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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- knitty kitty replied to MelissaClinPsyD's topic in Coping with Celiac Disease7Refractory Coeliac Disease research to reduce anxiety
@MelissaClinPsyD, I hope you investigate whether your participants take nutritional supplements. The group of eight B vitamins, Vitamin D and magnesium have a big impact on mental health, especially depression. I know correcting nutritional deficiencies were most important in my physical and mental health recovery! There's more information and... -
- knitty kitty replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
Lost
@Jmartes71, Please do get checked for nutritional deficiencies. A good B Complex, Vitamin D, Benfotiamine (a form of Thiamine Vitamin B1 that promotes intestinal healing), Vitamin D and magnesium are a good way to start. Correcting nutritional deficiencies with Thiamine supplements (like Benfotiamine), B Complex, and Vitamin D were my miracles... -
- knitty kitty replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
Waiting on biopsy after positive bloodwork, but also not really believing this is real
@Alibu, I think you should send the National Institute of Health peer reviewed studies I linked to your doctors. Some doctors don't keep abreast of the recent updates to Celiac diagnosis. They may still be operating under the old idea of waiting until intestinal damage is at a Marsh score of 3C or 4 (complete villus atrophy) before diagnosis of Celiac... -
- Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Waiting on biopsy after positive bloodwork, but also not really believing this is real
@knitty kitty Thank you for your response!! So do you think my doctor might still diagnose celiac even with the negative biopsy? At this point I'm just wondering like do I have to be super careful when I eat places for cross-contamination, or do I just have to eat gluten free and not worry about the damage so much as the symptoms, you know? Like with celiac... -
- knitty kitty replied to Gary Libby's topic in Gluten-Free Recipes & Cooking Tips4
Newly Diagnosed
Welcome to the forum, @Gary Libby! Have you talked to your doctors and nutritionist about checking for nutritional deficiencies and supplementing with vitamins and minerals while you're healing? Malabsorption caused by the inflammation and damage of celiac disease can deplete our stored vitamins, making us feel poorly the majority of the time...
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By knitty kitty · Posted
@HilaryM, Are you eating a diet high in carbohydrates? You might find a Paleo diet easier on your digestive system. A Paleo diet can promote changes in intestinal flora, effectively starving out SIBO bacteria. Be wary of gluten free processed foods. Many are not enriched or fortified with vitamins and minerals lost in processing like gluten containing foods are. Talk to your doctor and nutritionist about supplementing with vitamins and minerals while healing. Vitamins are organic compounds that the body cannot make and so must get from the diet. Supplementing ensures our bodies get a fair chance to absorb the essential nutrients it needs. -
By knitty kitty · Posted
@MelissaClinPsyD, I hope you investigate whether your participants take nutritional supplements. The group of eight B vitamins, Vitamin D and magnesium have a big impact on mental health, especially depression. I know correcting nutritional deficiencies were most important in my physical and mental health recovery! There's more information and my mental health struggles in my blog. Keep us posted on your progress! -
By knitty kitty · Posted
@Jmartes71, Please do get checked for nutritional deficiencies. A good B Complex, Vitamin D, Benfotiamine (a form of Thiamine Vitamin B1 that promotes intestinal healing), Vitamin D and magnesium are a good way to start. Correcting nutritional deficiencies with Thiamine supplements (like Benfotiamine), B Complex, and Vitamin D were my miracles. How are you doing? Sending prayers. -
By knitty kitty · Posted
@Alibu, I think you should send the National Institute of Health peer reviewed studies I linked to your doctors. Some doctors don't keep abreast of the recent updates to Celiac diagnosis. They may still be operating under the old idea of waiting until intestinal damage is at a Marsh score of 3C or 4 (complete villus atrophy) before diagnosis of Celiac is made. Better to diagnose before it gets that severe. Much of the damage to the small intestines is microscopic and NOT visible to the naked eye. Since you've got Celiac genes, it would be beneficial if you kept to a strict gluten free diet. Exposure to gluten and an environmental stress (like an infection or physical stress or emotional trauma) are needed for the Celiac genes to become activated. If you don't have active Celiac now, a gluten free diet now will help prevent developing it in future. -
@knitty kitty Thank you for your response!! So do you think my doctor might still diagnose celiac even with the negative biopsy? At this point I'm just wondering like do I have to be super careful when I eat places for cross-contamination, or do I just have to eat gluten free and not worry about the damage so much as the symptoms, you know? Like with celiac I know my body is attacking itself and doing damage (although apparently not haha) and with an intolerance it certainly doesn't feel good, but it's not doing the same kind of damage, you know? I sent a message to the doctor asking if I should do a video capsule endoscopy or if we should have a second opinion on the pathology but ugh, I just want a clear answer so whatever it is, I can move forward!!
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