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Share experiences with doctors, how to find a good one, and avoid the bad ones.


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  • Posts

    • Pablohoyasaxa
      Thanks for the post on Vitamin D.  I have been living in south Florida and have been taking moderately higher doses of vit D. I am considering the Mushroom supplements and exporing Real Mushrooms, the brand. Not sure. If you have any thought, please share. I am curious about all things homeopathic. 
    • trents
      About 9% of celiacs react to the protein in oats (avenin) like they do gluten. The dairy protein casein is also known to damage small bowel villi like gluten does in some celiacs. In addition to that, many manufactured gluten-free food products contain difficult to digest polysaccharides like xanthan gum that are famous for causing digestive distress.
    • Pablohoyasaxa
      Your  post is excellent. Thank you!! I have been trying to keep my diet "truly gluten free," but as you know, it's a  sneaky allergy, especially if you have a heightened sensitivity. So ironically, and sadly, no medical person told me to stay away from "gluten free oats.".  To my own fault, my lack of awareness led to years of eating  massive bowls of gluten-free oatmeal, sometimes twice a day. Awful right?  I am sure this added to the recovery time. I think I have been super vigilant for the last 12 months, but I wonder. I  haven't gone to a restaurant in a long time. My wife is frustrated with my social situation but truthfully I need to get this condition over with. Thanks again.
    • Pablohoyasaxa
      Thank you so much for the caring reply. It really helps to be getting feed back on this. Thank you Celiac.com!  The skin lesions are in the last stage. Some are larger and take more time but much better. I look at photographs from 2 years ago and I shudder.  The stomach issues prevail,  although incrementally improved, even after a stay at MayoClinic this past year. Thank you again  
    • trents
      @Pablohoyasaxa, if your diet is truly gluten free you should not still be experiencing stomach cramps and diarrhea. So, maybe gluten is still getting in there somehow or you have developed other food intolerances which, by the way, is very common in the celiac population. Are you still consuming dairy and oats (even gluten free oats)?
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