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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6High DGP-A with normal IGA
I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in. -
- trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5GI DX celiac despite neg serology and no biopsy
I tend to agree with RMJ. Your doc took the reasonable and practical approach to diagnosis. All things considered, it was the right way to go. However, if you have first degree relatives that show signs of possible celiac disease, urge them to get formally tested before they start the gluten free diet. -
- RMJ replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5GI DX celiac despite neg serology and no biopsy
It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy. -
- captaincrab55 replied to Colleen H's topic in Coping with Celiac Disease1Heat intolerant... Yikes
Hi Colleen H, I suffered with the pins and needles/burning feeling in my legs and feet for at least 6 years until my Nephrologist figured out that I had to go on a low salt diet. He said my kidneys weren't strong enough to remove the salt. The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option. On the bright... -
- trents commented on Scott Adams's article in Autumn 2025 Issue24
Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
The title of this article is misleading. To me, triggering celiac disease refers to something that causes the onset of celiac disease whereas the text of the article explains that what is being meant by the title is actually the triggering of celiac-like reactions or symptoms.- additives
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I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
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I tend to agree with RMJ. Your doc took the reasonable and practical approach to diagnosis. All things considered, it was the right way to go. However, if you have first degree relatives that show signs of possible celiac disease, urge them to get formally tested before they start the gluten free diet.
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It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
-
By captaincrab55 · Posted
Hi Colleen H, I suffered with the pins and needles/burning feeling in my legs and feet for at least 6 years until my Nephrologist figured out that I had to go on a low salt diet. He said my kidneys weren't strong enough to remove the salt. The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option. On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away. Good Luck and hope this helps. -
Yes this is very frustrating for me ... not sure what to think. Feels like I'm having reactions to a lot of things Now applesauce?? I don't understand 😞
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