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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Florence Lillian posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Gluten-Mimicking Proteins that can affect some Celiac individuals.
Hi all: I have had Celiac for 47 years. I have not seen much info on the following, and 3 of these affect me. In case this info helps someone else, I offer the following: Gluten-like proteins is a topic I want to share, as they have added bad reactions to my Celiac condition. Reactions can range from Gut discomfort such as Diarrhea, Nausea, Vomiting... -
- Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease53Supplements for those Diagnosed with Celiac Disease
@Margaret Wheatley Thank you and welcome to the forum. -
- Margaret Wheatley replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease53Supplements for those Diagnosed with Celiac Disease
I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the... -
- Jmartes71 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Nateral remedies
Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any... -
- Known1 replied to Known1's topic in Introduce Yourself / Share Stuff13Diagnosed Marsh stage 3C in January 2026
Pardon me, I stand corrected. I did find yet another blood test for thyroid function. TSH W/REFLEX TO FT4: 2.91 mIU/L (Range: 0.40 - 4.50) As you can see, I was within the acceptable range when the test was performed.
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By Florence Lillian · Posted
Hi all: I have had Celiac for 47 years. I have not seen much info on the following, and 3 of these affect me. In case this info helps someone else, I offer the following: Gluten-like proteins is a topic I want to share, as they have added bad reactions to my Celiac condition. Reactions can range from Gut discomfort such as Diarrhea, Nausea, Vomiting, and inflammation causing a feeling of being very warm to hot. The following are considered Gluten-Mimicking Proteins: Corn (Zein protein) (this causes inflammation with me). Millet Panicin protein) Sorghum (Kafirin protein). Potato (Patatin protein, is NOT considered a Gluten-Mimic, nor is Oats (Avenin) but they do cause reactions in some Celiac people... I eat potato and I vomit, and get diarrhea. gluten-free Oats causes me to have Nausea, and Corn causes me Inflammation. I hope this helps someone. Wishing the very best to all. Florence. -
By Wheatwacked · Posted
@Margaret Wheatley Thank you and welcome to the forum. -
By Margaret Wheatley · Posted
I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the result. So I am trying hard to get some nutrition into my body. All of this info on supplements and nutritional diets is very helpful. Regards Margaret. -
Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any connection though haven't been religious on my vitamins these last several months because of testing ect.Sibo medications im allergic,the last few prescribed. Gi dr dropped me but took me back.Im frustrated too but its the autoimmune part .
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Pardon me, I stand corrected. I did find yet another blood test for thyroid function. TSH W/REFLEX TO FT4: 2.91 mIU/L (Range: 0.40 - 4.50) As you can see, I was within the acceptable range when the test was performed.
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