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Recent Activity
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- melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9Persistent isolated high DGP-IGG in child despite gluten-free diet
Will definitely keep you posted. We live in Japan and will fly to Australia for the endoscopy end of April so until then, for the next ten weeks, we will just start adding gluten daily. 2 slices of white bread a day is what the guidelines seem to say. But I welcome advice from members here who have done successful gluten challenges. I know they... -
- trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9Persistent isolated high DGP-IGG in child despite gluten-free diet
What is your plan for the gluten challenge? -
- trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Persistent isolated high DGP-IGG in child despite gluten-free diet
@melthebell, keep us posted. We are learning more and more about gluten disorders as time goes on. One of the things that has become apparent to me is that gluten disorders don't always like to fit into the neat little pigeon hole symptomatic and diagnostic paradigms we have created for them. There seems to be a lot more atypical stuff going on than we once... -
- melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Persistent isolated high DGP-IGG in child despite gluten-free diet
Thanks very much for taking the time to write. I have been reading a lot about this and it definitely is not straight forward. My first port of call is the gene test - probably should have had it done before we left Australia because they don’t run the test in Japan. So I’ve ordered a third party test kit and just swabbed his cheek. Then we start the glu... -
- melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Persistent isolated high DGP-IGG in child despite gluten-free diet
Thank you everyone for t thank you for sharing your story. I’m borderline obsessive in making sure my kids get tested; my parents are convinced undiagnosed celiac in childhood stunted some of my growth and cause tooth enamel issues. We now embark on a gluten challenge which comes with its own problems and I know diagnosis after being gluten-f...
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By melthebell · Posted
Will definitely keep you posted. We live in Japan and will fly to Australia for the endoscopy end of April so until then, for the next ten weeks, we will just start adding gluten daily. 2 slices of white bread a day is what the guidelines seem to say. But I welcome advice from members here who have done successful gluten challenges. I know they are not always successful. I have also read I should monitor his growth. Is that really a concern for 10 weeks of gluten consumption? He is growing and has always followed his curve but he’s no basketball player at 20-25th centile. -
What is your plan for the gluten challenge?
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@melthebell, keep us posted. We are learning more and more about gluten disorders as time goes on. One of the things that has become apparent to me is that gluten disorders don't always like to fit into the neat little pigeon hole symptomatic and diagnostic paradigms we have created for them. There seems to be a lot more atypical stuff going on than we once realized.
-
By melthebell · Posted
Thanks very much for taking the time to write. I have been reading a lot about this and it definitely is not straight forward. My first port of call is the gene test - probably should have had it done before we left Australia because they don’t run the test in Japan. So I’ve ordered a third party test kit and just swabbed his cheek. Then we start the gluten challenge and see how it goes. -
By melthebell · Posted
Thank you everyone for t thank you for sharing your story. I’m borderline obsessive in making sure my kids get tested; my parents are convinced undiagnosed celiac in childhood stunted some of my growth and cause tooth enamel issues. We now embark on a gluten challenge which comes with its own problems and I know diagnosis after being gluten-free can be difficult to secure. But I will absolutely persevere.
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