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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Scott Adams replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3CT with contrast.
They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests. Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up. -
- Scott Adams replied to Shellly's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
New labs are now very elevated
In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times... -
- Scott Adams commented on Scott Adams's article in Spring 2025 Issue2
Vitamin and Nutrient Deficiencies are Common in Celiac Disease, Before and After a Gluten-Free Diet
A Google search for your area should do the trick, just include all the key words. Normally nutritionists don't call in blood tests for nutrient deficiencies or celiac disease, but they may be able to do so in certain states, or using private labs.- celiac disease
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- Marion Axhoj commented on Scott Adams's article in Spring 2025 Issue2Vitamin and Nutrient Deficiencies are Common in Celiac Disease, Before and After a Gluten-Free Diet
How does one go about finding an approved Nutritionist for Celiac Disease? Who evaluates nutritionists as able to help people with Celiac Disease? Are nutritionists able to order blood tests and evaluate them? Do Nutritionists assist people over the phone?- celiac disease
- deficiencies
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- trents commented on Scott Adams's article in Diagnosis, Testing & Treatment2Tissue Transglutaminase Immunoglobulin A Rises Suddenly in At-Risk Children
@JettaGirl, you are what we call a "seronegative celiac". That means you have celiac disease but the IGA antibody blood tests ("sero" = blood) are negative. A small percentage of celiacs are in this class. If you were to be tested for IGG antibodies it might show positive. Were you tested for IGA ("total IGA") deficiency?- celiac disease
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By Scott Adams · Posted
They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests. Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up. -
By Scott Adams · Posted
In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals? -
@JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease.
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This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
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I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it.
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