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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,301 topics in this forum

  1. nixie-nox
    string bean

    Got My Blood Tests

    By nixie-nox, Last action:
    • 6 replies
    • 4.5k views
    • string bean
    • string bean
  2. Streetlegal
    tarnalberry

    Is It Possible To Have False Pos Serology And Biopsy?

    By Streetlegal, Last action:
    • 5 replies
    • 1.7k views
    • tarnalberry
    • tarnalberry
  3. reeetz

    I Need Help!

    By reeetz, Last action:
    • 5 replies
    • 1.4k views
    • reeetz
    • reeetz
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  4. dhiltonlittle

    Gliadin Ab Iga

    By dhiltonlittle, Last action:
    • 3 replies
    • 3.7k views
    • dhiltonlittle
    • dhiltonlittle
  5. ~sparky~
    Lisa

    Positive Celiac Biopsy/Negative Blood Test

    By ~sparky~, Last action:
    • 3 replies
    • 1.9k views
    • Lisa
    • Lisa
  6. macocha
    Roda

    I Wonder...Hmmm....Could I Have It?

    By macocha, Last action:
    • 1 reply
    • 1.3k views
    • Roda
    • Roda
  7. carrotraisincake
    nora-n

    Questions About Testing

    By carrotraisincake, Last action:
    • 3 replies
    • 1.6k views
    • nora-n
    • nora-n
  8. veggiemomma
    nora-n

    Please Help! Newby With Lots Of Questions...And Vegan.

    By veggiemomma, Last action:
    • 3 replies
    • 1.3k views
    • nora-n
    • nora-n
  9. Teddy's mom
    ravenwoodglass

    Negative Biopsy, Can It Still Be Celiac

    By Teddy's mom, Last action:
    • 7 replies
    • 10.5k views
    • ravenwoodglass
    • ravenwoodglass
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  11. precious831
    mushroom

    Negative Biopsy

    By precious831, Last action:
    • 2 replies
    • 1.5k views
    • mushroom
    • mushroom
  12. AlysounRI
    ravenwoodglass

    Back On The Gluten :(

    By AlysounRI, Last action:
    • 5 replies
    • 1.2k views
    • ravenwoodglass
    • ravenwoodglass
  13. Alsbagalls12

    Opinions? Ideas?

    By Alsbagalls12, Last action:
    • 6 replies
    • 1.1k views
    • Alsbagalls12
    • Alsbagalls12
  14. flowerpower12
    ravenwoodglass

    Symptoms Come And Go..

    By flowerpower12, Last action:
    • 1 reply
    • 1.9k views
    • ravenwoodglass
    • ravenwoodglass
  15. Jader

    Undiagnosed - Neuro Degeneration Symptoms

    By Jader, Last action:
    • 0 replies
    • 1.5k views
    • Jader
    • Jader
  16. StephanieL
    nmlove

    Don'T Want To Biopsy

    By StephanieL, Last action:
    • 9 replies
    • 1.6k views
    • nmlove
    • nmlove
  17. flowerpower12
    txplowgirl

    Other Strange Symptoms

    By flowerpower12, Last action:
    • 9 replies
    • 2.8k views
    • txplowgirl
    • txplowgirl
  18. LAdams
    cyberprof

    Crazy? Or Actually Gluten Intolerant?

    By LAdams, Last action:
    • 3 replies
    • 6.1k views
    • cyberprof
    • cyberprof
  19. nixie-nox
    Gemini

    Got My Biopsy Tomorrow

    By nixie-nox, Last action:
    • 2 replies
    • 1.1k views
    • Gemini
    • Gemini
  20. flowerpower12

    Celiac From Mono?

    By flowerpower12, Last action:
    • 11 replies
    • 4.1k views
    • flowerpower12
    • flowerpower12
  21. renoyogamom

    How Long On Gluten Diet To Get Accurate Blood Test?

    By renoyogamom, Last action:
    • 5 replies
    • 7.6k views
    • renoyogamom
    • renoyogamom
  22. Ladybug2564
    Wolicki

    Gluten Free Trial?

    By Ladybug2564, Last action:
    • 1 reply
    • 934 views
    • Wolicki
    • Wolicki
  23. NE Mom
    ravenwoodglass

    Mini Gluten Challenage

    By NE Mom, Last action:
    • 6 replies
    • 1.6k views
    • ravenwoodglass
    • ravenwoodglass
  24. frustratedandtired

    Blood Test Done Yesterday...Egd Thursday.

    By frustratedandtired, Last action:
    • 0 replies
    • 759 views
    • frustratedandtired
    • frustratedandtired
  25. chasing4

    Should I Change My Diet Before I See The Doc?

    By chasing4, Last action:
    • 5 replies
    • 1.2k views
    • chasing4
    • chasing4
  26. llynn34

    How Do I Get A Diagnosis?

    By llynn34, Last action:
    • 3 replies
    • 1.4k views
    • llynn34
    • llynn34

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  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Great Value Veggies cannot be trusted.

      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rath...
    2. trents
      - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it. But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder...
    3. ainsleydale1700
      - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      Thanks for the insight! It has been a whirlwind...very overwhelming and frustrating at times. But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion
    4. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      THANKS again!!!
    5. trents
      - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
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  • Posts

    • Scott Adams
      Great Value Veggies cannot be trusted.

      By Scott Adams · Posted

      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
      Why now?

      By heart390 · Posted

      THANKS again!!!
    • trents
      Why now?

      By trents · Posted

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
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