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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- knitty kitty replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease4Frustrated
I followed the Autoimmune Protocol Diet to get my symptoms calmed down and my nutrients up. I know what a struggle it is. You're why I'm here. Smoothing out some rough parts of your journey makes my journey worthwhile. Here's the tests you can get for Celiac antibodies... -
- knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
This Roller Coaster Ride Needs to Stop
@Ginger38, I'm with you! I could not take Metformin. I got so sick, constant diarrhea, abdominal cramps, extreme highs and lows, no energy, weight loss, muscle wasting. Just horrible. Metformin is known to block thiamine absorption. Talk to your doctor about thiamine deficiency. It's called Gastrointestinal Beriberi. My doctor didn... -
- Jmartes71 replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease4Frustrated
Thankyou I will be seeing my new primary this coming Monday and will ask.I did ask about some other blood test to look for that I saw on this website.I pushed the second ANA panel two months ago thinking it would show but found out it doesn't.I don't have lupus which seems what the ANA panel seems to only look for.I have come to the conclusion that doctors...- 1
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- Scott Adams replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Newly Diagnosed
It’s completely understandable to feel blindsided by a celiac disease diagnosis, especially when you’ve never experienced any noticeable symptoms. Many people assume that celiac disease always comes with obvious digestive distress, but in reality, some people—like you—are asymptomatic, or what’s sometimes called “silent celiac.” Even without symptoms, the... -
- knitty kitty replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease4
Frustrated
Welcome to the forum, @Jmartes71, Wow! 31 years! That's great! You can get a DNA test to show genes specifically for Celiac. Your genes don't change whether you eat gluten or not. Have you been checked for nutritional deficiencies? The gluten free diet can be low in essential nutrients. You may have become a bit deficient after such...
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By knitty kitty · Posted
I followed the Autoimmune Protocol Diet to get my symptoms calmed down and my nutrients up. I know what a struggle it is. You're why I'm here. Smoothing out some rough parts of your journey makes my journey worthwhile. Here's the tests you can get for Celiac antibodies... -
By knitty kitty · Posted
@Ginger38, I'm with you! I could not take Metformin. I got so sick, constant diarrhea, abdominal cramps, extreme highs and lows, no energy, weight loss, muscle wasting. Just horrible. Metformin is known to block thiamine absorption. Talk to your doctor about thiamine deficiency. It's called Gastrointestinal Beriberi. My doctor didn't recognize thiamine deficiency outside of alcoholism. So I took over the counter Thiamine in the form Tetrahydrofurfuryl Disulfide and felt health improvement within an hour. Magical! I followed the Autoimmune Protocol diet to get my stomach calmed down and control my blood glucose levels without medication. Being diabetic, we lose more thiamine through our kidneys, and the Metformin on top of it and malabsorption from Celiac. Talk to your doctor soon! -
Thankyou I will be seeing my new primary this coming Monday and will ask.I did ask about some other blood test to look for that I saw on this website.I pushed the second ANA panel two months ago thinking it would show but found out it doesn't.I don't have lupus which seems what the ANA panel seems to only look for.I have come to the conclusion that doctors are like hair people meaning all hair places know how to cut hair and style but not all know how to grow hair.I was given tramadel for nearly 20 years to push through. I literally can't no more and stopped taking tramadel since I was swelling slowly in the belly.I will diffently show new primary this website and hopefully he will help.Its so hard because im falling apart with my eye, skin and read every label and stay away from what Im not supposed to.I had SIBO test done and it died on me and didn't complete all 8 breathes just the 5.I spoke to np and was finally validated by word of mouth.Cone to find out I have to repeat again.I went to a reputable hospital to be let down.I have to redo breath test but want to do at hospital instead of at home so no issues.Its not pleasant drinking that glucose stuff and not getting a direct answer. I live in Northern Cali.What recommended gi would know about celiac disease, really know because I thought I found one but didn't. I don't want to digest any wheat, dairy, peanuts, rye, barely, eggs,garlic, walnuts because I get sick.When i showed the reputable hospital my past food allergies i was told that test is old.My thoughts were i was made in 1971 and its still avtive with diagestive issues.
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By Scott Adams · Posted
It’s completely understandable to feel blindsided by a celiac disease diagnosis, especially when you’ve never experienced any noticeable symptoms. Many people assume that celiac disease always comes with obvious digestive distress, but in reality, some people—like you—are asymptomatic, or what’s sometimes called “silent celiac.” Even without symptoms, the disease can still cause internal damage to your small intestine and increase your risk for serious complications like osteoporosis, infertility, certain cancers, and neurological issues, including ataxia. That’s why treatment—a strict lifelong gluten-free diet—is recommended for all individuals diagnosed with celiac disease, not just those who feel sick. It’s surprising that your PCP advised you to continue eating gluten, as this contradicts current clinical guidelines. You may want to seek a second opinion from a gastroenterologist or a dietitian who specializes in celiac disease. Even without symptoms, going gluten-free is the best way to protect your long-term health and prevent complications. Your first degree relatives should also be screened for celiac disease. You’re definitely not alone—many in the celiac community have been in your shoes and can offer support as you begin this unexpected journey. -
By knitty kitty · Posted
Welcome to the forum, @Jmartes71, Wow! 31 years! That's great! You can get a DNA test to show genes specifically for Celiac. Your genes don't change whether you eat gluten or not. Have you been checked for nutritional deficiencies? The gluten free diet can be low in essential nutrients. You may have become a bit deficient after such a long time. Deficiencies in certain vitamins and minerals can lead to many health problems. Start keeping a food journal. Other food sensitivities could have developed. Journaling can help connect symptoms with specific foods. Vitamin D can help calm the immune system so you don't react to everything. When I was deficient, I had peripheral neuropathy, headaches, migraines, joint aches. I was seriously deficient in many other vitamins and minerals. Our bodies need the eight essential B vitamins to function properly. Thiamine deficiency can appear first because thiamine can become depleted within eighteen days. Infections can deplete thiamine stores. Covid Longhaulers are frequently thiamine deficient. Ask for an Erythrocyte Transketolace Activity test if available. Blood tests aren't really accurate measures of Thiamine, but if low, you've probably been deficient for a good while. Thiamine and Vitamin D may help with menopause. I also take Oil of Evening Primrose which helps immensely. I was deficient in Cobalamine B12, thiamine and the other B vitamins. B Complex vitamins are important for nerve health. I had pain up my legs from neuropathy. A combination of Thiamine, Pyridoxine B 6, and Cobalamine B12 acts as an analgesic. Thiamine deficiency can take the form of Gastrointestinal Beriberi, causing almost constant diarrhea. I bought a chamber pot and kept it handy. I couldn't make it to the bathroom. Thiamine deficiency can affect appetite. One can lose their appetite or become ravenous or swing between the two extremes. Thiamine deficiency can also cause weight loss and muscle wasting. I lost weight then muscle within days. Yes, I understand. I lived through it despite my doctors not recognizing thiamine deficiency outside of alcoholism because it presents differently. I was so desperate, I took over the counter Thiamine in the form Thiamine Tetrahydrofurfuryl Disulfide (TTFD) and felt improvement within an hour! It was like magic! I also took the other essential vitamins and minerals. Talk to a dietician. Talk to your doctor about testing for thiamine deficiency. Definitely. Keep us posted on your progress! Best wishes!
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