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Post Diagnosis, Recovery & Treatment of Celiac Disease

Discussions related to the recovery process after you've been diagnosed.


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    • cristiana
      We've definitely all had such thoughts.  But as Scott says, it does get easier with time.  I'm not sure where you are posting from but in England where I live, over the last ten years or so most things I missed at first now have gluten free substitutes.   I still miss Twix bars, and chocolate Penguins (a type of biscuit) but I'm hoping sooner or later someone will create a decent substitute for them! One thing that I remember my husband said to me when I was feeling down one day  was: "Why don't you try to think of all the things you can still eat, rather than the things you can't?"  The list is long, and it did help - sort of!  
    • Scott Adams
      It looks like they are naturally gluten-free, but not labeled gluten-free. https://www.quakeroats.com/products/hot-cereals/grits/instant-grits-plain
    • Scott Adams
      I’m so sorry you’re feeling this way—your emotions are completely valid. A celiac diagnosis, especially at your age, is a huge adjustment, and it’s okay to grieve the foods and conveniences you’ve lost. Even with a supportive partner (which is wonderful!), the mental toll is real. Many of us have been there, staring longingly at ‘forbidden’ foods while feeling isolated or frustrated. It does get easier with time, though. The initial shock fades, gluten-free substitutes become more familiar, and you’ll find new favorites. But please be gentle with yourself now. If the sadness feels overwhelming, talking to a therapist or joining a celiac support group (online or in-person) might help. You’re not alone in this—we’ve all had those ‘why me?’ moments. Sending hugs (and solidarity) your way.
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. 
    • Scott Adams
      While some radlers are made with gluten-free beer, many traditionally contain wheat-based beer, so it’s definitely good you double-checked. It’s surprising you didn’t have symptoms, but reactions can vary widely among celiacs. Some people are asymptomatic or have delayed reactions, while others feel effects immediately. Even if you didn’t notice symptoms, there could still be internal damage occurring, so it might be worth verifying the brand’s ingredients or contacting the manufacturer for clarity. In the future, sticking to certified gluten-free options or cider-based radlers could be a safer bet. Glad you’re feeling okay, but always better to err on the side of caution!
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