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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,293 topics in this forum

  1. veggiemomma
    nora-n

    Please Help! Newby With Lots Of Questions...And Vegan.

    By veggiemomma, Last action:
    • 3 replies
    • 1.3k views
    • nora-n
    • nora-n
  2. Teddy's mom
    ravenwoodglass

    Negative Biopsy, Can It Still Be Celiac

    By Teddy's mom, Last action:
    • 7 replies
    • 10.4k views
    • ravenwoodglass
    • ravenwoodglass
  3. precious831
    mushroom

    Negative Biopsy

    By precious831, Last action:
    • 2 replies
    • 1.4k views
    • mushroom
    • mushroom
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  4. AlysounRI
    ravenwoodglass

    Back On The Gluten :(

    By AlysounRI, Last action:
    • 5 replies
    • 1.2k views
    • ravenwoodglass
    • ravenwoodglass
  5. Alsbagalls12

    Opinions? Ideas?

    By Alsbagalls12, Last action:
    • 6 replies
    • 1.1k views
    • Alsbagalls12
    • Alsbagalls12
  6. flowerpower12
    ravenwoodglass

    Symptoms Come And Go..

    By flowerpower12, Last action:
    • 1 reply
    • 1.9k views
    • ravenwoodglass
    • ravenwoodglass
  7. Jader

    Undiagnosed - Neuro Degeneration Symptoms

    By Jader, Last action:
    • 0 replies
    • 1.5k views
    • Jader
    • Jader
  8. StephanieL
    nmlove

    Don'T Want To Biopsy

    By StephanieL, Last action:
    • 9 replies
    • 1.6k views
    • nmlove
    • nmlove
  9. flowerpower12
    txplowgirl

    Other Strange Symptoms

    By flowerpower12, Last action:
    • 9 replies
    • 2.8k views
    • txplowgirl
    • txplowgirl
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  11. LAdams
    cyberprof

    Crazy? Or Actually Gluten Intolerant?

    By LAdams, Last action:
    • 3 replies
    • 6.1k views
    • cyberprof
    • cyberprof
  12. nixie-nox
    Gemini

    Got My Biopsy Tomorrow

    By nixie-nox, Last action:
    • 2 replies
    • 1.1k views
    • Gemini
    • Gemini
  13. flowerpower12

    Celiac From Mono?

    By flowerpower12, Last action:
    • 11 replies
    • 4.1k views
    • flowerpower12
    • flowerpower12
  14. renoyogamom

    How Long On Gluten Diet To Get Accurate Blood Test?

    By renoyogamom, Last action:
    • 5 replies
    • 7.6k views
    • renoyogamom
    • renoyogamom
  15. Ladybug2564
    Wolicki

    Gluten Free Trial?

    By Ladybug2564, Last action:
    • 1 reply
    • 924 views
    • Wolicki
    • Wolicki
  16. NE Mom
    ravenwoodglass

    Mini Gluten Challenage

    By NE Mom, Last action:
    • 6 replies
    • 1.6k views
    • ravenwoodglass
    • ravenwoodglass
  17. frustratedandtired

    Blood Test Done Yesterday...Egd Thursday.

    By frustratedandtired, Last action:
    • 0 replies
    • 748 views
    • frustratedandtired
    • frustratedandtired
  18. chasing4

    Should I Change My Diet Before I See The Doc?

    By chasing4, Last action:
    • 5 replies
    • 1.2k views
    • chasing4
    • chasing4
  19. llynn34

    How Do I Get A Diagnosis?

    By llynn34, Last action:
    • 3 replies
    • 1.3k views
    • llynn34
    • llynn34
  20. stillight
    tarnalberry

    Can Bloating Lead To Damaged Muscles/Tendons?

    By stillight, Last action:
    • 1 reply
    • 1k views
    • tarnalberry
    • tarnalberry
  21. GlutenGrr
    Gemini

    Ate Gluten To Get Ready For Celiac Test:::Very Troubling Results. But.....Could There Be A Synthroid-Celiac Symptom Correlation?

