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Recent Activity
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- mytype1diabetes replied to mytype1diabetes's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results
Thanks for this Wends and appreciate your insights! I'm not sure what you mean by "Your toddler is unlikely igA deficient with a titer of 22, as a positive test." ? I had a look at Dr Bernstein's work and we've definitely noticed that on lower carb days her blood glucose levels are much easier to manage. Our nutritionist advised against a low carb diet... -
- mytype1diabetes replied to mytype1diabetes's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results
Thank you all for your kind wishes, it means so much. The information you've all shared has been so useful. We have a great diabetes team and trust the consultants decision to wait a few months to repeat the blood test. We also don't want to put her through any more tests than she needs as it's so tough on her and us! It feels unbearable waiting when... -
- Scott Adams replied to milana's topic in Gluten-Free Foods, Products, Shopping & Medications3Pepsid alternative
It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!! -
- Stephanie Wakeman replied to Stephanie Wakeman's topic in Coping with Celiac Disease3Is it common to develop a wheat allergy in addition to Celiac Disease?
Thank you so much for your response! It's been a challenging journey with this condition!- 1
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- milana replied to milana's topic in Gluten-Free Foods, Products, Shopping & Medications3Pepsid alternative
Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically, there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also...- 1
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By mytype1diabetes · Posted
Thanks for this Wends and appreciate your insights! I'm not sure what you mean by "Your toddler is unlikely igA deficient with a titer of 22, as a positive test." ? I had a look at Dr Bernstein's work and we've definitely noticed that on lower carb days her blood glucose levels are much easier to manage. Our nutritionist advised against a low carb diet for toddlers as they said young children, unlike adults, rely on carbs for their growth and development. What's your view on this? Regarding malabsorption - it's so hard to know what's "normal". My daughter's poos have always been on the softer side as she's breastfed and we eat very healthily. I've booked an appointment with our GP and will take some photos! -
By mytype1diabetes · Posted
Thank you all for your kind wishes, it means so much. The information you've all shared has been so useful. We have a great diabetes team and trust the consultants decision to wait a few months to repeat the blood test. We also don't want to put her through any more tests than she needs as it's so tough on her and us! It feels unbearable waiting when she has some unexplained symptoms and as her mum I want to make sure we're doing everything we can to keep her healthy. That's interesting re: iron levels. I hadn't thought about that but I'm pretty sure this would've been checked as she was in hospital with DKA and they did lots of tests. I have requested a copy of her results. -
By Scott Adams · Posted
It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!! -
By Stephanie Wakeman · Posted
Thank you so much for your response! It's been a challenging journey with this condition! -
Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically, there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
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