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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,251 topics in this forum

  1. KristinL
    Roda

    Celiac's In Addition To A Wheat Allergy?

    By KristinL, Last action:
    • 2 replies
    • 1.6k views
    • Roda
    • Roda
  2. LilDebMom
    mushroom

    Blood Test Results - Celiac?

    By LilDebMom, Last action:
    • 3 replies
    • 1k views
    • mushroom
    • mushroom
  3. Teri Lou
    GFinDC

    So Very Ugh

    By Teri Lou, Last action:
    • 1 reply
    • 866 views
    • GFinDC
    • GFinDC
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  4. NancyL
    sarbee

    Celiac Without Weight Loss?

    By NancyL, Last action:
    • 11 replies
    • 15.8k views
    • sarbee
    • sarbee
  5. jasonD2

    Only Gluten Symptom I Get

    By jasonD2, Last action:
    • 2 replies
    • 998 views
    • jasonD2
    • jasonD2
  6. MEH
    revenant

    After All These Years.....it Was Gluten!?

    By MEH, Last action:
    • 1 reply
    • 1.1k views
    • revenant
    • revenant
  7. MsCurious

    Looking For Input On Test Results

    By MsCurious, Last action:
    • 15 replies
    • 3k views
    • MsCurious
    • MsCurious
  8. MsCurious

    Wow, I Just Got An Email Reply From A Research Doctor At Mayo Clinic, Rochester, Mn

    By MsCurious, Last action:
    • 2 replies
    • 1.9k views
    • MsCurious
    • MsCurious
  9. MsCurious
    SaraKat

    Curious, Do Most People Go Gluten Free For The Household, Or Just Themselves?

    By MsCurious, Last action:
    • 16 replies
    • 2.5k views
    • SaraKat
    • SaraKat
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  11. NancyL
    frieze

    Holy Smokes Batman!

    By NancyL, Last action:
    • 12 replies
    • 2.2k views
    • frieze
    • frieze
  12. NancyL
    MsCurious

    Feeling Bad Today

    By NancyL, Last action:
    • 1 reply
    • 1.3k views
    • MsCurious
    • MsCurious
  13. Rob-A
    IrishHeart

    Possible Celiac With A Slew Of Symptoms

    By Rob-A, Last action:
    • 3 replies
    • 2.5k views
    • IrishHeart
    • IrishHeart
  14. zebaldwin

    New Weird Symptom...

    By zebaldwin, Last action:
    • 10 replies
    • 1.7k views
    • zebaldwin
    • zebaldwin
  15. Loobiej
    salexander421

    Jessica's Progress

    By Loobiej, Last action:
    • 9 replies
    • 1.8k views
    • salexander421
    • salexander421
  16. NancyL
    MsCurious

    My History

    By NancyL, Last action:
    • 2 replies
    • 1.4k views
    • MsCurious
    • MsCurious
  17. zebaldwin
    Marlie

    So Upset...

    By zebaldwin, Last action:
    • 11 replies
    • 2.1k views
    • Marlie
    • Marlie
  18. scuzy
    ravenwoodglass

    Kidney Problems?

    By scuzy, Last action:
    • 3 replies
    • 2.5k views
    • ravenwoodglass
    • ravenwoodglass
  19. superfob
    NancyL

    Colonoscopy W/ Endoscopy/biopsy?

    By superfob, Last action:
    • 2 replies
    • 2.9k views
    • NancyL
    • NancyL
  20. MargoS
    cassP

    Help Needed With New Diagnosis And Further Testing

    By MargoS, Last action:
    • 12 replies
    • 2k views
    • cassP
    • cassP
  21. salexander421
    cassP

    Those That Have Used Enterolab Testing....

    By salexander421, Last action:
    • 3 replies
    • 1.1k views
    • cassP
    • cassP
  22. Loobiej

    Update On Jessica... Mushroom Can You Or Anyone Else Help

    By Loobiej, Last action:
    • 12 replies
    • 1.8k views
    • Loobiej
    • Loobiej
  23. Boilermaker
    ravenwoodglass

    Biopsy Results?

    By Boilermaker, Last action:
    • 7 replies
    • 1.9k views
    • ravenwoodglass
    • ravenwoodglass
  24. WIGirl
    ravenwoodglass

    Should I Also Have My Igg Levels Tested?

    By WIGirl, Last action:
    • 1 reply
    • 929 views
    • ravenwoodglass
    • ravenwoodglass
  25. superfob
    cassP

    What Is The True Sensitivity Of Ttg?

    By superfob, Last action:
    • 2 replies
    • 1.8k views
    • cassP
    • cassP
  26. scottyg354

    Family History Of Anti-Immune Diseases

    By scottyg354, Last action:
    • 4 replies
    • 1.2k views
    • scottyg354
    • scottyg354
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  • Posts

    • NoriTori
      Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems

      By NoriTori · Posted

      @Scott Adams  Sure, Any and all information is welcome. Also the only was to convince my family to get tested is to get tested myself and conclusive answers. Very stubborn lot.  
    • trents
      Blood results

      By trents · Posted

      Understood. It's very anxiety-provoking when you don't know what you are dealing with and don't know if you are attacking it correctly.
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      I have heard of NCGS, but everything is just so confusing!!! Just unsure of things as her EMA test was negative but TTG was positive @19u/ml(lab range 0.0-7.0).Apparently she also has occasional bubble like blisters in between her fingers, don’t know if that’s significant. She is triallling gluten free as suggested by the gastroenterologist after her endoscopy. Keep getting different answers when typing in her symptoms etc. Some sites say it can be possible to have coeliac, even with a negative EMA . It’s so frustrating and her anxiety levels are through the roof. I know she’s hoping it’s coeliac which is weird I know!!! But if it’s not it just means more tests. Sorry to ramble on!!!
    • sillyac58
      Rice Flakes

      By sillyac58 · Posted

      I ame looking for rice flakes that aren't cross contaminated to use in making oat free granola. Does anyone know of a brand? Also I see that some people just used puffed rice cereal, but it seems like that wouldn't be sturdy enough to withstand the mixing without crumbling. Any ideas out there? Thanks!  
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      There isn't because there is currently no gluten-free labeling requirement for prescription medications. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
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