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Post Diagnosis, Recovery & Treatment of Celiac Disease

Discussions related to the recovery process after you've been diagnosed.

8,842 topics in this forum

  1. foxdog
    mftnchn

    Importance Of Tests

    By foxdog, Last action:
    • 2 replies
    • 2.1k views
    • mftnchn
    • mftnchn
  2. Crystalkd
    pedro

    Hi. I'm New And I Have A Question

    By Crystalkd, Last action:
    • 2 replies
    • 1.8k views
    • pedro
    • pedro
  3. whattodo
    foxdog

    Kissing Question

    By whattodo, Last action:
    • 5 replies
    • 2.3k views
    • foxdog
    • foxdog
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  4. pixiegirl
    sneezydiva

    Lab Test For Celiac

    By pixiegirl, Last action:
    • 10 replies
    • 2.6k views
    • sneezydiva
    • sneezydiva
  5. dawnrose008

    Vitamins Make Me Sick!

    By dawnrose008, Last action:
    • 10 replies
    • 5.8k views
    • dawnrose008
    • dawnrose008
  6. tiredofdoctors
    Sandi

    Question About Enterolab

    By tiredofdoctors, Last action:
    • 6 replies
    • 2.8k views
    • Sandi
    • Sandi
  7. holdthegluten
    darlindeb25

    Sudafed

    By holdthegluten, Last action:
    • 1 reply
    • 21.5k views
    • darlindeb25
    • darlindeb25
  8. kholod

    Looking For A Doctor In Los Angeles

    By kholod, Last action:
    • 0 replies
    • 967 views
    • kholod
    • kholod
  9. JamiD
    JennyC

    Fiber Supplements?

    By JamiD, Last action:
    • 3 replies
    • 3.4k views
    • JennyC
    • JennyC
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  11. hubster2
    Teacher1958

    Downs Celiac Boy - Taste In Mouth

    By hubster2, Last action:
    • 4 replies
    • 3.3k views
    • Teacher1958
    • Teacher1958
  12. stephanie19
    mftnchn

    Need Help Interpreting Enterolab Results

    By stephanie19, Last action:
    • 4 replies
    • 2.8k views
    • mftnchn
    • mftnchn
  13. newlyfree

    'cycle' Question - For The Ladies

    By newlyfree, Last action:
    • 4 replies
    • 2k views
    • newlyfree
    • newlyfree
  14. Josina

    Family Doctor Not Acting On Results

    By Josina, Last action:
    • 8 replies
    • 2k views
    • Josina
    • Josina
  15. jjgirl

    Should I Go Ahead With A Biopsy?

    By jjgirl, Last action:
    • 5 replies
    • 1.6k views
    • jjgirl
    • jjgirl
  16. Kellygirl
    Josina

    Smoking And Celiac Disease

    By Kellygirl, Last action:
    • 14 replies
    • 5.8k views
    • Josina
    • Josina
  17. kalistys
    lob6796

    Most Likely Deficiencies With Iron Anemia?

    By kalistys, Last action:
    • 1 reply
    • 1.4k views
    • lob6796
    • lob6796
  18. alamaz
    par18

    Immodium Consquences

    By alamaz, Last action:
    • 12 replies
    • 2.9k views
    • par18
    • par18
  19. natalie
    marlene57

    Family Acting Weird

    By natalie, Last action:
    • 16 replies
    • 4.6k views
    • marlene57
    • marlene57
  20. cdfiance

    Extreme Coldness

    By cdfiance, Last action:
    • 10 replies
    • 8.3k views
    • cdfiance
    • cdfiance
  21. anemic
    confusedks

    What Do People Know About Iron Infusions

    By anemic, Last action:
    • 4 replies
    • 1.8k views
    • confusedks
    • confusedks
  22. geeze
    marlene57

    Weight Gain

    By geeze, Last action:
    • 3 replies
    • 1.7k views
    • marlene57
    • marlene57
  23. holdthegluten
    Guest

    Shopping Online For Gluten Free Prepared Food?

    By holdthegluten, Last action:
    • 3 replies
    • 1.5k views
    • Guest
    • Guest
  24. holdthegluten
    Rachel--24

    Nightsweats?

    By holdthegluten, Last action:
    • 3 replies
    • 4.4k views
    • Rachel--24
    • Rachel--24
  25. whattodo
    corinne

    Scd Diet?

    By whattodo, Last action:
    • 5 replies
    • 2k views
    • corinne
    • corinne
  26. candi1008
    BFreeman

    Feeling Good

    By candi1008, Last action:
    • 8 replies
    • 2.7k views
    • BFreeman
    • BFreeman

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  • Recent Activity

    1. trents
      - trents replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    2. KeriRae
      - KeriRae replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

      I've had this same rash on my back on and off for the last year or two. I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash.
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

      It should be noted that Gluten Free Watchdog has voiced concerns about the methodology used by MomsAcrossAmerica's lab for their gluten testing. I don't have access behind their paywall, but here are 2 relevant public posts from them on this topic. (tldr: GFWD seems to believe that MAM's lab could have gotten false positives and they explain why they believe...
    4. Russ H
      - Russ H replied to Ginger38's topic in Related Issues & Disorders
      27

      Shingles - Could It Be Related to Gluten/ Celiac

      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
    5. GFhappygirl
      - GFhappygirl commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

      I recently purchased Simple Mills crunchy almond flour chocolate chip cookies and chocolate chocolate chip cookies and had reactions to both. I learned of my gluten sensitivity 3 1/2 months ago and struggled with finding gluten-free foods but, with my husbands help, I have felt better than I have in many years. After eating these cookies my symptoms returned...
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  • Posts

    • trents
      DH Photo Bank

      By trents · Posted

      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    • KeriRae
      DH Photo Bank

      By KeriRae · Posted

      I've had this same rash on my back on and off for the last year or two.  I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. 
    • Russ H
      Shingles - Could It Be Related to Gluten/ Celiac

      By Russ H · Posted

      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi  There’s been no mention of her adrenal glands as far as I know
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