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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,259 topics in this forum

  1. ruca55
    MaryJones2

    Ingredients For Prescription Meds

    By ruca55, Last action:
    • 7 replies
    • 1.2k views
    • MaryJones2
    • MaryJones2
  2. anna34
    lizard00

    Help With Test Results

    By anna34, Last action:
    • 1 reply
    • 1.3k views
    • lizard00
    • lizard00
  3. alihawk
    Meg123

    Confused About Blood Work

    By alihawk, Last action:
    • 10 replies
    • 4.3k views
    • Meg123
    • Meg123
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  4. Keggy

    Gluten, Thyroid And Blood Clot Go Together?

    By Keggy, Last action:
    • 6 replies
    • 7.8k views
    • Keggy
    • Keggy
  5. 2johndeereboys
    ravenwoodglass

    Gave In And Called Dr For Results..................

    By 2johndeereboys, Last action:
    • 18 replies
    • 2.4k views
    • ravenwoodglass
    • ravenwoodglass
  6. CJ2011
    ravenwoodglass

    2.5 Weeks Into Gluten-Free - Now Feeling Weird...

    By CJ2011, Last action:
    • 3 replies
    • 2k views
    • ravenwoodglass
    • ravenwoodglass
  7. Ibz101
    ravenwoodglass

    Gluten Intolerant (But Having New Symptoms?)

    By Ibz101, Last action:
    • 2 replies
    • 1.2k views
    • ravenwoodglass
    • ravenwoodglass
  8. unknown
    mushroom

    Thank You!

    By unknown, Last action:
    • 2 replies
    • 1.1k views
    • mushroom
    • mushroom
  9. Pale Phoenix
    nora-n

    Interpreting Celiac Testing Results

    By Pale Phoenix, Last action:
    • 5 replies
    • 1.8k views
    • nora-n
    • nora-n
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  11. Gautam
    Skylark

    Tissue Transglutam Ab Iga 15

    By Gautam, Last action:
    • 2 replies
    • 2.2k views
    • Skylark
    • Skylark
  12. quincy
    ravenwoodglass

    One Year Later

    By quincy, Last action:
    • 3 replies
    • 1.1k views
    • ravenwoodglass
    • ravenwoodglass
  13. Sitius

    Could This Be Celiac?

    By Sitius, Last action:
    • 9 replies
    • 2.4k views
    • Sitius
    • Sitius
  14. 2johndeereboys

    Mouth Sores Anyone?

    By 2johndeereboys, Last action:
    • 2 replies
    • 1.3k views
    • 2johndeereboys
    • 2johndeereboys
  15. asickdaddy
    mommida

    Gluten Is A Drug.. Its A Little Addicting For Sure.

    By asickdaddy, Last action:
    • 6 replies
    • 1.6k views
    • mommida
    • mommida
  16. thedistrict3
    Meg123

    Please Take A Look At My Symptoms!

    By thedistrict3, Last action:
    • 2 replies
    • 1.4k views
    • Meg123
    • Meg123
  17. kaygato
    Meg123

    Possible Gluten Intolerance? Also, Is Enterolabs A Good Idea?

    By kaygato, Last action:
    • 3 replies
    • 1.1k views
    • Meg123
    • Meg123
  18. 9na

    Could This Really Be Celiac?

    By 9na, Last action:
    • 5 replies
    • 1.6k views
    • 9na
    • 9na
  19. redheadsmom

    Getting Blood Work Done/symptoms

    By redheadsmom, Last action:
    • 0 replies
    • 1.1k views
    • redheadsmom
    • redheadsmom
  20. collgwg
    mommida

    Where Do I Go From Here

    By collgwg, Last action:
    • 6 replies
    • 1.3k views
    • mommida
    • mommida
  21. forhimp
    Skylark

    Do I Have Celiac

    By forhimp, Last action:
    • 1 reply
    • 1.2k views
    • Skylark
    • Skylark
  22. sreese68

    Symptom(S) That Point To Celiac And Not Just Intol?

    By sreese68, Last action:
    • 3 replies
    • 1.2k views
    • sreese68
    • sreese68
  23. wildwood
    frieze

    Gene Testing

    By wildwood, Last action:
    • 4 replies
    • 2.2k views
    • frieze
    • frieze
  24. vawksel
    Mari

    Is Self-Diagnosis Of Gluten Intolerance Possible? My Symptoms, And What I Hope To Fix.

    By vawksel, Last action:
    • 3 replies
    • 3.5k views
    • Mari
    • Mari
  25. asickdaddy
    sa1937

    When You Quit The Gluten Did Your Body Detox It Naturally? Via The Bathroom?

