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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- terrymouse replied to terrymouse's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Probably celiac but also confused
Thanks for clarifying! I'll put the gluten free thing on hold then. In late december last year I suddenly started having digestive issues I never had before. My stomach started feeling tight most of the time, I got full very quickly, little to no appetite, constipation, I started to feel ill after eating - sometimes a stomach ache, sometimes nauseous, or... -
- trents replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms14Virus, celiac disease or both?
@Shining My Light, I am not a doctor or a trained medical professional of any kind. However, I was a hospital chaplain for many years and sat in on countless numbers of medical team meetings with doctors and nurses discussing the medical issues of their patients as well as tests administered and interventions applied. What I can tell you is that many diseases...- 1
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- Shining My Light replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms14Virus, celiac disease or both?
@trents I do like the idea of the shake! yes. I was expecting to have all my blood tests that were celiac related to be positive. I guess I’m confused about why they wouldn’t be. Nothing else in my blood work even gave a clue as to helping me either. All my vitamins were good other than D and that’s everyone in my state. @RMJ how impre... -
- RMJ replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms14Virus, celiac disease or both?
I can’t imagine eating 4-6 slices of bread per day, either. You just need wheat, it doesn’t have to be bread and it doesn’t have to whole wheat. If a piece of cake or a doughnut is about the same size as a slice of bread it’s probably roughly equivalent. Or you could do what Trents suggests and just buy powdered gluten. Gliadin X can help by “digest... -
- trents replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms14
Virus, celiac disease or both?
@Shining My Light, what do you mean when you say "the blood test not being 100%"? Were you expecting all possible celiac blood antibody tests to be positive in the case of someone who actually does have celiac disease? That seldom, if ever, happens. You are gauging too much on how you feel when you consume gluten and not paying enough attention to test...
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By terrymouse · Posted
Thanks for clarifying! I'll put the gluten free thing on hold then. In late december last year I suddenly started having digestive issues I never had before. My stomach started feeling tight most of the time, I got full very quickly, little to no appetite, constipation, I started to feel ill after eating - sometimes a stomach ache, sometimes nauseous, or lightheaded, or heart beating fast. Some things worse than others, I started avoiding fatty foods in general because they made me throw up . I haven't had issues with food like this before, so this is all new to me. I started losing weight because eating was such a chore. I hadn't considered it could be celiac, but my GP added it to the list of things to test for and then referred me to the GI specialist when the results came back positive. They also found a large gallstone, which was causing me pain in the pit of my stomach, so I had my gallbladder removed in march. The pain is gone but otherwise everything else, the tightness and sensitivity and lack of appetite remains an issue, and I'm still losing weight. I was around 200 lb in december, right now I'm 152 lb. -
@Shining My Light, I am not a doctor or a trained medical professional of any kind. However, I was a hospital chaplain for many years and sat in on countless numbers of medical team meetings with doctors and nurses discussing the medical issues of their patients as well as tests administered and interventions applied. What I can tell you is that many diseases can only be diagnosed by running a battery of tests coming at the problem from different angles. It is normal to not have all the tests give a positive confirmation for a given disease. But rather, a diagnosis is arrived at by looking at what the balance of the test results from all angles suggest. This may especially be true of autoimmune conditions. You need to also understand that the degree and number of vitamin and mineral deficiencies and symptomology depends on a number of factors. For instance: 1. How many "celiac genes" are involved? Homozygous or heterozygous? and which genes? DQ2?, DQ8? or both? 2. How long ago was the onset of the celiac disease? How long has it been acting on the body? 10 months or 10 years? That will make a huge difference. 3. How much gluten has the person been accustomed to consuming since onset of celiac disease? The more they consume, the more damage you would expect. 4. What is the age of the person? Younger people have bodies that are more resilient than older people and can fight against disease more effectively. 5. What other health conditions is their immune system being tasked to deal with? 6. What is their general state of vigor? Some people just have stronger constitutions than others.
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By Shining My Light · Posted
@trents I do like the idea of the shake! yes. I was expecting to have all my blood tests that were celiac related to be positive. I guess I’m confused about why they wouldn’t be. Nothing else in my blood work even gave a clue as to helping me either. All my vitamins were good other than D and that’s everyone in my state. @RMJ how impressive to be able to make all those baked goods! I’ve been tasting some gluten free items. There is one thing I found that’s good and it’s Siete Cinnamon churro chips put over ice cream with chocolate syrup . Tastes like fried ice cream! I’ve also noticed so many more things have a “gluten free” symbol on them. Restaurants mostly but also a lot of packaging. Maybe it’s always been there but obviously since my blood tests I’ve noticed. I really hoped I would find someone who like me was sick a few weeks prior to getting their TTG test and it was raised for a viral reason, or it’s a “fluke” or something else. -
I can’t imagine eating 4-6 slices of bread per day, either. You just need wheat, it doesn’t have to be bread and it doesn’t have to whole wheat. If a piece of cake or a doughnut is about the same size as a slice of bread it’s probably roughly equivalent. Or you could do what Trents suggests and just buy powdered gluten. Gliadin X can help by “digesting” small amounts of gluten contamination. You would NOT want to take it while eating bread/cake/doughnuts in preparation for an endoscopy because it could make your body react less. I have finally figured out how to make a number of gluten free baked goods. Cakes, cream puffs . . . My neighbors know they are gluten free but say they would never guess otherwise.
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@Shining My Light, what do you mean when you say "the blood test not being 100%"? Were you expecting all possible celiac blood antibody tests to be positive in the case of someone who actually does have celiac disease? That seldom, if ever, happens. You are gauging too much on how you feel when you consume gluten and not paying enough attention to test results. If the idea of eating 4-6 slices of wheat bread daily to get 10g of gluten is repulsive to you then go the health food store and buy powdered gluten, weigh it out on a food scale, and make shakes with it. Many report that Gliadin X helps them in a significant way to ward off unpleasant reactions to minor gluten exposure, such as you would get in a cross contamination situation. It will not work to prevent reactions when used with large exposures to gluten.
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