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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- dixonpete commented on dixonpete's blog entry in Pete Dixon4Father, it's been some time since my last hookworm larvae innoculation
I read a research article today about how hookworms are being considered as a standard of care of colitis. Dunno about them used for obesity treatment though. The first thing I did once I figured out I wasn't reacting to gluten anymore was to head for the bakery isle. It had been 13 years.. -
- RMJ commented on dixonpete's blog entry in Pete Dixon4Father, it's been some time since my last hookworm larvae innoculation
Dixonpete, I thought of you when I saw this article, although it may not have anything new for you. Worm inspired treatments inch towards the clinic -
- cristiana replied to wellthatsfun's topic in Coping with Celiac Disease3confirmed via biopsy, quite depressed
We've definitely all had such thoughts. But as Scott says, it does get easier with time. I'm not sure where you are posting from but in England where I live, over the last ten years or so most things I missed at first now have gluten free substitutes. I still miss Twix bars, and chocolate Penguins (a type of biscuit) but I'm hoping sooner or later someone...- 2
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- Scott Adams replied to Capt Jules's topic in Gluten-Free Foods, Products, Shopping & Medications1Quaker Instant Grits, gluten-free?
It looks like they are naturally gluten-free, but not labeled gluten-free. https://www.quakeroats.com/products/hot-cereals/grits/instant-grits-plain -
- Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease3
confirmed via biopsy, quite depressed
I’m so sorry you’re feeling this way—your emotions are completely valid. A celiac diagnosis, especially at your age, is a huge adjustment, and it’s okay to grieve the foods and conveniences you’ve lost. Even with a supportive partner (which is wonderful!), the mental toll is real. Many of us have been there, staring longingly at ‘forbidden’ foods while f...
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We've definitely all had such thoughts. But as Scott says, it does get easier with time. I'm not sure where you are posting from but in England where I live, over the last ten years or so most things I missed at first now have gluten free substitutes. I still miss Twix bars, and chocolate Penguins (a type of biscuit) but I'm hoping sooner or later someone will create a decent substitute for them! One thing that I remember my husband said to me when I was feeling down one day was: "Why don't you try to think of all the things you can still eat, rather than the things you can't?" The list is long, and it did help - sort of!
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By Scott Adams · Posted
It looks like they are naturally gluten-free, but not labeled gluten-free. https://www.quakeroats.com/products/hot-cereals/grits/instant-grits-plain -
By Scott Adams · Posted
I’m so sorry you’re feeling this way—your emotions are completely valid. A celiac diagnosis, especially at your age, is a huge adjustment, and it’s okay to grieve the foods and conveniences you’ve lost. Even with a supportive partner (which is wonderful!), the mental toll is real. Many of us have been there, staring longingly at ‘forbidden’ foods while feeling isolated or frustrated. It does get easier with time, though. The initial shock fades, gluten-free substitutes become more familiar, and you’ll find new favorites. But please be gentle with yourself now. If the sadness feels overwhelming, talking to a therapist or joining a celiac support group (online or in-person) might help. You’re not alone in this—we’ve all had those ‘why me?’ moments. Sending hugs (and solidarity) your way. -
By Scott Adams · Posted
Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
By Scott Adams · Posted
While some radlers are made with gluten-free beer, many traditionally contain wheat-based beer, so it’s definitely good you double-checked. It’s surprising you didn’t have symptoms, but reactions can vary widely among celiacs. Some people are asymptomatic or have delayed reactions, while others feel effects immediately. Even if you didn’t notice symptoms, there could still be internal damage occurring, so it might be worth verifying the brand’s ingredients or contacting the manufacturer for clarity. In the future, sticking to certified gluten-free options or cider-based radlers could be a safer bet. Glad you’re feeling okay, but always better to err on the side of caution!
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