Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Puts Things Into Perspective

Bonnie

By Bonnie
in Coping with Celiac Disease

Recommended Posts

Bonnie Explorer
Bonnie
Posted

Hi guys,

Probably shouldn't be posting this but I'm in need of a bit of support right now and I've had so much from this forum re my gluten problem.

I lost my 26 year old brother 3 and a half weeks ago. He had a motorbike accident, hit a tree, had brain surgery and passed away the next day.

I'm devastated. Trying to carry on and be strong for my 2 sisters, parents and my children.

I have been so self-obsessed and feeling sorry for myself because of Celiac Disease. So I can't eat gluten - so what?

This just puts everything into perspective.

Thanks for reading guys, just feeling really sad.

Yvonne

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debbiewil Rookie
debbiewil
Posted

Oh honey,

I'm so sorry to hear that. You're too far away for a real hug, but a cyber hug was just sent your way.

And I know just what you mean.

Debbie

lovegrov Collaborator
lovegrov
Posted

I'm so sorry to hear about your brother. A sudden death like this to someone so young and so close definitely puts a lot of things in perspective.

If you all can, take turns being strong. Everybody needs to grieve and everybody needs somebody to lean on. Just when you need help the most, everybody close to you needs the same support.

Your brother will be your first and last thought every day for years. It does slowly get better with time, although I know that's hard to imagine right now.

richard

KaitiUSA Enthusiast
KaitiUSA
Posted

I am so sorry to hear that :(

If you ever need someone just to talk to you are welcome to contact me anytime...I will keep you and your family in my prayers...hang in there :)

luvs2eat Collaborator
luvs2eat
Posted

Heartfelt prayers yours and your family's way.

skbird Contributor
skbird
Posted

I'm very sorry to hear your news, Yvonne. I have a younger brother, I can't imagine losing him.

I hope you continue to get support here, I think it's a good thing you reached out with this.

Take care and I will be thinking of you.

Stephanie

Guest nini
Guest nini
Posted

huge {{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}}}being sent your way, losing a loved one is never easy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Yvonne,

I'm very sorry to hear of the death of your brother. This must be a hard time for you and your family. We are all thinking of you. Please keep us updated on how you are doing.

Take care,

Laura

taweavmo3 Enthusiast
taweavmo3
Posted

I just wanted to say how sorry I am about the loss of your brother. Lean on your family, and support each other. I lost a sister 15 years ago, and I remember thinking the hurt would never go away. In time it has, but I still think about her everyday. Take care, and big hugs and prayers for you and your family.

nettiebeads Apprentice
nettiebeads
Posted

It's very okay for you to post here asking for support.

I'm very sorry to hear of your tragic loss. You and your family will be in my prayers.

jenvan Collaborator
jenvan
Posted

Yvonne-

so so sorry to hear that... i can't imagine losing my brother. i am saying a prayer for you today... it is strange...a friend of mine lost her son about 2 weeks ago from a motorcycle accident, he was probably close to your brother's age. hope you can draw hope from fond memories of him...

Noelle126 Apprentice
Noelle126
Posted

I'm so sorry to hear about your loss. Lots of hugs and prayers to you and your family!

Kasey'sMom Enthusiast
Kasey'sMom
Posted

Yvonne,

You and your family are in my thoughts and prayers as well. Please feel free to PM or e-mail me anytime you just need to talk.

jerseyangel Proficient
jerseyangel
Posted
Hi guys,

Probably shouldn't be posting this but I'm in need of a bit of support right now and I've had so much from this forum re my gluten problem.

I lost my 26 year old brother 3 and a half weeks ago.  He had a motorbike accident, hit a tree, had brain surgery and passed away the next day.

I'm devastated. Trying to carry on and be strong for my 2 sisters, parents and my children. 

I have been so self-obsessed and feeling sorry for myself because of Celiac Disease.  So I can't eat gluten - so what?

This just puts everything into perspective.

Thanks for reading guys, just feeling really sad.

Yvonne

<{POST_SNAPBACK}>

jerseyangel Proficient
jerseyangel
Posted

Yvonne, Please accept my deepest sympathy and prayers for you and your family.

fisharefriendsnotfood Apprentice
fisharefriendsnotfood
Posted

I'm so sorry. I agree and hope the best for you.

-Jackie

aikiducky Apprentice
aikiducky
Posted

Yvonne, I wanted to add my condolences, and cyber hugs from here too. I'm so sorry to hear you lost your brother. Take care of yourself, too, not just the family!

Pauliina

elisabet Contributor
elisabet
Posted

Dear Yvonne,I wish I were there and we could talk more.

HUGS !

paw Apprentice
paw
Posted

Yvonne, I am very sorry about the loss of your brother. Take care of yourself right now and try to keep eating healthy so you don't get sick. ((hugs))

klemmen Rookie
klemmen
Posted

I am so sorry that your brother has been taken away, i lost my big brother one year ago when he was 20, so i no a little bit of your pain and i really am sending you so much love. I no you said you are trying to be strong for your family but look after yourself too, if you ever need to talk feel free to email me. and yes it does put everything into perspective...

all my love and strength for you

xxxxx

bmorrow Rookie
bmorrow
Posted

Yvonne,

I am very sorry to hear about the loss of your brother. It is always difficult to lose a loved one and makes everything else not seem important. Please take care of yourself and remember that this group does care.

tarnalberry Community Regular
tarnalberry
Posted

My condolences to you and your family. Losing a loved one is hard, all the more so when it's sudden and unexpected.

ILOVEOMC Enthusiast
ILOVEOMC
Posted

Yvonne,

I am sorry that this happened to your brother and your family. These things are hard to understand but hopefully your friends and others will surround you with the love and support you need. You will be in my prayers as I ask God to bring you strength, comfort, and peace during this difficult time. Hang in there and take care.

Claire Collaborator
Claire
Posted

So sorry to here this. Loss is tough.

You had a brother for many years. Some of us have never had that experience. That too, in a very different way, is a loss.

Feel you sorrow but be grateful too. You had him for all those years.

Take care. There are many prayers for you coming from all of us who have written here. Claire

Bonnie Explorer
Bonnie
Posted
  • Author

Thanks so much for all the responses. I was overwhelmed this morning at how many there were and have been sitting here in tears reading them.

In tears but they were a comfort and just what I needed.

Thanks for your prayers everyone. My faith has helped me a lot the past few weeks. I know God had a reason for taking my brother even if I don't know what it is. He was such a good boy, spoilt rotten being the only boy with 3 sisters but we adored him. He was the kind of person who never had a bad word to say about anyone.

Its true what they say - only the good die young.

Thanks again everyone - better stop crying now and get some work done!

You guys are very special and your messages are genuine.

P.S. Only good thing about all of this is that I haven't been eating much so I haven't had any bloating for a while! Ha ha.

Yvonne

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.