Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mushroom (Neroli) Memorial Thread

Scott Adams

Recommended Posts

Scott Adams Grand Master
Scott Adams
Posted

It is with great sadness that I share the very bad news that one of our long-time board members and moderators passed away recently due to complications resulting from a stroke that she suffered a few weeks ago. She was very helpful to many on this board, and this thread is the place to share your thoughts and memories of her. She will be missed dearly by all she touched with her kindness, and I never got to say "thank you" to her for serving as a board moderator--thank you! 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 65
  • Created
  • Last Reply
IrishHeart Veteran
IrishHeart
Posted

I am stunned. She is the " iron lady " to me. One of the best people on c.com and one of the first to reach out to me
so long ago. Always an elegant lady,  but also one of the toughest broads I have ever met! 

She always teased me on threads and she told me more than once to "grow a thick skin, IH. Do not take anything personal and  stay as compassionate as you are."

We often shared PMs and our love of grammar and word play.

I am crying my head off right now and thinking.. ...buggers!! .  we  lost a great gal today. dammit, dammit, dammit.
She loved scotch, i know and I would tell her "blech, Shroom!"  but I will toast her with gin.... again and again

I told her "you are my NZ stop when I am well enough to do my world tour " and she said "you better hurry!"
 

So glad I told her more than once "i just love you ...and I appreciate your wisdom, kindness and enormous sense of humor." I recently told her the response she gave to a newbie was just the most amazing thing ever. (Because it was.)

 

And to her dear Hubs, Clayton...she always spoke of you with so much love! My heart aches for you.

 

She is my hero and her "let's start a thread of stupid stuff doctors say"  reigns supreme.

 

Cheers, Shroomie! Love you madly ...and now I have to stop because  I cannot see the keyboard anymore. :(

jerseyangel Proficient
jerseyangel
Posted

Thank you, Scott. Our Shroomie was a force to be reckoned with for sure! She spent years on this board giving great, knowledgeable advice laced with caring and a wonderful sense of humor. Shroom somehow always had just the right words and was so generous with her replies.

She was a fixture on the "Tickle Me Elbow" thread, and it was there we became friends. I will miss checking in with her there and the silly banter that has ensued through the years.

Rest in peace, Shroomie.

My thoughts are with her husband, family and friends.

Gemini Experienced
Gemini
Posted

I had to read this 3 times before it sank in.  I still am having trouble comprehending that Mushroom is gone.  You know, and this is true, the other day her name just popped into my head.

Out of the blue and I thought....where has she been?  I haven't seen any posts from Mushroom.   I was going to ask Irish because I know how close they were.  Now I know and it makes me sick to my stomach. 

 

I lost a co-worker last summer.  He died of a heart attack, very suddenly.  We were close and I was so upset because I had been on vacation, moving into my new home and I thought of him the same way I thought of Mushroom.  He just popped into my head and I thought how I would seek him out as soon as I returned to work.  Then I got a call from others at work to tell me he was gone.  I never got to say good-bye and that will bother me forever.

 

Rest in peace, Mushroom, and my heartfelt condolences go out to her family.  God has scooped up another good one and it isn't fair that He always takes the best ones before their time.  :(

 

GottaSki Mentor
GottaSki
Posted

Exactly right....God has scooped up one of the best.

Through tears I type...Shroomie you will not be forgotten - by me - or by countless people that you graciously advised with accurate along with sensible words...each and every day that you were able to do so.

Often late in the evening we would be the only mods online and would tag team --- I have missed you each time you've been ill...but firmly believed you could beat anything in your path....we joke about super powers...but I was certain you actually possessed them.

Rest in peace my dear friend...I will miss you always..."my Lectin Cuz"

My prayer today is for Neroli's husband, family and friends that they will find peace and that Shroomie has left a bit of her strength and determination behind to help them through the days to come.

tarnalberry Community Regular
tarnalberry
Posted

Thank you for letting us know, Scott.

My thoughts are with all her family and friends, especially the ones here.

She will be missed.

notme Experienced
notme
Posted

rest in peace, shroomie.  thanks for all the great advice and helping to hold everybody's hand through this sometimes tough life we are trying to live.  i sure will miss you, especially on the cooking 'channel' xxoo and prayers are with your family.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cahill Collaborator
cahill
Posted

Thank you Scott for letting us know

 

 

When I was new to these forums Mushroom was one of the first to reach out to me . Thur my gluten induced fog Mushroom was a beacon , the voice of reason and encouragement. She gave me  hope  and knowledge  that  I so desperately  needed  at  start of my journey . She will be sadly missed. :(

GF Lover Rising Star
GF Lover
Posted

I am shocked.  I've only known her for a year but she made a great impression on me and touched another's life.

 

 

To the Admin,  Moderators, and her close friends and family, I am deeply sorry for your loss. And praying for your strength. 

 

 

shadowicewolf Proficient
shadowicewolf
Posted

I had noticed that she had not posted in a while, but i didn't realize that she had passed. :(

 

I'm shocked. I thought she was one of the strongest members on here. She helped so many. She will be missed.

 

Thank you for letting us know. I was really starting to get concerned.

bartfull Rising Star
bartfull
Posted

Oh my. I'm shocked and heartbroken. When I first came here it was Mushroom, Irish, and Skylark who reached out to me with their knowledge and their compassion. I haven't seen Skylark here in a long time either and I'm almost afraid to ask...

