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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- Redanafs posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Diagnosis and further testing Celiac
Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications f... -
- Fayeb23 replied to Fayeb23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Waiting Gastroenterology review
Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99] Really don’t understand the results! -
- Scott Adams replied to Jenny (AZ via TX)'s topic in Gluten-Free Foods, Products, Shopping & Medications7Does Dailymed.nlm.nih.gov site have filters for gluten?
Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct. -
- RMJ replied to Fayeb23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Waiting Gastroenterology review
To evaluate the TTG antibody result we’d need to know the normal range for that lab. Labs don’t all use the same units. However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. Y... -
- Bev in Milw replied to Jenny (AZ via TX)'s topic in Gluten-Free Foods, Products, Shopping & Medications7Does Dailymed.nlm.nih.gov site have filters for gluten?
Scott is correct….Thank you for catching that! Direct link for info of fillers. http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page of www.glutenfreedrugs.com Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in 2017. This makes it’s Drug List so old that it’s no longer relevant. Compa...- 1
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Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
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Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99] Really don’t understand the results!
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By Scott Adams · Posted
Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct. -
To evaluate the TTG antibody result we’d need to know the normal range for that lab. Labs don’t all use the same units. However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet. If you went gluten free your intestines would start to heal, confusing any further testing,
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By Bev in Milw · Posted
Scott is correct….Thank you for catching that! Direct link for info of fillers. http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page of www.glutenfreedrugs.com Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in 2017. This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers & sources would need to be referenced, same amount effort as starting with current data on DailyMed That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17. List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten. Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of patent protection.). If so, multiple repackager-get bulk shipments from same supplier will all be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers frequently based on cost, or runs both gluten-free & non- items on same lines. No way to know without contacting company. While some I know have searched pharmacies chasing a specific brand, long-term solution is to find (or teach) pharmacy staff who’s willing help. When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free. Walked out when pharmacist said ‘How am I supposed to know…’ (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info? A serendipitous conversation with cousin in Mi was unexpectedly reassuring. She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels). I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’ Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as conscientious! For the Newbies…. SOLE purpose of fillers (possible gluten) in meds is to hold the active ingredients together in a doseable form. Drugs given by injection or as IV are always gluten-free! (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of pills .) Liquid meds (typically for kids)—still read labels, but could be an a simpler option for some products…
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