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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,237 topics in this forum

  1. Abi000
    Razzle Dazzle Brazell

    Celiacs?

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  2. maggiesimpson
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    Roda
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  5. Abi000
    Razzle Dazzle Brazell
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    IrishHeart
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    nora-n
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  8. Sieben
    Cara in Boston
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    Cara in Boston
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  14. archaeo in FL
    Takala
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  15. banjos
    beachbirdie

    Update

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  16. TeresaB
    banjos
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  17. JaneWhoLovesRain
    Bob J
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  18. MrsAcE
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  19. GlutenFreeAustinite
    Takala
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  20. Tillygirl
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  21. LaceyBurke
    Takala
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  22. roxieb73
    squirmingitch
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  23. AmyWrites
    MitziG
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  24. beebee07
    Mnicole1981
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  25. KMMO320
    Roda
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  26. AMR
    Roda
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    squirmingitch
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    • trents
      Welcome to the forum, @NCalvo822! Ditto to what Scott said. But let me ask you, what method or methods did your physician use to diagnose you as having celiac disease? Normally, it is a two step process. The first step involves a blood test that looks for certain antibodies produced by celiac disease. The second step involves an upper GI scoping and biopsy of the small bowel lining to check for the damage to the lining typically caused by celiac disease. This second step is used as confirmation of the blood work when the antibody testing turns up some positives. Occasionally, positive antibody tests scores can be caused by things besides celiac disease. Which of these were done or did you have both done before the doc declared you to have celiac disease?
    • Scott Adams
      Thanks for sharing this info! Frustrating to see companies who haven't used wheat as an ingredient start to do so! https://blistex.com/product/five-star-lip-protection/
    • Emily P.
      As of July 2025, Blistex is no longer gluten free for their five star protection lip balm The last ingredient is WHEAT! From Blistex' website, ingredient list for 5 Star Protection;: "Inactive Ingredients: bis-diglyceryl polyacyladipate-2, bis-stearyl dimethicone, butyloctyl salicylate, C12-15 alkyl benzoate, calendula officinalis extract, caprylic/capric triglyceride, carthamus tinctorius (safflower) seed oil, cetyl dimethicone, citric acid, euphorbia cerifera (candelilla) wax, flavor, microcrystalline wax, myristyl myristate, octyldodecanol, oryzanol, ozokerite, panthenol, phenoxyethanol, sorbic acid, stearyl behenate, sucralose, tetrahexyldecyl ascorbate, tocopheryl acetate, triticum vulgare (wheat) germ oil"
    • knitty kitty
      I followed the Autoimmune Protocol Diet to get my symptoms calmed down and my nutrients up.   I know what a struggle it is.  You're why I'm here. Smoothing out some rough parts of your journey makes my journey worthwhile. Here's the tests you can get for Celiac antibodies...  
    • knitty kitty
      @Ginger38, I'm with you!   I could not take Metformin.  I got so sick, constant diarrhea, abdominal cramps, extreme highs and lows, no energy, weight loss, muscle wasting.  Just horrible.   Metformin is known to block thiamine absorption.  Talk to your doctor about thiamine deficiency.  It's called Gastrointestinal Beriberi.  My doctor didn't recognize thiamine deficiency outside of alcoholism.  So I took over the counter Thiamine in the form Tetrahydrofurfuryl Disulfide and felt health improvement within an hour.  Magical!   I followed the Autoimmune Protocol diet to get my stomach calmed down and control my blood glucose levels without medication. Being diabetic, we lose more thiamine through our kidneys, and the Metformin on top of it and malabsorption from Celiac.  Talk to your doctor soon!
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