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Recent Activity
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- Scott Adams replied to Nimsay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Confused about gluten challenge symptoms
Your experience with gluten is actually not unheard of! Some people with non-celiac gluten sensitivity (NCGS) or even celiac disease report an initial ‘honeymoon phase’ during a gluten challenge, where symptoms temporarily improve before worsening again. This could be due to your body adjusting or even a temporary immune modulation. Since you’re only 2.5 w... -
- Jacki Espo replied to Pamp8's topic in Dermatitis Herpetiformis2Dermatitis Herpetiformis
Hi there @Pamp8 yes I've had dermatitis herpetiformis and a negative test for celiac and a negative biopsy. I had stopped eating gluten before taking the test. I have had an inconclusive genetic (?) test. I developed the same all body rash. It was one of the worst experiences of my life and I am sorry you're experiencing it. What helped me: 1). I stopped... -
- trents replied to Pamp8's topic in Dermatitis Herpetiformis2Dermatitis Herpetiformis
Welcome to the forum, @Pamp8! As to your first question, it is possible to have only the epidermal form of celiac disease but it is not common. Most people who have dermatitis herpetiformis also have damage being done to the villous lining of the small bowel. As to your second question, most likely you are getting some gluten contamination from... -
- Pamp8 posted a topic in Dermatitis Herpetiformis2Dermatitis Herpetiformis
I'm new here, although in the past I know I've read some of the messages. My doctor and I have long suspected that I have celiac. I have several other autoimmune illnesses. But, my celiac biopsy was negative, so I started eating a lot more gluten. Over the last several years, I've had minor bouts of an extremely itchy rash that I was correlating to gluten... -
- leenora replied to MagsM's topic in Related Issues & Disorders7Inflammation and Menier’s disease link?
P.S. I also suffer from Meniere's and Hashimoto's thyroid disease, osteopenia since 40 y.o. These all were diagnosed before the Celiac Disease! And I believe it is all interconnected.
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Posts
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By Scott Adams · Posted
Your experience with gluten is actually not unheard of! Some people with non-celiac gluten sensitivity (NCGS) or even celiac disease report an initial ‘honeymoon phase’ during a gluten challenge, where symptoms temporarily improve before worsening again. This could be due to your body adjusting or even a temporary immune modulation. Since you’re only 2.5 weeks into the challenge, it’s possible more symptoms could reappear if you continue. Celiac testing (bloodwork and endoscopy) is most accurate after a full 6 weeks of gluten, so sticking with it for now is wise. That said, your joint/tendon issues (especially the Achilles stiffness) are interesting—they can be linked to celiac disease... -
By Jacki Espo · Posted
Hi there @Pamp8 yes I've had dermatitis herpetiformis and a negative test for celiac and a negative biopsy. I had stopped eating gluten before taking the test. I have had an inconclusive genetic (?) test. I developed the same all body rash. It was one of the worst experiences of my life and I am sorry you're experiencing it. What helped me: 1). I stopped eating oats of any kind. 2). I also took some anti-biotics that were not prescribed for dermatitis herpetiformis but I read they could help. 3). Salty food exacerbates it for me. Now I have a small flare up any time I get cross contamination like from french fries or a shared grill at a restaurant but it's not as bad as it used to be. Wishing you... -
Welcome to the forum, @Pamp8! As to your first question, it is possible to have only the epidermal form of celiac disease but it is not common. Most people who have dermatitis herpetiformis also have damage being done to the villous lining of the small bowel. As to your second question, most likely you are getting some gluten contamination from an unknown source on occasion that you are unaware of and are not suspecting. It could be something like in a medication or supplement you are taking or an oral hygiene product you are using or a spice you are using in your cooking. You might also look into a low iodine diet as iodine is known to exacerbate dermatitis herpetiformis. As to...
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I'm new here, although in the past I know I've read some of the messages. My doctor and I have long suspected that I have celiac. I have several other autoimmune illnesses. But, my celiac biopsy was negative, so I started eating a lot more gluten. Over the last several years, I've had minor bouts of an extremely itchy rash that I was correlating to gluten, but it wasn't very bad and would improve in a short amount of time. Last year, I had a bout that was a bit worse, but it went away rather quickly, so I didn't think too much about it. Fast forward to this year. I have had a REALLY BAD case of it, for a few months, so I went to a dermatologist, and she diagnosed dermatitis herpetiformis...
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P.S. I also suffer from Meniere's and Hashimoto's thyroid disease, osteopenia since 40 y.o. These all were diagnosed before the Celiac Disease! And I believe it is all interconnected.
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