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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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    • Katerific
      On Saturday I got glutened so badly that I had to go to the Emergency Room at the hospital.  I only eat in restaurants approximately 2 times a year.  We went to a pizza place that has gluten free pizza.  They show nutritional information about all their menu items and it seemed I could get all the ingredients for my gluten free pizza.  Now I read that pizzerias are one of the top places to get glutened.  About 2 hours later, I started vomiting and having diarrhea.  I couldn't stop vomiting, I was dizzy, pouring sweat and I was shaking so much.  I have never felt so sick in my life.  The hospital gave me Zofran and a bag of saline and I went home a few hours later.  Yesterday I sat in the recliner and sipped Pedialyte and ate gluten-free crackers all day.  I felt weak and nauseous.  Today I feel better, but weak.  What else should I do to recover from the gluten assault on my body?
    • Wheatwacked
      Normal vitamin D range us from 20 ng/ml to 100 ng/ml.  200 nmol/L is the same as 80ng/ml. Minimum vitamin D is based soley on preventing Rickets and osteomyelitis.  Othe research is considered irrelevant insufficnet proof.   My 25(OH)D level is just over 80 ng/dl.  It took 8 years of 10,000 IU a day to get here because Celiac Disease causes low D.  In 1952 the UK banned all vitamin D supplementation due to a error.  Most of the world followed suit.  In the western world vitamin D deficiency ranges from 40% of the US to 60% in the UK. If you had an office with workspace for 30 to 100 workers, but you were restricted to less than 50 workers, how well would the office run.? A factory worker has 40 ng/ml,  A lifeguard has around 80.  Who's immune system works better? Simultaneously, 1,25(OH)2D3 up- and downregulates more than 1000 genes responsible for cellular proliferation, differentiation, a variety of cellular metabolic activities, antiangiogenesis and apoptosis   https://pmc.ncbi.nlm.nih.gov/articles/PMC9919777/      
    • trents
      Welcome to the forum, @Mpanknin! Questions like that really have no definite answer. Even if you tested a container of it for gluten content, the test results would only be good for that production batch. Assume it has some degree of CC. A more important question might be, how sensitive are you to minor amounts of gluten exposure? 
    • Yvonne Ayers Albers
      I have Celiac, and I just found out that HCTZ has gluten in it, and also makes you severely constipated versus diarrrhea!!  I need another medicene for blood pressure that is certified gluten free, without the 20 ppm, and doesn't cause constipation, please!!
    • sillyac58
      Thanks Wheatwacked. My D is normal. I take B12, B6, and a bone health supplement (I'm 67) that has K1, Calcium, Magnesium, and a bunch of other things. But no thiamine. But I will have my doc add it to my next blood draw. Thanks for the info WW!  
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