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Recent Activity
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- knitty kitty replied to Colleen H's topic in Coping with Celiac Disease2Ibuprofen
For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect. These three B vitamins together work way better than those over the counter pain relievers. Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed. Thiamine will also help... -
- knitty kitty replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Follow up endoscopy and biopsy 14 years post celiac diagnosis
@stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements? Weight loss and failure to thrive are two symptoms of thiamine insufficiency. Thiamine deficiency symptoms are not recognized as such by doctors. I experienced similar symptoms when I became malnourished. Thiamine deficiency symptoms can become worse... -
- trents replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8Follow up endoscopy and biopsy 14 years post celiac diagnosis
Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers. -
- stephaniekl replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8Follow up endoscopy and biopsy 14 years post celiac diagnosis
We have. She is so limited as to what she can eat. She has a nutritionist, but they are even at a loss. Right now, her pain is so significant that she can only eat 5-10 bites a meal. We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot. She also is positive for 3 tickborne illnesses. Thanks for your... -
- RMJ replied to stephaniekl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8Follow up endoscopy and biopsy 14 years post celiac diagnosis
A much better suggestion than that of the new doctor!
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By knitty kitty · Posted
For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect. These three B vitamins together work way better than those over the counter pain relievers. Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed. Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics -
By knitty kitty · Posted
@stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements? Weight loss and failure to thrive are two symptoms of thiamine insufficiency. Thiamine deficiency symptoms are not recognized as such by doctors. I experienced similar symptoms when I became malnourished. Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally. Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies. Thiamine B 1 works with the other B vitamins and magnesium. Thiamine and Niacin B 3 help improve Gerd. All the B vitamins are frequently low due to malabsorption. Vitamin D will help calm the immune system. Thiamine helps the immune system fight off viruses like those tick borne illnesses. Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable. I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing. A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency. A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties. I take it for back pain. Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53]. -
Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
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By stephaniekl · Posted
We have. She is so limited as to what she can eat. She has a nutritionist, but they are even at a loss. Right now, her pain is so significant that she can only eat 5-10 bites a meal. We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot. She also is positive for 3 tickborne illnesses. Thanks for your help! -
A much better suggestion than that of the new doctor!
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