    By GlutenGrr, Last action:
    • 4 replies
    • 1.2k views
    • Gemini
    • Gemini
  22. Don in Dallas
    tarnalberry

    Blood Test Cost

    By Don in Dallas, Last action:
    • 3 replies
    • 8.6k views
    • tarnalberry
    • tarnalberry
  23. jasonD2
    jlr

    Had My Colonoscopy Today

    By jasonD2, Last action:
    • 6 replies
    • 3k views
    • jlr
    • jlr
  24. Painted

    Could I Be Gluten-Intolerant?

    By Painted, Last action:
    • 3 replies
    • 2.9k views
    • Painted
    • Painted
  25. LePandaRouge
    newgfcali

    Negative Blood Test (Opinions Needed Please)

    By LePandaRouge, Last action:
    • 8 replies
    • 1.9k views
    • newgfcali
    • newgfcali
  26. The Glutenator
    tarnalberry

    Positive Blood Test, Negative Biopsy And Convinced It Is Celiac

    By The Glutenator, Last action:
    • 2 replies
    • 1.4k views
    • tarnalberry
    • tarnalberry

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  • Recent Activity

    1. trents
      - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      EMA Result

      Welcome to the celiac.com community, @mike101020! First, what was the reference range for the ttg-iga blood test? Can't tell much from the raw score you gave because different labs use different reference ranges. Second, there are some non celiac medical conditions, some medications and even some non-gluten food proteins that can cause elevated...
    2. Scott Adams
      0

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    3. Wheatwacked
      - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Have I got coeliac disease

      Vitamin D status in the UK is even worse than the US. vitamin D is essential for fighting bone loss and dental health and resistance to infection. Mental health and depression can also be affected by vitamin D deficiency. Perhaps low D is the reason that some suffer from multiple autoimmune diseases. In studies, low D is a factor in almost all of the...
    4. islaPorty
      - islaPorty replied to Jillian83's topic in Coping with Celiac Disease
      9

      Celiac and dermatitis herpetiformis has taken Me from Me

    5. mike101020
      - mike101020 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      EMA Result

      Hi, I recently was informed by my doctor that I had scored 9.8 on my ttgl blood test and a follow up EMA test was positive. I am no waiting for a biopsy but have read online that if your EMA is positive then that pretty much confirms celiac. However is this actually true because if it it is what is the point of the biopsy? Thanks for...
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  • Posts

    • trents
      EMA Result

      By trents · Posted

      Welcome to the celiac.com community, @mike101020! First, what was the reference range for the ttg-iga blood test? Can't tell much from the raw score you gave because different labs use different reference ranges. Second, there are some non celiac medical conditions, some medications and even some non-gluten food proteins that can cause elevated celiac blood antibodies in some individuals. The most likely explanation is celiac disease but it is not quite a slam dunk. The endoscopy/biopsy is considered the gold standard for celiac disease diagnosis and serves as confirmation of elevated blood antibody levels from the blood testing.
    • Wheatwacked
      Have I got coeliac disease

      By Wheatwacked · Posted

      Vitamin D status in the UK is even worse than the US.  vitamin D is essential for fighting bone loss and dental health and resistance to infection.  Mental health and depression can also be affected by vitamin D deficiency.  Perhaps low D is the reason that some suffer from multiple autoimmune diseases.  In studies, low D is a factor in almost all of the autoimmune diseases that it has been studied in. Even while searching for your diagnosis, testing your 25(OH)D status and improving it my help your general wellness. Vitamin D Deficiency Affects 60% in Britain: How to Fix It?    
    • islaPorty
      Celiac and dermatitis herpetiformis has taken Me from Me

      By islaPorty · Posted

    • mike101020
      EMA Result

      By mike101020 · Posted

      Hi, I recently was informed by my doctor that I had scored 9.8 on my ttgl blood test and a follow up EMA test was positive.   I am no waiting for a biopsy but have read online that if your EMA is positive then that pretty much confirms celiac. However is this actually true because if it it is what is the point of the biopsy?   Thanks for any help 
    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
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