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Recent Activity
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- aperlo34 replied to aperlo34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8advice needed 2 months in... struggling with symptoms
@cristiana Yes - just to add to this: my ferritin went down after my first 2 infusions (which were 8 months ago), so I got more infusions a couple of weeks ago. From those alone, I'm feeling better. It's a work in progress! Be patient! I was also taking iron supplements the entire time.- 1
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- cristiana replied to aperlo34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8advice needed 2 months in... struggling with symptoms
@OlafAndvarafors I just wanted to reassure you that I had these same issues for a while before and after diagnosis but they did settle. I think the deficiencies and anxiety that are very common in undiagnosed/newly diagnosed coeliacs are a perfect mix for twitching! I cannot say exactly how long you will experience this but my feeling that once you are... -
- Wheatwacked replied to aperlo34's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8advice needed 2 months in... struggling with symptoms
a deficiency in thiamine (vitamin B1) can contribute to muscle twitching, especially in more severe cases of thiamine deficiency. Thiamine is crucial for nerve function and energy production, and its deficiency can disrupt muscle contraction and nerve signals. Lots of Thiamine a day, several hundred mg, to reverse thiamine deficiency. The usual dose... -
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- Ccoast Celiac replied to Mettedkny's topic in Gluten-Free Foods, Products, Shopping & Medications15Progesterone pills - are they gluten free??
Hi @Mettedkny I’ve had the same problem with Xiromed Progesterone 100 Caps. I’m very careful about gluten and only have had gluten “gut issues” since starting these. I previously had another brand, and no problems. So, even if Xiromed says “gluten free” perhaps in the manufacturing process there is gluten cross-contamination. I’m already requesting a ...- high gluten
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@cristiana Yes - just to add to this: my ferritin went down after my first 2 infusions (which were 8 months ago), so I got more infusions a couple of weeks ago. From those alone, I'm feeling better. It's a work in progress! Be patient! I was also taking iron supplements the entire time.
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@OlafAndvarafors I just wanted to reassure you that I had these same issues for a while before and after diagnosis but they did settle. I think the deficiencies and anxiety that are very common in undiagnosed/newly diagnosed coeliacs are a perfect mix for twitching! I cannot say exactly how long you will experience this but my feeling that once you are properly diagnosed and it is found to be that gluten is an issue, get your vitamin/mineral levels assessed and if they are low/low normal, don't hesitate to supplement until the levels normalise. I was Iron anaemic, and low normal with B12. Once my levels of iron were normal, and B12 nearer 500, my symptoms reduced greatly, and I found magnesium helped A LOT with twitching face muscles in particular. However - word of caution with iron: if you do need to supplement, have regular blood tests to check levels as too much iron can be dangerous.
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By Wheatwacked · Posted
a deficiency in thiamine (vitamin B1) can contribute to muscle twitching, especially in more severe cases of thiamine deficiency. Thiamine is crucial for nerve function and energy production, and its deficiency can disrupt muscle contraction and nerve signals. Lots of Thiamine a day, several hundred mg, to reverse thiamine deficiency. The usual dose for adults is between 25mg and 100mg, taken once a day. Severe thiamine deficiency The usual dose for adults is 100mg, taken 2 or 3 times a day. -
By Ccoast Celiac · Posted
Hi @Mettedkny I’ve had the same problem with Xiromed Progesterone 100 Caps. I’m very careful about gluten and only have had gluten “gut issues” since starting these. I previously had another brand, and no problems. So, even if Xiromed says “gluten free” perhaps in the manufacturing process there is gluten cross-contamination. I’m already requesting a different manufacturer to see if there is improvement. -
By Scott Adams · Posted
I thought I'd share this article about recent findings that not enough gluten is transmitted during kissing to be concerned about: https://www.eurekalert.org/news-releases/1082120 What do you think?
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