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Recent Activity
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- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Blood results
Thanks for replying. Hopefully biopsy will help clarify things. She’s keeping up with her gluten intake and last message from her said she’s paying the price for it!!!! -
- Sarawiththeceliac replied to Sarawiththeceliac's topic in Related Issues & Disorders1Untreated celiac
Also I got a test for tTg IGA and its 32 -
- Sarawiththeceliac posted a topic in Related Issues & Disorders1
Untreated celiac
Hello, everyone I was diagnosed with celiac since the age of 5 but unfortunately I would say I was never been on a strict gluten free diet and looking back to my pictures when I was young,I was shorter than kids my age,I am from Sudan and celiac was not known to people alot and I was living with my grandma until I was 11 , then I moved with my mom which then... -
- Waterdance replied to Waterdance's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Diagnosed gluten allergy but not Celiac
It is addictive. The dopamine hit I get from a sandwich after being gluten free for a while is insane and I immediately crave more. Maybe if I think of it more like an addiction I'll be able to beat it in the future. -
- Wheatwacked replied to Waterdance's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Diagnosed gluten allergy but not Celiac
Undiagnosed Celiac Disease was your root cause. As you heal and adress nutritional deficiencies you'll see lifetime symptoms disapear, some you don't even realize you have. Until 1951 no one knew the cause. Around 1900 it was also called "Infantilism", you outgrew it or died. Dr Hass around 1920 was the first to come up with a treatment with close...
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By Heatherisle · Posted
Thanks for replying. Hopefully biopsy will help clarify things. She’s keeping up with her gluten intake and last message from her said she’s paying the price for it!!!! -
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By Sarawiththeceliac · Posted
Hello, everyone I was diagnosed with celiac since the age of 5 but unfortunately I would say I was never been on a strict gluten free diet and looking back to my pictures when I was young,I was shorter than kids my age,I am from Sudan and celiac was not known to people alot and I was living with my grandma until I was 11 , then I moved with my mom which then I believe I started a strict gluten free but unfortunately at that time I already got my period earlier when i didn't even have signs for puberty i looked like a 9 years old at 12 and i have severe periods cramps at my back only that it makes me faint i was never on strict gluten free diet because i have asymptomatic celiac and never believed it would cause something other than cancer and not being able to get pregnant.i am now 17 5'2 and weight 43 kg which this weight never changes I look now like I am 12 compared to my family or friends.i have very hard period pains and I my heaomglobin is 9 I got an IV infusion for iron but I still don't feel well ,I started a strict gluten free diet last month because I now bothered to search about my case .I feel like I am going crazy ,brain fog , fatigue,iron deficiency since I was 13 and unfortunately my family says I am just lazy or i just have an allergy.someone help me what could be the reason and would i improve if i am on a strict gluten free diet or its too late for my hormones weight and height to he fixed i have high prolactin and many other hormones issues . -
By Waterdance · Posted
It is addictive. The dopamine hit I get from a sandwich after being gluten free for a while is insane and I immediately crave more. Maybe if I think of it more like an addiction I'll be able to beat it in the future. -
By Wheatwacked · Posted
Undiagnosed Celiac Disease was your root cause. As you heal and adress nutritional deficiencies you'll see lifetime symptoms disapear, some you don't even realize you have. Until 1951 no one knew the cause. Around 1900 it was also called "Infantilism", you outgrew it or died. Dr Hass around 1920 was the first to come up with a treatment with close to 100% survival. At 63 I followed his diet for a while and it helped me past the early stage of recovery. Even then it was only considered a childhood disease, eventually the child outgrew it. Once outgrown the child was reintroduced to wheat. After that any symptoms that arose were attributed to whatever was popular, gall bladder, allergy, endometriosis, etc. Often the final diagnosis is "we do not know the cause, it is just normal for some people, but we have medications that will treat your symptoms." I was bloated, and always colicky. When my son was born in 1976, my mother commented "You got what you gave." I pointed out to my wife that he looked like a Biafra baby from the Biafra famine in 1970. One of the first successful sales of modern wheat was to replace the rice the Biafran Aid Society supplied. After searching the state where we lived (pop. 6 million) we found the one child gastroenterologist familiar with Celiac. He only had 13 other children dianosed with the disease under his care and after several endoscopies my son was diagnosed, put on GFD and immediately thrived. The doctor also suggested my wife and I also do gluten free. We declined, not having any gastro problems. That remains my only regret in my life. THE VALUE OF THE BANANA IN THE TREATMENT OF CELIAC DISEASE Dr Hass' 1924 puplication with diet. There are over 300 symptoms related to celiac disease I believe that if you have the genes, you have Celiac Disease, but your immune system is strong enough to keep it subdued, or your symptoms are misdiagnosed as something not wheat. Until something happens to weaken the immune system, and symptoms, often misdiagnosed and wrongly treated, until eventually you die, never knowing or you get lucky and end up eating gluten free. To me it explains the late onset of acute symptoms, many are "just normal for you". Ever wonder why people get so angry if you suggest they may have Celiac Disease. Wheat is a cultural and economic staple of our lives. And it is addictive, it numbs our body. Suddenly, gluten free, all the other irritants are no longer suppressed.
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