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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- RMJ replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18Blood results
When you say the endoscopy showed potential flattening and atrophic villi, Is that the visual result and you’re still waiting for the pathology report on the biopsies? It is quite possible to have the endoscopy look ok and the biopsies show celiac damage. That happened at my last endoscopy. It is also quite possible to only have damage in some areas. ... -
- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18Blood results
So even though she was initially diagnosed with IBS, could that have been wrong and she has had coeliac all along even though the endoscopy only showed potential flattening and atrophy inD1. Plus one positive and one negative blood result.It’s so confusing for my old brain!!!! -
- NoGlutensToday posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Is Purito's Oat In Calming Gel Cream safe for celiacs?
I'm trying to figure out if Oat In Calming Gel Cream from Purito is safe to use as a moisturizer on my face. In particular, I'm not sure what to think about the oat seed water. Not sure if that should be considered safe or not. The full list of ingredients on their website are: Avena Sativa (Oat) Seed Water (77%), Butylene Glycol, Glycerin, 2,... -
- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18
Blood results
Aw thank you so much for replying so quickly. Just wish the endoscopy had been clearer but as you say she might be in the early stages although she’s had gastric intestinal symptoms for a few years now but was told it was IBS. She won’t get the results for about 12 weeks which is frustrating, so hopefully if she trials a gluten free diet things will hopefully imp... -
- trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18Blood results
Well, you've done both stages of testing now, the blood testing and the scope/biopsy so there is no reason to postpone trialing a gluten-free diet. And, yes, we get many reports on this forum from people with similar diagnostic experiences that leave them without desired clarity. My take would be your daughter is in the early stages of developing active celiac...
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When you say the endoscopy showed potential flattening and atrophic villi, Is that the visual result and you’re still waiting for the pathology report on the biopsies? It is quite possible to have the endoscopy look ok and the biopsies show celiac damage. That happened at my last endoscopy. It is also quite possible to only have damage in some areas. Hopefully her doctor took biopsies from the areas with potential flattening and atrophy.
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By Heatherisle · Posted
So even though she was initially diagnosed with IBS, could that have been wrong and she has had coeliac all along even though the endoscopy only showed potential flattening and atrophy inD1. Plus one positive and one negative blood result.It’s so confusing for my old brain!!!! -
By NoGlutensToday · Posted
I'm trying to figure out if Oat In Calming Gel Cream from Purito is safe to use as a moisturizer on my face. In particular, I'm not sure what to think about the oat seed water. Not sure if that should be considered safe or not. The full list of ingredients on their website are: Avena Sativa (Oat) Seed Water (77%), Butylene Glycol, Glycerin, 2,3-Butanediol, 1,2-Hexanediol, Aqua/Water, Ammonium Acryloyldimethyltaurate/VP Copolymer, Squalane, Hydroxyacetophenone, Carbomer, Dipotassium Glycyrrhizate, Panthenol, Tromethamine, Ethylhexylglycerin, Inulin Lauryl Carbamate, Sodium Surfactin, Beta-Glucan -
By Heatherisle · Posted
Aw thank you so much for replying so quickly. Just wish the endoscopy had been clearer but as you say she might be in the early stages although she’s had gastric intestinal symptoms for a few years now but was told it was IBS. She won’t get the results for about 12 weeks which is frustrating, so hopefully if she trials a gluten free diet things will hopefully improve even if only slightly. I know improvements aren’t likely to happen immediately -
Well, you've done both stages of testing now, the blood testing and the scope/biopsy so there is no reason to postpone trialing a gluten-free diet. And, yes, we get many reports on this forum from people with similar diagnostic experiences that leave them without desired clarity. My take would be your daughter is in the early stages of developing active celiac disease, perhaps transitioning from NCGS (Non Celiac Gluten Sensitivity) to celiac.
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