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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


16,219 topics in this forum

  1. pricklypear1971
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  2. daisymae106
    BethM55
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    Marilyn R
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  5. sleer
    T.H.
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    sandsurfgirl
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    lovegrov
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  8. Kathleen Smith
    Takala
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  9. jmrogers31
    Strawberry-Jam
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    sreese68
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  12. jswog
    rosetapper23
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  13. CourtneyLee
    Skylark
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    bridgetm
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  15. pondy
    rosetapper23
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  16. sandsurfgirl
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    anabananakins
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  18. Jenni121
    sandsurfgirl
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  19. alicewa
    Darn210
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  20. DonnaMM
    Bubba's Mom
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  21. AVR1962
    Bubba's Mom
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  22. bny06
    sandsurfgirl
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  23. glutenfreemamax2
    ravenwoodglass
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  24. Britgirl
    Roda
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  25. Airies
    sandsurfgirl
    • 3 replies
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  26. katfshh
    GFinDC
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  27. Katrala
    sahm-i-am
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  • Posts

    • Scott Adams
      You might find some of these articles interesting--research that shows a connection between celiac disease and some cases of MS: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/multiple-sclerosis-and-celiac-disease/
    • Scott Adams
      Washing strawberries in water, which you should always do anyway due to pesticides that may be on them, should make them safe. 
    • Scott Adams
      It is possible you have an additional food intolerance, possibly to milk/casein?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.  
    • nanny marley
      It's been postponed due to my sciatic nerve being in high flaring mode I had a feeling I was worrying about something turns out because of the extent of the disk in my spine with the nerve how it's trapped its a risk my back specialist always told me to be very careful with that area so now it's 1st July  I'm glad I contacted the nurses with my worries 
    • Olenaideole
      Hey @trents, thanks! Yeah I’ve used Scan Gluten Free too at some point. It works, though like you said, those databases aren’t always super current. I also used Mitch (getmitch.app). But it’s not an app, just a simple web tool that reads the ingredient list and highlights hidden gluten, risky additives, and cross-contamination notes. But not bad for double-checking labels when things look suspicious.  
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