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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1My Journey Continues some notes
It sounds like you’re doing a really thoughtful, disciplined job listening to your body and tightening things up where needed. Tracking symptoms alongside foods in MyFitnessPal is a smart next step, especially since bloating and gas can come from specific GF ingredients (like gums, fibers, or certain flours) rather than gluten itself. Your approach to eating o... -
- Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Going for upper endoscopy today
Just be sure that she continues eating lots of gluten daily for at least 2 weeks before the endoscopy, otherwise going gluten-free beforehand could create false negative results. -
- Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9Going for upper endoscopy today
Her results only showed greater then 100 which over 10 is considered positive. But American standards still recommend the endoscopy to confirm. And the Dr explained to us both the European and American standards and asked us what we wanted to do. We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the fut...- 1
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- Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9
Going for upper endoscopy today
My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase... -
- Scott Adams replied to Cecile's topic in Related Issues & Disorders4
Symptoms
I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and...
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Posts
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By Scott Adams · Posted
It sounds like you’re doing a really thoughtful, disciplined job listening to your body and tightening things up where needed. Tracking symptoms alongside foods in MyFitnessPal is a smart next step, especially since bloating and gas can come from specific GF ingredients (like gums, fibers, or certain flours) rather than gluten itself. Your approach to eating out, avoiding places that can’t confirm safety, and planning ahead for travel is exactly how many people stay well long-term. It’s also very common to discover that even “certified” or restaurant GF pizza doesn’t agree with you, so trusting that pattern makes sense. Overall, this reads like progress, not restriction—and the fact that you’re feeling better most of the time suggests you’re on the right path. -
By Scott Adams · Posted
Just be sure that she continues eating lots of gluten daily for at least 2 weeks before the endoscopy, otherwise going gluten-free beforehand could create false negative results. -
By Midwesteaglesfan · Posted
Her results only showed greater then 100 which over 10 is considered positive. But American standards still recommend the endoscopy to confirm. And the Dr explained to us both the European and American standards and asked us what we wanted to do. We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the future regarding it -
By Scott Adams · Posted
My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! -
By Scott Adams · Posted
I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and I was surprised to see Costco now selling fresh duck eggs.
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