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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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- Scott Adams replied to Zuma888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease4
Hypothetical question about antibodies
No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full... -
- Scott Adams replied to MagsM's topic in Related Issues & Disorders27
Inflammation and Menier’s disease link?
The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend... -
- Pablohoyasaxa replied to Stephanie Wakeman's topic in Coping with Celiac Disease17Is it common to develop a wheat allergy in addition to Celiac Disease?
Great post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions.- 1
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- knitty kitty replied to Stephanie Wakeman's topic in Coping with Celiac Disease17Is it common to develop a wheat allergy in addition to Celiac Disease?
I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin. The flushing is harmless and goes away the longer Niacin is taken. The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters. TTg 2 IgA antibodies are found in the blood and are...
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By Scott Adams · Posted
No, I would not say this at all. If you were diagnosed with celiac disease and were gluten-free for a while, you could have gone into remission. Everyone's body is different, and some celiacs may be able to get regular contamination and not end up with damaged villi and positive antibody tests, while others who ingest tiny amounts will relapse and have full blown symptoms and flattened villi. Only a full gluten challenge would reveal where you are at this point. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
By Scott Adams · Posted
The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. -
By Pablohoyasaxa · Posted
Great post. The skin issue can be intolerable. I have been taking niacinamide for the past month and have improved with respect to the blistering lesions. -
By knitty kitty · Posted
I've found taking Niacin Vitamin B 3 in the form that causes flushing (nicotinic acid) helps immensely to clear my skin. The flushing is harmless and goes away the longer Niacin is taken. The flushing (vasodilation in the skin) helps the body get rid of the tTg 3 IgA antibodies that cause the blisters. TTg 2 IgA antibodies are found in the blood and are measured in diagnostic testing for Celiac. People with Dermatitis Herpetiformis make tTg 3 as well as tTg 2 antibodies. Niacin Vitamin B3 in the non flushing form niacinamide also works without the flushing, but takes a bit longer. I also avoid foods containing high levels of iodine because iodine activates the tTg 3 IgA antibodies to become more active and make more blisters. I avoid kelp (nori, seaweed) and crustaceans, eggs, dairy products, and iodized table salt. Niacinamide and Nicotinic acid are water soluble and harmless. I'd much rather take Niacin than Dapsone with scary side effects. -
We have a gluten-free household. It's the least stressful option. No one else in my family has Celiac, but they are all extremely supportive. We don't even have Play-doh for this kids.
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