Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Found Out - Little Bro Has A Brain Tumor


ShayFL

Recommended Posts

ShayFL Enthusiast

Hey everyone....I just found out my little bro has a brain tumor. It is on his pituitary and they suspect it is "benign" even though it has completely messed him up physically and caused depression. His hormones are a mess....so I dont see it as "benign". They are still running tests. They put him on medication immediately to "shrink" the tumor and it is making him quite ill.

He is young at 36 and has a wife and autistic 10 year old son who thinks the sun and moon revolve around "Daddy". He is such a great guy and it breaks my heart to see him go through this.

Prayers needed and greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nikki-uk Enthusiast

I'm so sorry to hear this :(

My thoughts are with you.

Lisa Mentor

So sorry about your brother. I hope he has a speedy recovery.

jerseyangel Proficient

Oh my God, Shay--I'm so sorry to hear this. I will most definately keep your brother and his family in my thoughts and prayers. Keep us posted.

MELINE Enthusiast

I am so sorry Shayfl.....I really don't know what to say. My prayers are with your brother and his family. You have to support him and be strong for him. I can't even imagine how painful this must be. Keep us informed about his progress. Iknow many people who went through really difficult situations and are healthy now (leuchemia...) so please have faith.

Mother of Jibril Enthusiast

Hi Shay,

I'm SO sorry. That's a very difficult thing to go through at any time of the year. Hopefully the doctors can figure this out and he'll be on the road to much better health.

My prayers are with you and your brother!

lizard00 Enthusiast

So sorry to hear that Shay!! I hope that the outlook is promising and that your brother recovers speedily!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

Prayers sent!

mommida Enthusiast

My prayers are with your brather and family and friends.

Laura

ShayFL Enthusiast

Thank you everyone!! I just spoke with him in depth. He has to take the medication until March when they will do another MRI to see if the tumor is "shrinking". It is not a secreting tumor, it is just putting pressure on the pituitary and causing hormonal defects.

Thank you for your prayers. We need em!!!

frec Contributor

I'll be praying...

ang1e0251 Contributor

I'm praying for major tumor shrinkage and a Christmas miracle! Please feel all the healing prayers sent his way.

flourgirl Apprentice

You have my prayers, too, Shay! Not only for a miraculous recovery and return to full good health, but for a happy, holy Christmas season for your family...especially for kids. Hang onto your hope, and circle yourselves with love....T

blueeyedmanda Community Regular

My thoughts are with your family and do hope your brother well.....

MyMississippi Enthusiast

My daughter-in-law just had surgery last month for the same thing---- She came thru the surgery fine----- And the tumor was benign just as they suspected.

Amazing how resiliant the human body is ---- and there is awesome medical technology and skill these days.

Will be praying for your brother.

luciddream928 Explorer

I'm so sorry, Shay. You and your family are in my thoughts and prayers!

Blessings,

Rachel

neesee Apprentice

I'm sorry Shay. I'm adding my prayers for your brother too!

neesee

home-based-mom Contributor
Prayers needed and greatly appreciated.

You got 'em.

DingoGirl Enthusiast

My prayers and hope also! :)

ksymonds84 Enthusiast

My prayers are with you and your brother Shay.

Jenny (AZ via TX) Enthusiast

Shay, I'm so sorry to hear this. My thoughts and prayers are with you and your brother and his family. Hang in there. I know this is hard on you too.

ShayFL Enthusiast

Thank you again everyone!! It is the waiting that is so hard. March seems such a long way off. If he needs the surgery that will be another hurdle as he lives in a very rural part of GA. Tallahassee would be the closest for him. I know how important a good surgeon is!!

ravenwoodglass Mentor

Shay, Hopefully the doctors feelings are right and this will be benign. I will keep you guys in my prayers.

henny Explorer

best wishes for a quick, uncomplicated, and complete recovery!

have faith that this is treatable and thank goodness they found it!

cmom Contributor

My prayers are with you, Shay. My stepson had a brain tumor (and 2 cysts) when he was around 15. Once it was discovered, they operated within the week. He is fine now (age 36) and just got married Nov. 15. Have faith and think positive!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.