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Coping with Celiac Disease
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Recent Activity
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- RMJ replied to science enthusiast Christi's topic in Coping with Celiac Disease3Sugar intolerance 10 years into gluten-free diet
Here is some information on disaccharide (i.e., sucrose, maltose) intolerance. Disaccharide intolerance -
- Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease10Pain in the right side of abdomen
Thanks for replying. She has anxiety so always thinks the worst!!!GP is going to refer her for a scan and hopefully getting bloods done this week. Have mentioned food diary to her before so will mention it again -
- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms37
Blood results
She is waiting to get bloods done to check for various things including bone profile. As far as I know she does a lot of cooking from scratch, lots of veg, chicken. She’s never been a fan of processed foods like cold ham but does like bacon and will also buy gluten free sausages. Shares a flat with her friend who is aware of her coeliac. As far as I’m awa... -
- knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms37Blood results
@Heatherisle, Has your daughter been checked for vitamin and mineral deficiencies? A combination of Thiamine Hydrochloride (or Benfotiamine) and B12 and Pyridoxine B6 relieves pain as well as over-the-counter pain relievers. What sort of food does she eat on the GFD? Many gluten free processed foods? -
- knitty kitty replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Confused about HLA-DQ Celiac gene test result
Your doctor is incorrect! Your positive DQB1*02 is all you need to develop Celiac disease. Just having one copy is sufficient to develop Celiac. Reference: Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line...
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Here is some information on disaccharide (i.e., sucrose, maltose) intolerance. Disaccharide intolerance
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By Heatherisle · Posted
Thanks for replying. She has anxiety so always thinks the worst!!!GP is going to refer her for a scan and hopefully getting bloods done this week. Have mentioned food diary to her before so will mention it again -
By Heatherisle · Posted
She is waiting to get bloods done to check for various things including bone profile. As far as I know she does a lot of cooking from scratch, lots of veg, chicken. She’s never been a fan of processed foods like cold ham but does like bacon and will also buy gluten free sausages. Shares a flat with her friend who is aware of her coeliac. As far as I’m aware they’re very careful about cross contamination but I know it’s possible it happens from time to time -
By knitty kitty · Posted
@Heatherisle, Has your daughter been checked for vitamin and mineral deficiencies? A combination of Thiamine Hydrochloride (or Benfotiamine) and B12 and Pyridoxine B6 relieves pain as well as over-the-counter pain relievers. What sort of food does she eat on the GFD? Many gluten free processed foods? -
By knitty kitty · Posted
Your doctor is incorrect! Your positive DQB1*02 is all you need to develop Celiac disease. Just having one copy is sufficient to develop Celiac. Reference: Carrier frequency of HLA-DQB1*02 allele in patients affected with celiac disease: A systematic review assessing the potential rationale of a targeted allelic genotyping as a first-line screening "...importantly, a comparable risk of celiac disease development was present in individuals carrying a double dose of HLA-DQB1*02 alleles, no matter the paired HLA-DQA1 alleles." And... "If we could consider a mass screening looking for the carrier status of HLA-DQB1*02 only, we may identify 95% of celiac disease predisposed patients and, concomitantly, rule out (with no more than a 5% error) the lifetime risk of disease in 60%-70% of the general population: These non-predisposed individuals should never receive the serological screening, unless any consistent clinical symptoms appear at some point of the existence without any other explanation." https://pmc.ncbi.nlm.nih.gov/articles/PMC7109277/ Classical celiac disease is more frequent with a double dose of HLA-DQB1*02: A systematic review with meta-analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC6375622/ Also, the Malabsorption of Celiac can cause low B vitamins (and minerals) that are related to poor oral health. The Role of Vitamin B Complex in Periodontal Disease: A Systematic Review Examining Supplementation Outcomes, Age Differences in Children and Adults, and Aesthetic Changes https://pubmed.ncbi.nlm.nih.gov/40218924/ Best wishes for your Celiac journey!
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