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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- lookingforanswersone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0TTG IgA 0.30 U/ml: further tests?
Hi, a query about testing. Background: I have existing diagnosis of pernicious anaemia (b12 deficiency) autoimmune condition. Diagnosed 5 years ago. Symptoms for 10 years. Initially got better with b12 shots (for like a month or so) but still kicking around. So query Celiac and other clustered autoimmune conditions to PA. If celaic it would... -
- Scott Adams replied to Michael P's topic in Gluten-Free Foods, Products, Shopping & Medications1Gluten free Areds 2 Vitamins
It looks like they are naturally gluten-free, but not labeled gluten-free. It's unlikely that they contain any gluten, but not impossible. This is the one I looked at: https://www.preservision.com/areds-2-formula-minigels/ -
- Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
Gluten-Free Newbie
Welcome to the gluten-free journey—it sounds like you’ve been through a lot, but it’s great to hear you’re feeling better since cutting out gluten! The struggle to get clear answers can be so frustrating, especially when tests come back negative but your body is clearly reacting. It’s smart to hold off on retesting for celiac until you’ve reintroduced gluten (if ...- celiac
- food elimination
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- trents replied to VMCK's topic in Introduce Yourself / Share Stuff45Anyone From South Africa
@Izelle, you are welcome! It is important to know that beginning the gluten-free diet or even a reduced gluten diet previous to celiac testing will invalidate the testing. One should seek out testing before experimenting with eliminating gluten. Also, remember that celiac disease is not a food allergy. It is an autoimmune disease. When a celiac consumes gluten... -
- cristiana replied to disturbedme's topic in Related Issues & Disorders20Gluten Intolerance And Low White Blood Cell Counts?
Hello Suze and welcome to the forum. Can you tell us which country you are posting from? The reason I ask is that in some countries, it is quite a good idea to be tested for coeliac disease because if it turns out you are a coeliac, you will be given additional support by the government. For example if you live in the UK, the NHS offers support...
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By lookingforanswersone · Posted
Hi, a query about testing. Background: I have existing diagnosis of pernicious anaemia (b12 deficiency) autoimmune condition. Diagnosed 5 years ago. Symptoms for 10 years. Initially got better with b12 shots (for like a month or so) but still kicking around. So query Celiac and other clustered autoimmune conditions to PA. If celaic it would maybe be more silent as don't get vomiting, diarrhea or weight loss. Symptoms = chronic fatigue. Muscular&skeletal pain. Hot hands and feet (worse an night), nausea after eating, tiredness after consuming food like bread and pasta. Celiac screen came back (private blood test): TTG IgA 0.30 U/ml. My main question is, is it worth getting total iga for further testing ? I have been advised that 'low' would only count as 0 U/ml for TTG IgA not .3. Oh and did the genetic testing and have the gene thing. Was also critically low for folate levels in recent tests All other tests showed no likelihood of other autoimmune conditions like thyroid (luckily). Anyhow, any thoughts welcome but be kind, just trying to get well l. -
By Scott Adams · Posted
It looks like they are naturally gluten-free, but not labeled gluten-free. It's unlikely that they contain any gluten, but not impossible. This is the one I looked at: https://www.preservision.com/areds-2-formula-minigels/ -
By Scott Adams · Posted
Welcome to the gluten-free journey—it sounds like you’ve been through a lot, but it’s great to hear you’re feeling better since cutting out gluten! The struggle to get clear answers can be so frustrating, especially when tests come back negative but your body is clearly reacting. It’s smart to hold off on retesting for celiac until you’ve reintroduced gluten (if you choose to), but in the meantime, listening to how your body responds is key. The overlap with perimenopause and gut issues is no joke—hormones really do throw everything into chaos! It’s awesome that you’re working with a kinesiologist and focusing on whole foods; that’s helped so many of us here too. And yes, eating out is a minefield. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
@Izelle, you are welcome! It is important to know that beginning the gluten-free diet or even a reduced gluten diet previous to celiac testing will invalidate the testing. One should seek out testing before experimenting with eliminating gluten. Also, remember that celiac disease is not a food allergy. It is an autoimmune disease. When a celiac consumes gluten it triggers an autoimmune response that damages the lining of the small bowel. That can be confusing to a lot of people because it is an autoimmune response that involves food. So, allergy testing is of no use in diagnosing celiac disease. Of course, people can also have allergies to wheat, barley or rye (the three gluten-containing grains) but that is an entirely different immune system response.
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Hello Suze and welcome to the forum. Can you tell us which country you are posting from? The reason I ask is that in some countries, it is quite a good idea to be tested for coeliac disease because if it turns out you are a coeliac, you will be given additional support by the government. For example if you live in the UK, the NHS offers support from a nutritionist, DEXA bone scans to check for osteoporosis/osteopenia to which coeliacs are sometimes prone, additional vaccinations against certain illnesses, annual reviews with a gastroenterologist to check for dietary compliance and possible health complications, and, in some regions, a prescription to help with the purchase of gluten free bread and other staples, which can be pricey. Another example is Italy. According to the Celiac Disease Foundation, in Italy, coeliacs are given up to 140 Euros a month to buy specifically gluten free food. (Source: https://celiac.org/gluten-free-living/global-associations-and-policies/policies-around-the-world/#:~:text=Diagnosed celiacs receive vouchers to,to deal with celiac disease.) But with regards to your white blood cells, my levels were similarly low from memory a couple of years ago during a period of quite high stress. It was picked up in a pre-op blood test. But nobody blinked an eyelid at the results. A few months later at my coeliac review with my gastroenterologist the levels had normalised. As you are concerned, do raise it with your doctor, but it could well just be a blip as it was in my case.
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