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Recent Activity
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- trents replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Virus, celiac disease or both?
There are plenty of people with celiac disease walking around who are largely asymptomatic. I was one of them. We call them "silent celiacs" They don't seem to have GI distress or maybe it's so minor and infrequent it's not really noticeable. They can be in that state for years until the damage to the villi progresses to a critical point or they begin to... -
- Shining My Light replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Virus, celiac disease or both?
Hi @trents! I feel like relying to a super star with as much of your content I’ve read. Lol. I definitely don’t disagree with you but I think I’m so chicken about another EDG. What do you think about the EMA-IgA test? I’ve read so much at this point I don’t know if I trust anything completely. Even if everything said yes I would s... -
- trents replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Virus, celiac disease or both?
Welcome to the forum, @Shining My Light! It's good to be able to engage a secret "friend". I know you don't want to hear this, but with a positive tTG-IGA, a positive tTG-IGG and off and on GI distress, your next logical step would be to get an endoscopy done with a biopsy of the small bowel lining (duodenum and duodenum bulb) to check for villous atrophy... -
- knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease34
Supplements for those Diagnosed with Celiac Disease
It's not rocket science, like @Scott Adams says! My best advice is not to take Thiamine Mononitrate because the body doesn't absorb it well (only 30% is absorbed, less than that can be utilized). Thiamine Mononitrate is used in many multivitamin supplements because it's cheap and shelf stable, meaning it won't break down in storage on a store shelf... -
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease29
Refractory Celiac disease - what to do
I'm also already struggling to get the motivation to eat because of the anxiety around food, not being able to eat the things that I am craving, and the amount of time and effort that goes into preparing every single meal, so I worry that increasing the restriction will just make it harder and harder to eat. Thank you all for all the suggestions and...
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