Scott Adams
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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995
Everything posted by Scott Adams
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Worthless Doctors
Scott Adams replied to DJFL77I's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oh well, at least you're hopefully now on the mend! Best to know and deal with it. After a while the diet will be second nature, and you will be happy to have your health. -
Hi @canadiangeek, welcome to the forum! You might find these articles helpful:
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Topical Itch Relief - other than Dapson
Scott Adams replied to MinNYC's topic in Dermatitis Herpetiformis
Hi @Sharron robinson, welcome to the forum! Have you tried some of the things mentioned in this thread? You probably know this already, but maintaining a 100% gluten-free diet is crucial. As a last resort there is Dapsone, which works, but can have some negative side-effects. -
Yes, it may also make sense to check your liver enzymes, as well as thyroid function, as celiac disease can cause issues with both.
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Celiac.com 12/11/2020 - Researchers and clinicians have recently begun to understand dermatitis herpetiformis as an external, skin-affected form of celiac disease. Over 90% of people with DH have an associated gluten-sensitive enteropathy... -
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Celiac.com 12/10/2020 - If you're looking for a tasty gluten-free steak sauce to make at home, then this delicious tangy, savory marriage of butter, horseradish, mustard and fresh herbs is the way to go. Gluten-Free Steak Sauce Ingredients... -
Worthless Doctors
Scott Adams replied to DJFL77I's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, liver issues are fairly common, and if related, can go away on a gluten-free diet. Here are the articles we have on the topic: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/liver-disease-and-celiac-disease/ -
At this point it would be a good idea to request a check of your blood vitamin/mineral levels, especially: "Specifically, for vitamin A, 7.5% of patients showed deficient levels, for vitamin B6 14.5%, folic acid 20%, and vitamin B12 19%. Likewise, 67% of celiac patients showed zinc deficiency, 46% showed decreased iron storage, and 32% had anaemia."
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The average time for full recovery from celiac disease is two years. It's great that your antibodies are going down, and if your diet is 100% gluten-free, in theory they should get close to zero.
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Worthless Doctors
Scott Adams replied to DJFL77I's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, many are under a lot of stress lately, and not used to practicing medicine during a pandemic. What were the results? -
Insomnia would not be a typical symptom of celiac disease, but in some people celiac disease manifests itself as a nerve disease, and some people can get ataxia, seizures, headaches, etc. It's possible that it is related, and if so, it should get better after time on a gluten-free diet. Have you tried exercise and meditation?
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I think you should re-check your diet to make sure it's 100% gluten-free, as it sounds like you may have been getting some contamination.
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CBD Oil
Scott Adams replied to CatcherInTheRye's topic in Gluten-Free Foods, Products, Shopping & Medications
You would likely need to look at their web pages, and perhaps ask them directly, but again, I'm not sure why gluten might be added to them. -
Celiac.com 12/09/2020 - Research has shown that oral Bifidobacterium infantis Natren Life Start super strain (NLS-SS) can reduce gastro-intestinal symptoms in untreated celiac disease patients. Because the reduction in symptoms was not... -
If you want to look more at the recent study, it is from the Mayo clinic:
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Full recovery can take up to two years, IF you are 100% gluten-free, and that is easier said than done. Re-check you current diet to make sure there is zero gluten, and you should not eat out until you fully recover if you can avoid it. Some celiacs need to go on a FODMAP diet to get relief, or eliminate other foods they may have issues with, so a food diary...
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Food For Life Gluten-Free?
Scott Adams replied to dappledorca's topic in Gluten-Free Foods, Products, Shopping & Medications
They are indeed a sponsor, and have been around for over 20 years and are one of the original prepared gluten-free breads. Many of their breads are also made using sprouted gluten-free breads. I've eaten their breads for many years without any issues, and I've not seen any complaints, product recalls, or other issues about the company. -
Yes, many people get diagnosed when older, and still manage to have a 2nd "new" and long life afterwards. Many never get diagnosed, yet still live a long life, albeit it could be an uncomfortable one if they are symptomatic. As for @AndrewNYC being 104, wow, just wow!
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Mutiple biopsies
Scott Adams replied to El10's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Is it possible that they did not specifically look for celiac disease during the first endoscopy? To diagnose celiac disease they typically take at least 4 samples from very specific areas, and may not have done that in your case. I would ask. Have you had a celiac disease blood screening done? This is really the first step, before a biopsy is done... -
It's great to hear that you're health is improving. If a higher percentage of the calories you are eating come from fat and protein, it will make you leaner (this is the formula for the Atkins diet). To increase your weight one typically needs to increase the percentage of carbohydrates in their diet, but many carbs are not healthy, so proceed with caution...
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CBD Oil
Scott Adams replied to CatcherInTheRye's topic in Gluten-Free Foods, Products, Shopping & Medications
I can't think of a reason that CBD oil would contain any gluten, but then again, there are 100's of foods that shouldn't contain hidden gluten, but do. I suppose they could put cheaper wheat germ oil in it to be more profitable by diluting the product. I do think many celiac could benefit from using CBD oil, as it has many benefits, especially for those whose... -
Among first degree relatives who are female studies have shown that the odds of your mother also having it are over 44%. All first-degree relatives of celiacs should also be screened, even if they don't have symptoms.
