Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctors

Share experiences with doctors, how to find a good one, and avoid the bad ones.


1,805 topics in this forum

  1. heather Goble
    • 6 replies
    • 2.8k views
  2. BlakeNYC
    Jungle
    • 2 replies
    • 4k views
  3. lacey
    ravenwoodglass
    • 1 reply
    • 1.3k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. kdonov2
    • 3 replies
    • 3.9k views
  6. PBKKBecker
    jststric
    • 1 reply
    • 1.1k views
  7. goodney
    • 0 replies
    • 871 views
  8. Wife&Mom
    twtycatz
    • 2 replies
    • 1.2k views
  9. mommysboys2
    SaraKat
    • 2 replies
    • 1.5k views
  10. ECUmom3
    Stellar003
    • 1 reply
    • 1.9k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. Joni63
    • 0 replies
    • 1.6k views
  13. ikayak
    WhenDee
    • 29 replies
    • 6.5k views
  14. Igg postive
    • 0 replies
    • 2.1k views
  15. Loobiej
    • 0 replies
    • 1.1k views
  16. healing123
    raeskids
    • 3 replies
    • 1.5k views
  17. as-you-wish
    • 0 replies
    • 1.1k views
  18. cahill
    Roda
    • 3 replies
    • 2k views
  19. norahsmommy
    Cypressmyst
    • 3 replies
    • 1.5k views
  20. dkhb2000
    imvein
    • 4 replies
    • 1.7k views
  21. goldensea
    Igg postive
    • 3 replies
    • 1.9k views
  22. luckymac
    • 3 replies
    • 2.6k views
  23. salexander421
    Robert16
    • 4 replies
    • 1.5k views
  24. Rowena
    Islander
    • 5 replies
    • 2.1k views
  25. Liddle4
    salexander421
    • 3 replies
    • 2.9k views
  26. jensey
    Wasabi
    • 5 replies
    • 1.9k views
  27. jlee2
    • 0 replies
    • 1.1k views

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,566
    • Most Online (within 30 mins)
      7,748

    Silver82
    Newest Member
    Silver82
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your genetic test results confirm that you carry the highest-risk markers for celiac disease, specifically the HLA-DQ2 haplotype (while being negative for HLA-DQ8). The fact that both HLA-DQA1*05 and HLA-DQB1*0201 appear twice means you inherited identical copies from each parent, making you homozygous for these genes. This double dose of the DQ2.5 haplotype is significant because it indicates an even stronger genetic predisposition to celiac disease compared to those who only inherit one copy. Research suggests that people with this homozygous pattern may have a higher likelihood of developing the disease, potentially more severe immune responses to gluten, and a stronger association with dermatitis herpetiformis (which aligns with your diagnosis). While this genetic profile doesn’t guarantee worse symptoms, it does reinforce why strict gluten avoidance is critical for you. Since you’re already diagnosed, the main takeaway is that your results explain your biological susceptibility—no further genetic counseling is needed unless you have family planning questions. The repeating variants simply mean both parents passed you the same high-risk alleles, which is why your body reacts so strongly to gluten. Ultimately, your diagnosis and management remain the same, but this insight helps underscore the importance of lifelong dietary diligence.
    • Scott Adams
      It sounds like you and your daughter are navigating celiac disease with a lot of care and dedication, and it’s wonderful that you’re prioritizing her health and growth during this critical time. Since her antibody levels and growth have plateaued, tightening up her diet by avoiding eating out (except at dedicated gluten-free places) is a smart move—even if it’s challenging socially. Many parents of celiac kids report significant growth spurts once gluten exposure is minimized, so there’s hope she’ll catch up if her levels improve. As for the future, while her growth window closing may reduce some risks, celiac is lifelong, and staying as strict as possible will likely always be best to avoid long-term complications, even if occasional cautious outings become manageable later. Navigating this with a teenager is tough, especially with spontaneous social events. For unplanned outings, keeping safe snacks (like GF protein bars, nuts, or fruit) in her bag or your car can help. To boost nutrition, try sneaking in variety where you can—like lentil or chickpea pasta instead of rice pasta, or adding veggies and proteins to her favorite dishes. Involving her in meal planning might help with pickiness, and connecting with other celiac families or support groups could provide social strategies and emotional support. It’s exhausting, but you’re doing an amazing job—your efforts now will set her up for a healthier future. Hang in there!
    • Scott Adams
      This is good news--I hope we can get this done on a national level!
    • Scott Adams
      I use a blender and have made various juice recipes over the years. 
    • captaincrab55
      Pharmacies personnel need training to prevent cross contamination.     
×
×
  • Create New...