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Post Diagnosis, Recovery & Treatment of Celiac Disease
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Recent Activity
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- knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Seeking advice on potential gluten challenge
Welcome, @JudyLou, Your rash sounds very similar to the one I experienced. Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well. Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside... -
- Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Have I got coeliac disease
This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins... -
- Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Gluten tester
I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that... -
- JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Seeking advice on potential gluten challenge
Oops! @Staticgypsy, I’ll get the book! Thank you! -
- JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Seeking advice on potential gluten challenge
Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was man...
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By knitty kitty · Posted
Welcome, @JudyLou, Your rash sounds very similar to the one I experienced. Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well. Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too. Symptoms can wax and wane depending on dietary intake. I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less. Niacin deficiency is called Pellagra. Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's). A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra. Darkened skin around the neck exposed to the sun is Casal's necklace. Poor farmers with niacin deficient diets were called "red necks" because of this. Does your rash get worse if you're in the sun? Mine did. Any skin exposed to the sun got blistered and scaly. Arms, legs, neck, head. Do you have dry, ashy skin on your feet? The itchiness was not only from the rash, but neuropathy. My doctors were clueless. They didn't put all my symptoms together into the three D's. But I did. I'd learned about Pellagra at university. But there weren't supposed to be deficiency diseases anymore in the developed world. Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients. I got better. One of Niacinamide functions is to help stop mast cells from releasing histamine. Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine. Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again. Interesting Reading: These case studies have pictures... Pellgra revisited. https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment. Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor. Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet. Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6. People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6. Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/ -
By Wheatwacked · Posted
This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals. Low or deficient Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D" Possible Role of Vitamin D in Celiac Disease Onset "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)." Prevalence and correlates of vitamin D deficiency in US adults -
I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference.
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Oops! @Staticgypsy, I’ll get the book! Thank you!
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Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both.
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