    By asickdaddy, Last action:
    • 3 replies
    • 2.6k views
    • sa1937
    • sa1937
  26. norazoey
    cahill

    Gluten Problem? Affect Thyroid Function

    By norazoey, Last action:
    • 11 replies
    • 5.2k views
    • cahill
    • cahill

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  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      35

      Struggling to get into a good pattern

      Yep,yep,yep, called it from experience. I've lived through SIBO and Candida myself. I get a different sorts of reactions to dairy, high sugar consumption, and gluten. I react to Casein, the protein in dairy. Try the AIP diet. Dr. Sarah Ballantyne designed it and is a Celiac herself. Her book, the Paleo Approach, has been most helpful.
    2. knitty kitty
      - knitty kitty replied to MMeade's topic in Coping with Celiac Disease
      7

      Gluten Allergy

      Yes, I know. Without sufficient Folate, Cobalamine, and Pyridoxine, the body can't get rid of high homocysteine levels. High homocysteine levels make one restless, interferes with sleep and resembles ADHD symptoms. High homocysteine levels occur in Celiac Disease. Chronic high histamine levels lead to high homocysteine levels. Impact of supplementation...
    3. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      35

      Struggling to get into a good pattern

      You called it @knitty kitty. I went to another health care provider for another opinion, and based on some tests they did, they suggested I might also be dealing with a fungal issue (candida and/or mold). I saw that you mentioned before in this chain that some people on this forum also get Candida infections. So it seems that I am possibly dealing that...
    4. lmemsm
      - lmemsm replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      38

      Supplements for those Diagnosed with Celiac Disease

      I'm concerned about calcium. I don't think I'm getting enough especially since I ended up having to get off dairy when I went gluten free. However, if you have too much calcium, it can deposit in the wrong places and you can get thinks like bone spurs. I'd like find a decent supplement for that. Was thinking of looking into the algae based calcium supplements...
    5. lmemsm
      - lmemsm posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      bread

      Wanted to tell someone, I finally made an edible gluten free bread. It took me several hours to make and it didn't taste like what I was trying to make, but it did taste like a bread. Was looking all over for bread machine recipes and I ran across this one on the Internet: https://www.snapcalorie.com/recipes/gluten_free_oat_challah_bread_machine.html ...
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  • Posts

    • knitty kitty
      Struggling to get into a good pattern

      By knitty kitty · Posted

      Yep,yep,yep, called it from experience.  I've lived through SIBO and Candida myself.  I get a different sorts of reactions to dairy, high sugar consumption, and gluten.  I react to Casein, the protein in dairy.   Try the AIP diet.  Dr. Sarah Ballantyne designed it and is a Celiac herself.  Her book, the Paleo Approach, has been most helpful.
    • knitty kitty
      Gluten Allergy

      By knitty kitty · Posted

      Yes, I know.   Without sufficient Folate, Cobalamine, and Pyridoxine, the body can't get rid of high homocysteine levels.  High homocysteine levels make one restless, interferes with sleep and resembles ADHD symptoms.  High homocysteine levels occur in Celiac Disease.  Chronic high histamine levels lead to high homocysteine levels. Impact of supplementation with vitamins B6 , B12 , and/or folic acid on the reduction of homocysteine levels in patients with mild cognitive impairment: A systematic review https://pubmed.ncbi.nlm.nih.gov/34058062/ Homocysteine, Pyridoxine, Folate and Vitamin B12 Levels in Children with Attention Deficit Hyperactivity Disorder https://pubmed.ncbi.nlm.nih.gov/30267523/ Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/ Prevalence of hyperhomocysteinemia in adult gluten-sensitive enteropathy at diagnosis: role of B12, folate, and genetics https://pubmed.ncbi.nlm.nih.gov/15952099/ Homocysteine, Vitamins B6 and Folic Acid in Experimental Models of Myocardial Infarction and Heart Failure-How Strong Is That Link? https://pubmed.ncbi.nlm.nih.gov/35454125/
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      You called it @knitty kitty.  I went to another health care provider for another opinion, and based on some tests they did, they suggested I might also be dealing with a fungal issue (candida and/or mold).  I saw that you mentioned before in this chain that some people on this forum also get Candida infections.  So it seems that I am possibly dealing that issue in my gut as well. I think some of the symptoms that I've been not able to understand now make a lot of sense within this context (such as why eating dairy and sugar sometimes causes me to get headaches, joint pain, chills, feel like I have the flu... if these things are making the candida infection worse by feeding the candida, and then my body responds by trying to fight it off, then I basically am fighting off an infection, which is exactly what it feels like).  The flu-like reaction that I get when I eat dairy is a distinct reaction than the one I get from getting glutened (which is also bad, but different: headache, sharp abdominal pains, gas, diarrhea). That's what made me think there was something else at play. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I'm concerned about calcium.  I don't think I'm getting enough especially since I ended up having to get off dairy when I went gluten free.  However, if you have too much calcium, it can deposit in the wrong places and you can get thinks like bone spurs.  I'd like find a decent supplement for that.  Was thinking of looking into the algae based calcium supplements since they're more natural than some of the others available, but seem rather expensive.  When possible, I try supplement with food sources.  One or two Brazil nuts usually have the full RDA for selenium.  One Barbados cherry has the daily RDA for vitamin C.  I also use seaweed to help supplement iodine since I don't use iodized salt.
    • lmemsm
      bread

      By lmemsm · Posted

      Wanted to tell someone, I finally made an edible gluten free bread.  It took me several hours to make and it didn't taste like what I was trying to make, but it did taste like a bread.  Was looking all over for bread machine recipes and I ran across this one on the Internet:  https://www.snapcalorie.com/recipes/gluten_free_oat_challah_bread_machine.html  Used it as a starting point, but I swapped out the tapioca with arrowroot and the xanthan gum with guar gum and glucomannan.  I also made it using the gluten-free pizza mode on my Panasonic bread machine and then took the batter out and put it in a bread mold to give it some shape.  I let it rise another 20 minutes and baked it at 350 degrees Fahrenheit for 20 minutes in the oven.
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