of thiamine and other B-vitamins, The fermentation process with lactic acid bacteria increases the nutrient value. Colonies of beneficial bacteria can help crowd out the the bad SIBO. Have you had the rash biopsied for Dermatitus Herpetiformus? Atopic Dermatitis and dermatitis herpetiformis share symtoms and atopic dermatitis patients have higher risk of dermatitis herpetiformis. dermatitis herpetiformis is a symptom of Celiac diagnosis. When I had the carotid artery stent, the hospital put down "wheat allergy" for the food service. I guess allergy puts the fear of god in them more than the misunderstood Celiac Disease. Whatever keeps me alive in this world.
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