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Recent Activity
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- trents replied to Marky0320's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
CVS (Cyclic vomiting syndrome)
Be aware that putting your child on a gluten free diet ahead of an official celiac diagnosis will invalidate any attempt to arrive at an official diagnosis. If at some point in time after commencing a gluten free diet you wish to have your child tested for celiac disease, he/she would need to go back to eating normal amounts of gluten for weeks/months leading... -
- Marky0320 replied to Marky0320's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
CVS (Cyclic vomiting syndrome)
I'm investigating the possibility of having celiac disease. My kid has Coffins Lowery syndrome, a rare form of Austism, and constantly has these CVS episodes. We suspect it could be related to Gluten sensitivity or celiac. We just started the diet last week, and we'll keep an eye on any improvements. -
- Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Waiting on biopsy after positive bloodwork, but also not really believing this is real
@Scott Adams thank you again! You definitely 100% get it!! It's so helpful to know that what I'm going through is normal and part of the process. My endoscopy just got scheduled for June 10 (I'm going to be traveling or else they could have gotten me in earlier) so I have 2 more weeks of eating gluten. I'm assuming I should just go to the endoscopy... -
- trents replied to NightRaven92's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
I am wondering if my symptoms are Celiac Disease related..
Welcome to the forum, @NightRaven92! The symptoms you describe definitely align with celiac disease or at least NCGS (Non Celiac Gluten Sensitivity). That, and the family history of celiac disease, certainly warrant being tested for it. The first stage of diagnosis involves blood tests looking for antibodies that are more or less specific to celiac disease...
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