 

Mushroom, I know you have a special place in Heaven. People as kind and giving as you are so rare in this world.

 

To her family, I thank you for sharing her with us, and you will all be in my prayers.

squirmingitch Veteran
squirmingitch
Posted

Shroomie, You helped me. Heck, you helped thousands. I miss you already. I can't believe I won't see your words of wisdom on here anymore. Rest in peace dear girl. You earned it.

My thoughts turn now to her family. May they be content in the knowledge that Shroomie has gone on to help others in another place.

psawyer Proficient
psawyer
Posted

Neroli was a friend to me, and to so many here. She was a pillar of strength, offering help and support to all who came here looking for it. Life threw her many challenges, and she overcame them all, until this last one.

She will be missed. Her wit always livened up anything she was in on. Rest in peace, my dear friend.

GFinDC Veteran
GFinDC
Posted

Shroomie was a great resource for this forum.  She gave good advice and spiced it up with humor often.  For someone who wasn't feeling too well herself she sure put in a lot of effort to give helpful answers to people's questions.  I think that shows love for her fellow humans.  My condolences to Clayton and her family.  The Lord made a fine catch today!  I imagine he's smiling real bright about now.  Happy trails to Shroomie!

elye Community Regular
elye
Posted

This news just continues to seem completely unreal to me...how can Shroomie be gone? Brilliant, hilarious, compassionate.....and a real fighter. I am sure that the legacy she left is monumental, and a big part of it is the countless lost, sick, frustrated people whom she helped on this forum.

Thank you so much, Neroli. This place will never be the same without you.

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

she took the time on my very first post to bold things I should include in my symptoms list to give to my GI, and that was only the start of her help.  I noticed she hadn't posted in awhile, but I thought maybe moderators rotate schedules, and she was on vacation.  too bad I was wrong  :(  

 

thank you for sharing your knowledge with others, Mushroom, and giving ideas about what to try next.  you will be missed!

Gemini Experienced
Gemini
Posted

I hope Shroomie's family see these posts because it's bound to make them feel a little bit better, knowing how well she was thought of on here.

JNBunnie1 Community Regular
JNBunnie1
Posted

Lotsa sads..... :(

GottaSki Mentor
GottaSki
Posted

I hope Shroomie's family see these posts because it's bound to make them feel a little bit better, knowing how well she was thought of on here.

 

We are sending the link for this thread to her hubs.

kareng Grand Master
kareng
Posted

I haven't posted yet, because I didn't really know what to say. Still don't.

I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

Gemini Experienced
Gemini
Posted

We are sending the link for this thread to her hubs.

Oh......that is so nice!  I hope it will bring him some comfort.

IrishHeart Veteran
IrishHeart
Posted

I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

 

....and laughing with glee that you wrote these words, K.  :)

 

it's 4:25 am and I can't sleep and I was thinking, well, Shroom's on the board...

shadowicewolf Proficient
shadowicewolf
Posted

....and laughing with glee that you wrote these words, K.  :)

 

it's 4:25 am and I can't sleep and I was thinking, well, Shroom's on the board...

I know the feeling :(

 

I normally get up early and her posts were one of the first i would see.

ncdave Apprentice
ncdave
Posted

Neroli was such a dear friend to so many here on this forum including myself. She will truly be missed but never forgotten. My prayers go out to her family and all her friends.  

jerseyangel Proficient
jerseyangel
Posted

I imagine she is eating a nice pizza with a side of baked potato and a big bowl of ice cream or some decadent gluteny dessert.

And a big bowl of split pea soup with lotsa croutons!

We had some great legume/lectin chats. Shroom really knew her stuff on all things food sensitivity.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,979
    • Most Online (within 30 mins)
      7,748
    volivier
    Newest Member
    volivier
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Outgrow celiac?

      By trents · Posted

      @Riley, on this forum we sometimes get reports from people with similar experiences as you. That is, their celiac disease seems to go into remission. Typically, that doesn't last. At age 18 you are at your physical-biological peek in life where your body is stronger than it will ever be and it is able to fight well against many threats and abuses. As Wheatwacked pointed out, absence of symptoms is not always a reliable indicator that no damage is being done to the body. I was one of those "silent" celiacs with no symptoms, or at least very minor symptoms, whose body was being slowly damaged for many years before the damage became pronounced enough to warrant investigation, leading to a diagnosis. By that time I had suffered significant bone demineralization and now I suffer with back and neck problems. Please, if you choose to continue consuming gluten, which I do not recommend, at least get tested regularly so that you won't get caught in the silent celiac trap down the road like I did. You really do not outgrow celiac disease. It is baked into the genes. Once the genes get triggered, as far as we know, they are turned on for good. Social rejection is something most celiacs struggle with. Being compliant with the gluten free diet places restrictions on what we can eat and where we can eat. Our friends usually try to work with us at first but then it gets to be a drag and we begin to get left out. We often lose some friends in the process but we also find out who really are our true friends. I think the hardest hits come at those times when friends spontaneously say, "Hey, let's go get some burgers and fries" and you know you can't safely do that. One way to cope in these situations is to have some ready made gluten-free meals packed in the fridge that you can take with you on the spot and still join them but eat safely. Most "real" friends will get used to this and so will you. Perhaps this little video will be helpful to you.  
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Outgrow celiac?

      By Riley. · Posted

      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.